citation,doi,url,summary_of_paper_topic,theme_name,theme_description
"Rufener L, Akre C, Rodondi P-Y, Dubois J (2024) Management of chronic non-cancer pain by primary care physicians: A qualitative study. PLoS ONE 19(7): e0307701.",10.1371/journal.pone.0307701,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0307701,Swiss GPs' management of chronic non-cancer pain patients,Investigation of CNCP,"This theme encompasses three key components: history taking to understand patient limitations and prior treatments; looking for specific pain causes while recognizing that CNCP rarely has a single and specific cause; and exploring psychosocial dimensions including patient's interpretation of their pain and psychological factors affecting pain processing."
"Rufener L, Akre C, Rodondi P-Y, Dubois J (2024) Management of chronic non-cancer pain by primary care physicians: A qualitative study. PLoS ONE 19(7): e0307701.",10.1371/journal.pone.0307701,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0307701,Swiss GPs' management of chronic non-cancer pain patients,Patient-Provider Relationship,"Emphasized the importance of fostering trust through continuous care and open communication. Physicians highlighted that conversations are the most important thing in managing chronic pain, requiring time to explain pain mechanisms and reassure patients while avoiding negative comments about previous treatments."
"Rufener L, Akre C, Rodondi P-Y, Dubois J (2024) Management of chronic non-cancer pain by primary care physicians: A qualitative study. PLoS ONE 19(7): e0307701.",10.1371/journal.pone.0307701,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0307701,Swiss GPs' management of chronic non-cancer pain patients,Patient Characteristics,"Addressed how socioeconomic situations (employment capacity, financial resources for treatments) and patient attitudes toward pain influenced management strategies. Insurance coverage determined treatment prioritization, with physicians sometimes recommending covered therapies over potentially more effective options."
"Rufener L, Akre C, Rodondi P-Y, Dubois J (2024) Management of chronic non-cancer pain by primary care physicians: A qualitative study. PLoS ONE 19(7): e0307701.",10.1371/journal.pone.0307701,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0307701,Swiss GPs' management of chronic non-cancer pain patients,Medical Recommendations,"Covered pharmacological approaches (non-opioid analgesics first, opioids as last resort), non-pharmacological treatments (physiotherapy, psychological support), and regular reassessment for treatment effectiveness and side effects."
"Payne H, Brooks SDM (2020) A qualitative study of the views of patients with medically unexplained symptoms on The BodyMind Approach: Employing embodied methods and arts practices for self-management. Frontiers in Psychology 11: 554566.",10.3389/fpsyg.2020.554566,https://pmc.ncbi.nlm.nih.gov/articles/PMC7750328/,MUS patients' views on embodied arts-based intervention,Body With Mind Connections,"Participants learned to establish linkages between body and mind through embodied practices, enabling them to monitor bodily signals and understand how emotional states influence physical symptoms."
"Payne H, Brooks SDM (2020) A qualitative study of the views of patients with medically unexplained symptoms on The BodyMind Approach: Employing embodied methods and arts practices for self-management. Frontiers in Psychology 11: 554566.",10.3389/fpsyg.2020.554566,https://pmc.ncbi.nlm.nih.gov/articles/PMC7750328/,MUS patients' views on embodied arts-based intervention,Importance of the Facilitator,"The facilitator functioned as a catalyst, establishing safety and trust while modeling non-judgmental attitudes that encouraged participants to explore their symptoms and develop coping strategies."
"Payne H, Brooks SDM (2020) A qualitative study of the views of patients with medically unexplained symptoms on The BodyMind Approach: Employing embodied methods and arts practices for self-management. Frontiers in Psychology 11: 554566.",10.3389/fpsyg.2020.554566,https://pmc.ncbi.nlm.nih.gov/articles/PMC7750328/,MUS patients' views on embodied arts-based intervention,Positive Benefits,"Groups provided feelings of belonging, support, safety, and shared purpose, reducing isolation and fostering social cohesion essential for developing self-management confidence."
"Payne H, Brooks SDM (2020) A qualitative study of the views of patients with medically unexplained symptoms on The BodyMind Approach: Employing embodied methods and arts practices for self-management. Frontiers in Psychology 11: 554566.",10.3389/fpsyg.2020.554566,https://pmc.ncbi.nlm.nih.gov/articles/PMC7750328/,MUS patients' views on embodied arts-based intervention,Preparedness for Change,"Participants reported shifts in thinking patterns and habits, lifestyle modifications, and improved mindsets that enabled them to embrace change and develop new management approaches."
"Payne H, Brooks SDM (2020) A qualitative study of the views of patients with medically unexplained symptoms on The BodyMind Approach: Employing embodied methods and arts practices for self-management. Frontiers in Psychology 11: 554566.",10.3389/fpsyg.2020.554566,https://pmc.ncbi.nlm.nih.gov/articles/PMC7750328/,MUS patients' views on embodied arts-based intervention,Self-Acceptance/Compassion,"The symptom transformed from being an enemy into an ally, fostering tolerance and acceptance necessary for sustainable self-management rather than seeking cure."
"Ashe SC, Furness PJ, Taylor SJ, Haywood-Small S, Lawson K (2017) A qualitative exploration of the experiences of living with and being treated for fibromyalgia. Health Psychology Open 4(2): 2055102917724336.",10.1177/2055102917724336,https://pmc.ncbi.nlm.nih.gov/articles/PMC5779932/,Fibromyalgia patients' lived experiences and treatment,Inauthenticity of Fibromyalgia,"The condition's contested medical status creates a sense of invisibility and delegitimacy. Participants felt their symptoms lacked recognition from healthcare professionals and the public, with some experiencing dismissive attitudes suggesting the condition was all in your head. This theme fundamentally influenced all remaining themes."
"Ashe SC, Furness PJ, Taylor SJ, Haywood-Small S, Lawson K (2017) A qualitative exploration of the experiences of living with and being treated for fibromyalgia. Health Psychology Open 4(2): 2055102917724336.",10.1177/2055102917724336,https://pmc.ncbi.nlm.nih.gov/articles/PMC5779932/,Fibromyalgia patients' lived experiences and treatment,An Unconventional Healthcare Experience,"Healthcare encounters deviated significantly from traditional medical pathways. Participants described prolonged diagnostic processes, dismissive consultations, and a perception of being mistrusted regarding pain medication requests. They noted conflicting treatment approaches and insufficient specialist knowledge among healthcare providers."
"Ashe SC, Furness PJ, Taylor SJ, Haywood-Small S, Lawson K (2017) A qualitative exploration of the experiences of living with and being treated for fibromyalgia. Health Psychology Open 4(2): 2055102917724336.",10.1177/2055102917724336,https://pmc.ncbi.nlm.nih.gov/articles/PMC5779932/,Fibromyalgia patients' lived experiences and treatment,Re-creating Support Networks,"Participants restructured their social connections, forming what one described as a Fibro-family with others who understood the condition. Traditional friendships often dissolved due to incomprehension, while support groups provided crucial validation and mutual understanding previously unavailable."
"Ashe SC, Furness PJ, Taylor SJ, Haywood-Small S, Lawson K (2017) A qualitative exploration of the experiences of living with and being treated for fibromyalgia. Health Psychology Open 4(2): 2055102917724336.",10.1177/2055102917724336,https://pmc.ncbi.nlm.nih.gov/articles/PMC5779932/,Fibromyalgia patients' lived experiences and treatment,Challenging the Working Identity,"Fibromyalgia forced occupational withdrawal or significant work modifications, undermining participants' professional identities and self-esteem. Many experienced financial strain, guilt about inability to provide for families, and stigmatization regarding disability benefits."
"Ashe SC, Furness PJ, Taylor SJ, Haywood-Small S, Lawson K (2017) A qualitative exploration of the experiences of living with and being treated for fibromyalgia. Health Psychology Open 4(2): 2055102917724336.",10.1177/2055102917724336,https://pmc.ncbi.nlm.nih.gov/articles/PMC5779932/,Fibromyalgia patients' lived experiences and treatment,Threatening the Family Dynamic,"The condition disrupted family functioning, requiring dependence on partners for daily tasks and affecting parenting capabilities. Participants experienced strain in relationships and recognized their symptoms negatively impacted children's development and emotional wellbeing."
"Ashe SC, Furness PJ, Taylor SJ, Haywood-Small S, Lawson K (2017) A qualitative exploration of the experiences of living with and being treated for fibromyalgia. Health Psychology Open 4(2): 2055102917724336.",10.1177/2055102917724336,https://pmc.ncbi.nlm.nih.gov/articles/PMC5779932/,Fibromyalgia patients' lived experiences and treatment,"Fighting, Accepting or Accommodating?","Participants described an ongoing struggle with their condition rather than genuine acceptance. They adapted through lifestyle modifications, mobility aids, and home adjustments while maintaining pragmatism despite barriers to support."
"Kamp KJ, Morgan H, Yoo L, Munson SA, Heitkemper MM, Levy RL (2022) Symptom management needs of patients with irritable bowel syndrome and concurrent anxiety and/or depression: A qualitative study. Journal of Advanced Nursing 79(2): 775-788.",10.1111/jan.15532,https://pmc.ncbi.nlm.nih.gov/articles/PMC9877173/,IBS patients with anxiety/depression symptom management needs,IBS negatively impacts physical and mental well-being,"Shared experiences with distressing physical symptoms (abdominal pain, urgency, diarrhea, constipation, bloating). Bidirectional relationship between IBS symptoms and anxiety/depression. IBS symptoms disrupt normal activities of daily living. Interpersonal relationships affected by symptom perception and self-consciousness."
"Kamp KJ, Morgan H, Yoo L, Munson SA, Heitkemper MM, Levy RL (2022) Symptom management needs of patients with irritable bowel syndrome and concurrent anxiety and/or depression: A qualitative study. Journal of Advanced Nursing 79(2): 775-788.",10.1111/jan.15532,https://pmc.ncbi.nlm.nih.gov/articles/PMC9877173/,IBS patients with anxiety/depression symptom management needs,A trial-and-error approach to symptom management,"Identifying strategies for managing symptoms through dietary approaches and complementary methods. Impractical and ineffective interventions that lack personalization. Multiple attempts at various interventions: what haven't I tried? reflecting frustration with ongoing symptom management."
"Kamp KJ, Morgan H, Yoo L, Munson SA, Heitkemper MM, Levy RL (2022) Symptom management needs of patients with irritable bowel syndrome and concurrent anxiety and/or depression: A qualitative study. Journal of Advanced Nursing 79(2): 775-788.",10.1111/jan.15532,https://pmc.ncbi.nlm.nih.gov/articles/PMC9877173/,IBS patients with anxiety/depression symptom management needs,Challenges with healthcare professionals supporting symptom management,"Negative interactions including provider dismissal and attribution to mental health causes. Lack of nutritional expertise and support, particularly regarding dietitian access and guidance."
"Varinen A, Vuorio T, Kosunen E, Koskela TH (2022) Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study. European Journal of General Practice 28(1): 157-164.",10.1080/13814788.2022.2085683,https://pmc.ncbi.nlm.nih.gov/articles/PMC9225685/,Finnish fibromyalgia patients' diagnostic experiences in primary care,Prolonged diagnostic process,"Patients experienced extended waiting periods for fibromyalgia diagnosis, often undergoing repeated tests for rheumatoid arthritis and other conditions that yielded negative results."
"Varinen A, Vuorio T, Kosunen E, Koskela TH (2022) Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study. European Journal of General Practice 28(1): 157-164.",10.1080/13814788.2022.2085683,https://pmc.ncbi.nlm.nih.gov/articles/PMC9225685/,Finnish fibromyalgia patients' diagnostic experiences in primary care,Contradictory and suspicious thoughts regarding the diagnosis,"Participants faced conflicting medical opinions, negative societal stigma, and physician hesitation about documenting the diagnosis in medical records."
"Varinen A, Vuorio T, Kosunen E, Koskela TH (2022) Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study. European Journal of General Practice 28(1): 157-164.",10.1080/13814788.2022.2085683,https://pmc.ncbi.nlm.nih.gov/articles/PMC9225685/,Finnish fibromyalgia patients' diagnostic experiences in primary care,Searching for a reason for the illness,"Patients explored potential causes including hereditary factors, psychological stressors, and physical predispositions like joint hypermobility."
"Varinen A, Vuorio T, Kosunen E, Koskela TH (2022) Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study. European Journal of General Practice 28(1): 157-164.",10.1080/13814788.2022.2085683,https://pmc.ncbi.nlm.nih.gov/articles/PMC9225685/,Finnish fibromyalgia patients' diagnostic experiences in primary care,Lack of compassion and understanding,"Patients reported feeling doubted by healthcare providers and relatives due to the invisibility of fibromyalgia symptoms."
"Varinen A, Vuorio T, Kosunen E, Koskela TH (2022) Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study. European Journal of General Practice 28(1): 157-164.",10.1080/13814788.2022.2085683,https://pmc.ncbi.nlm.nih.gov/articles/PMC9225685/,Finnish fibromyalgia patients' diagnostic experiences in primary care,The importance of the doctor-patient relationship,"Continuity of care and physician familiarity with fibromyalgia treatment were essential for patient satisfaction and outcomes."
"Varinen A, Vuorio T, Kosunen E, Koskela TH (2022) Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study. European Journal of General Practice 28(1): 157-164.",10.1080/13814788.2022.2085683,https://pmc.ncbi.nlm.nih.gov/articles/PMC9225685/,Finnish fibromyalgia patients' diagnostic experiences in primary care,Illness and identity,"Patients struggled accepting a chronic condition without cure, forcing adoption of new life organizational strategies."
"Varinen A, Vuorio T, Kosunen E, Koskela TH (2022) Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study. European Journal of General Practice 28(1): 157-164.",10.1080/13814788.2022.2085683,https://pmc.ncbi.nlm.nih.gov/articles/PMC9225685/,Finnish fibromyalgia patients' diagnostic experiences in primary care,Conceptions of the treatment,"Varied patient perspectives on medication effectiveness, with exercise and meaningful daily activities recognized as beneficial."
"Armoogum J, Foster C, Llewellyn A, Harcourt D, McCabe C (2023) 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK. PLoS ONE 18(9): e0290967.",10.1371/journal.pone.0290967,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0290967,Cancer survivors' chronic pain experiences post-treatment,'Hear me... believe me... Please',"Survivors reported feeling unheard by healthcare professionals regarding their chronic pain. They described not being listened to when attempting to discuss their condition, and encountering skepticism about whether chronic pain after cancer treatment was genuine. Some felt healthcare providers suspected them of exaggeration or psychological distress rather than accepting their physical pain as real."
"Armoogum J, Foster C, Llewellyn A, Harcourt D, McCabe C (2023) 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK. PLoS ONE 18(9): e0290967.",10.1371/journal.pone.0290967,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0290967,Cancer survivors' chronic pain experiences post-treatment,'Expectation versus reality',"This theme captures the profound disconnect between anticipating full recovery post-treatment and living daily in persistent pain. Survivors expected acute side effects would resolve but were unprepared for long-term consequences. The reality involved negative impacts across all life domains -- physical, emotional, social, sexual, spiritual, and financial -- with survivors describing their lives as smaller with doors shut."
"Armoogum J, Foster C, Llewellyn A, Harcourt D, McCabe C (2023) 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK. PLoS ONE 18(9): e0290967.",10.1371/journal.pone.0290967,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0290967,Cancer survivors' chronic pain experiences post-treatment,"'They don't understand... We don't understand'","Characterized by widespread lack of knowledge about chronic pain after cancer treatment among both survivors and healthcare professionals. Participants felt uninformed about risks at diagnosis, unaware of causes or management options, and encountered providers who lacked expertise in this condition."
"Armoogum J, Foster C, Llewellyn A, Harcourt D, McCabe C (2023) 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK. PLoS ONE 18(9): e0290967.",10.1371/journal.pone.0290967,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0290967,Cancer survivors' chronic pain experiences post-treatment,'Negotiating the maze',"Survivors described difficulty identifying and accessing support services. They reported feeling abandoned post-treatment, struggling to locate appropriate care, facing extended referral delays, traveling significant distances, and experiencing referral cycles between cancer services, pain clinics, and primary care with no clear pathway forward."
"Armoogum J, Foster C, Llewellyn A, Harcourt D, McCabe C (2023) 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK. PLoS ONE 18(9): e0290967.",10.1371/journal.pone.0290967,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0290967,Cancer survivors' chronic pain experiences post-treatment,"'Validate my pain, validate me'","When healthcare providers diagnosed and explained their chronic pain, survivors experienced profound relief. Receiving formal diagnosis and acknowledgment validated their experiences, reduced self-doubt about being crazy, and paradoxically made the pain more manageable despite unchanged physical symptoms."
"Child S, Goodwin VA, Perry MG, Gericke CA, Byng R (2015) Implementing a patient-initiated review system in rheumatoid arthritis: a qualitative evaluation. BMC Health Services Research 15: 157.",10.1186/s12913-015-0837-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC4404042/,Patient-initiated appointment system for rheumatoid arthritis,Building Patient Confidence and Empowerment,"Education sessions with trusted nurses helped patients understand the new system and overcome initial skepticism about being discharged from consultant lists."
"Child S, Goodwin VA, Perry MG, Gericke CA, Byng R (2015) Implementing a patient-initiated review system in rheumatoid arthritis: a qualitative evaluation. BMC Health Services Research 15: 157.",10.1186/s12913-015-0837-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC4404042/,Patient-initiated appointment system for rheumatoid arthritis,Right Place - Right Time,"The system enabled timely access to care when needed, eliminating wasted appointments when patients were well and reducing long waiting periods for routine check-ups."
"Child S, Goodwin VA, Perry MG, Gericke CA, Byng R (2015) Implementing a patient-initiated review system in rheumatoid arthritis: a qualitative evaluation. BMC Health Services Research 15: 157.",10.1186/s12913-015-0837-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC4404042/,Patient-initiated appointment system for rheumatoid arthritis,Safety,"Concerns emerged about suitability for all patients; some lacked ability to recognize disease deterioration or confidence to call the helpline."
"Child S, Goodwin VA, Perry MG, Gericke CA, Byng R (2015) Implementing a patient-initiated review system in rheumatoid arthritis: a qualitative evaluation. BMC Health Services Research 15: 157.",10.1186/s12913-015-0837-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC4404042/,Patient-initiated appointment system for rheumatoid arthritis,The Everyday Challenges of Managing Change,"Implementation required organizational buy-in, team communication, workload redistribution, and clarification that changes needed management and administrative back up."
"Day HLS (2022) Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study. Journal of Medical Internet Research 24(5): e37674.",10.2196/37674,https://pmc.ncbi.nlm.nih.gov/articles/PMC9128729/,UK long COVID patients' online peer support experiences,Filling Professional Care Gaps,"Focuses on inadequate healthcare support where participants faced dismissal from healthcare professionals and turned to online groups. Also covers knowledge generation through peer sharing of therapies and management techniques."
"Day HLS (2022) Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study. Journal of Medical Internet Research 24(5): e37674.",10.2196/37674,https://pmc.ncbi.nlm.nih.gov/articles/PMC9128729/,UK long COVID patients' online peer support experiences,Societal Awareness,"Addresses how existing support networks proved insufficient, with peers providing more attuned understanding. Additionally explores advocacy efforts where groups bringing it to light validates the condition's importance."
"Day HLS (2022) Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study. Journal of Medical Internet Research 24(5): e37674.",10.2196/37674,https://pmc.ncbi.nlm.nih.gov/articles/PMC9128729/,UK long COVID patients' online peer support experiences,Engagement Behavior,"Describes how participation varied temporally, with members engaging depending on their recovery stage, individual relevance, and emotional state, reflecting fluid involvement patterns."
"Day HLS (2022) Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study. Journal of Medical Internet Research 24(5): e37674.",10.2196/37674,https://pmc.ncbi.nlm.nih.gov/articles/PMC9128729/,UK long COVID patients' online peer support experiences,Diversity,"Examines international reach benefits and challenges, varying recovery stages among members, and administration/moderation burdens on group leaders managing large communities."
"Day HLS (2022) Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study. Journal of Medical Internet Research 24(5): e37674.",10.2196/37674,https://pmc.ncbi.nlm.nih.gov/articles/PMC9128729/,UK long COVID patients' online peer support experiences,Social Connections,"Emphasizes participants joining groups to feel less alone, finding reassurance through shared symptomology, while noting potential mental health impacts -- both positive and negative -- of group engagement."
"Dennison L, McCloy Smith E, Bradbury K, Galea I (2016) How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study. PLoS ONE 11(7): e0158982.",10.1371/journal.pone.0158982,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0158982,MS patients' experiences of prognostic uncertainty,Experiencing unsatisfactory HCP communication,"Participants reported minimal opportunities to discuss prognosis with healthcare professionals. Negative communication experiences during diagnosis persisted emotionally over time, creating negative expectations of future interactions. MS nurses were perceived as better communicators than neurologists, though not universally available."
"Dennison L, McCloy Smith E, Bradbury K, Galea I (2016) How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study. PLoS ONE 11(7): e0158982.",10.1371/journal.pone.0158982,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0158982,MS patients' experiences of prognostic uncertainty,Appreciating and accepting prognostic uncertainty,"Participants demonstrated comprehension of MS's inherent variability and accepted that healthcare providers could not predict individual disease trajectories. Many held philosophical stances toward accepting life's unpredictability rooted in religious beliefs or psychological therapy."
"Dennison L, McCloy Smith E, Bradbury K, Galea I (2016) How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study. PLoS ONE 11(7): e0158982.",10.1371/journal.pone.0158982,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0158982,MS patients' experiences of prognostic uncertainty,Trying to stay present-focused,"A widespread coping strategy involved focusing on daily life rather than the uncertain future. Participants described living one day at a time or avoiding future-oriented thinking, though intrusive worries about disability and dependence frequently interrupted this approach."
"Dennison L, McCloy Smith E, Bradbury K, Galea I (2016) How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study. PLoS ONE 11(7): e0158982.",10.1371/journal.pone.0158982,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0158982,MS patients' experiences of prognostic uncertainty,Forming and editing personal beliefs about prognosis,"Despite acknowledging uncertainty, participants developed specific beliefs about their disease trajectory through multiple sources: salient personal experiences with other MS patients, healthcare provider communication, internet research, and their own disease experiences over time."
"Dennison L, McCloy Smith E, Bradbury K, Galea I (2016) How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study. PLoS ONE 11(7): e0158982.",10.1371/journal.pone.0158982,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0158982,MS patients' experiences of prognostic uncertainty,Ambivalence towards forecasting the future,"Participants expressed conflicting feelings about receiving detailed prognosis predictions. Primary concerns included hopelessness from negative information and uncertainty about information's practical usefulness when no curative treatments exist."
"Dennison L, McCloy Smith E, Bradbury K, Galea I (2016) How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study. PLoS ONE 11(7): e0158982.",10.1371/journal.pone.0158982,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0158982,MS patients' experiences of prognostic uncertainty,Prognosis information delivery,"Participants emphasized that prognosis discussions require careful timing (inappropriate at diagnosis), face-to-face delivery, healthcare provider expertise combined with supportive skills, and integration within comprehensive care plans addressing emotional wellbeing alongside medical management."
"Bukhsh A, Goh B-H, Zimbudzi E, Lo C, Aksber N, Khan TM (2020) Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan. Frontiers in Endocrinology 11: 534873.",10.3389/fendo.2020.534873,https://pmc.ncbi.nlm.nih.gov/articles/PMC7729167/,Pakistani T2DM patients' self-care perspectives and barriers,Role of Family and Friends,"Family members serve as critical support systems, assisting with medicine identification and administration, glucometer operation, hypoglycemia symptom recognition, and initial diabetes diagnosis awareness. However, social gatherings present dietary adherence challenges as culturally unsuitable foods dominate, and patients occasionally skip medications during family events."
"Bukhsh A, Goh B-H, Zimbudzi E, Lo C, Aksber N, Khan TM (2020) Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan. Frontiers in Endocrinology 11: 534873.",10.3389/fendo.2020.534873,https://pmc.ncbi.nlm.nih.gov/articles/PMC7729167/,Pakistani T2DM patients' self-care perspectives and barriers,Role of Doctors and Healthcare,"Physician counseling significantly influences medication adherence, exercise adoption, and dietary modification understanding. Yet variable experiences emerged -- some received comprehensive education on hypoglycemia management while others received minimal guidance. Patients attended appointments irregularly, primarily seeking free medicines or addressing emergencies rather than routine checkups."
"Bukhsh A, Goh B-H, Zimbudzi E, Lo C, Aksber N, Khan TM (2020) Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan. Frontiers in Endocrinology 11: 534873.",10.3389/fendo.2020.534873,https://pmc.ncbi.nlm.nih.gov/articles/PMC7729167/,Pakistani T2DM patients' self-care perspectives and barriers,Patients' Understanding About Diabetes,"Family and friends served as primary information sources. Participants harbored misconceptions about diabetes curability and etiology, attributing causes to herbal medicine use, depression, or medication side effects. Symptomatic presentations like frequent urination and fatigue initially drove healthcare visits."
"Bukhsh A, Goh B-H, Zimbudzi E, Lo C, Aksber N, Khan TM (2020) Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan. Frontiers in Endocrinology 11: 534873.",10.3389/fendo.2020.534873,https://pmc.ncbi.nlm.nih.gov/articles/PMC7729167/,Pakistani T2DM patients' self-care perspectives and barriers,Complications of Diabetes and Other Comorbidities,"Fear of diabetes complications motivated strict medication adherence. Simultaneously, comorbidities including joint pain, fatigue, and heart problems significantly restricted physical activity engagement and exercise sustainability."
"Bukhsh A, Goh B-H, Zimbudzi E, Lo C, Aksber N, Khan TM (2020) Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan. Frontiers in Endocrinology 11: 534873.",10.3389/fendo.2020.534873,https://pmc.ncbi.nlm.nih.gov/articles/PMC7729167/,Pakistani T2DM patients' self-care perspectives and barriers,Burden of Self-Care,"Food cravings, needle phobia, forgetfulness, and medicine non-adherence emerged as personal behavioral barriers. Psychological resistance to dietary restrictions and injection-related anxiety compromised self-management consistency."
"Bukhsh A, Goh B-H, Zimbudzi E, Lo C, Aksber N, Khan TM (2020) Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan. Frontiers in Endocrinology 11: 534873.",10.3389/fendo.2020.534873,https://pmc.ncbi.nlm.nih.gov/articles/PMC7729167/,Pakistani T2DM patients' self-care perspectives and barriers,Life Circumstances,"Financial constraints limiting healthy food affordability, hectic work schedules preventing exercise incorporation, weather extremes disrupting physical activity, and household responsibilities substituting perceived exercise needs created systemic obstacles to recommended self-care practices."
"Roikjaer SG, Simony CP, Timm HU (2020) Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic. BMJ Open 10(12): e043955.",10.1136/bmjopen-2020-043955,https://pmc.ncbi.nlm.nih.gov/articles/PMC7780519/,Heart failure patients' experiences of integrated palliative care,Sessions Bring Comfort,"Patients perceived the integrated sessions as addressing their concerns regardless of type. Participants felt cared about, which enabled them to share personal experiences, thoughts or worries and experienced relief from physical, psychosocial, and existential problems."
"Roikjaer SG, Simony CP, Timm HU (2020) Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic. BMJ Open 10(12): e043955.",10.1136/bmjopen-2020-043955,https://pmc.ncbi.nlm.nih.gov/articles/PMC7780519/,Heart failure patients' experiences of integrated palliative care,Telling Your Story Provides a Sense of Meaningfulness,"The narrative approach created genuine interest in patients' lived experiences. Patients interpreted this as genuine interest from the professionals and generated coherence by helping them recognize the bigger picture, thereby creating a sense of meaning."
"Roikjaer SG, Simony CP, Timm HU (2020) Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic. BMJ Open 10(12): e043955.",10.1136/bmjopen-2020-043955,https://pmc.ncbi.nlm.nih.gov/articles/PMC7780519/,Heart failure patients' experiences of integrated palliative care,Integrating Perspectives of Heart Failure Into Everyday Life,"Patients combined embodied understanding with medical knowledge. This integration allowed participants to balance worries with hope and living life while comprehending both physiological aspects and existential implications of their diagnosis."
"Lightbourne A, Foley S, Dempsey M, Cronin M (2023) Living with endometriosis: A reflexive thematic analysis examining women's experiences with the Irish healthcare services. Qualitative Health Research 34(4): 311-322.",10.1177/10497323231214114,https://pmc.ncbi.nlm.nih.gov/articles/PMC10905982/,Women's experiences navigating Irish healthcare for endometriosis,Dismissive Attitudes Normalising Severe Pain,"Healthcare providers minimized women's symptomatology by treating severe pain as typical. Participants recalled being told to embrace feeling unwell or that bad periods are normal. This dismissal occurred at both pre-diagnosis and post-diagnosis stages, undermining patients' lived experiences."
"Lightbourne A, Foley S, Dempsey M, Cronin M (2023) Living with endometriosis: A reflexive thematic analysis examining women's experiences with the Irish healthcare services. Qualitative Health Research 34(4): 311-322.",10.1177/10497323231214114,https://pmc.ncbi.nlm.nih.gov/articles/PMC10905982/,Women's experiences navigating Irish healthcare for endometriosis,Inadequate Health Services,"Participants reported systemic failures across all healthcare levels -- general practice through aftercare. Women described lacking support and information regarding symptom management. The public healthcare system was deemed unsuitable, prompting some to seek treatment abroad."
"Lightbourne A, Foley S, Dempsey M, Cronin M (2023) Living with endometriosis: A reflexive thematic analysis examining women's experiences with the Irish healthcare services. Qualitative Health Research 34(4): 311-322.",10.1177/10497323231214114,https://pmc.ncbi.nlm.nih.gov/articles/PMC10905982/,Women's experiences navigating Irish healthcare for endometriosis,The Impact of Delayed Diagnosis,"Diagnostic delays ranged from 2-32 years (average 6-7 years). Extended waiting periods caused psychological distress, financial burden, and fertility concerns. One woman reported suffering seven years before formal acknowledgment of her condition."
"Lightbourne A, Foley S, Dempsey M, Cronin M (2023) Living with endometriosis: A reflexive thematic analysis examining women's experiences with the Irish healthcare services. Qualitative Health Research 34(4): 311-322.",10.1177/10497323231214114,https://pmc.ncbi.nlm.nih.gov/articles/PMC10905982/,Women's experiences navigating Irish healthcare for endometriosis,Lack of Education and Awareness,"Healthcare professionals and the general public demonstrated insufficient knowledge about endometriosis. Women felt obligated to self-educate and self-advocate. Medical professionals should recognize classic endometriosis symptoms earlier in primary care settings."
"Lightbourne A, Foley S, Dempsey M, Cronin M (2023) Living with endometriosis: A reflexive thematic analysis examining women's experiences with the Irish healthcare services. Qualitative Health Research 34(4): 311-322.",10.1177/10497323231214114,https://pmc.ncbi.nlm.nih.gov/articles/PMC10905982/,Women's experiences navigating Irish healthcare for endometriosis,"Navigating Ignorance, Taboo and Societal Views","Limited specialist services created broader cultural impacts affecting relationships, workplace experiences, and social understanding. Women faced difficulty disclosing diagnoses and experienced career consequences from healthcare access needs."
"Moore C, Cogan N, Williams L (2023) A qualitative investigation into the role of illness perceptions in endometriosis-related quality of life. Journal of Health Psychology 28(12): 1157-1171.",10.1177/13591053231183230,https://pmc.ncbi.nlm.nih.gov/articles/PMC10571435/,Illness perceptions and quality of life in endometriosis,A Life Disrupted,"This theme captures how endometriosis prevents participants from living the life they wanted and creates a sense that their potential remains unrealized. The theme encompasses disruptions across multiple life domains -- education, work, relationships, and daily functioning. Participants expressed feeling powerless, describing endometriosis as controlling their lives."
"Moore C, Cogan N, Williams L (2023) A qualitative investigation into the role of illness perceptions in endometriosis-related quality of life. Journal of Health Psychology 28(12): 1157-1171.",10.1177/13591053231183230,https://pmc.ncbi.nlm.nih.gov/articles/PMC10571435/,Illness perceptions and quality of life in endometriosis,Lost Sense of Self,"Participants perceived their identity as fundamentally altered by endometriosis. Many described feeling like a different person or experiencing a lost sense of self. The theme explores how symptoms eroded previously salient identity aspects, particularly femininity and sexual identity. Participants faced invalidation from healthcare providers, leading to self-doubt."
"Moore C, Cogan N, Williams L (2023) A qualitative investigation into the role of illness perceptions in endometriosis-related quality of life. Journal of Health Psychology 28(12): 1157-1171.",10.1177/13591053231183230,https://pmc.ncbi.nlm.nih.gov/articles/PMC10571435/,Illness perceptions and quality of life in endometriosis,Complex Emotional Responses,"This theme presents two contrasting emotional dimensions. First, endometriosis functions as an emotional burden, generating frustration, anger, sadness, guilt, and loneliness. Second, some participants found emotional strength through establishing coping mechanisms and supporting others, deriving empowerment and pride from their experiences."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLoS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning in adolescents with eating disorders,Group Belonging,"Comprising subordinate themes of friendships dissolving (patients reported losing friends or lacking social connections), interpersonal adversity (teasing, bullying, competitiveness), and impoverished social networks resulting from illness and hospitalization."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLoS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning in adolescents with eating disorders,Self-Monitoring,"Two subordinate themes: fear of negative evaluation (excessive worry about others' judgments regarding appearance and behavior) and inter/intrapersonal perception (difficulty knowing what to say; struggling with spontaneous communication)."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLoS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning in adolescents with eating disorders,Social Sensitivity,"Related to increased perception of criticism and negative affect. Two subordinate themes: rejection sensitivity (identifying self by appearance rather than competency) and distrust in others (difficulty trusting people and disclosing illness)."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLoS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning in adolescents with eating disorders,Limited Coping Strategies,"Patients showed disinterest toward social success and could not generate practical solutions for managing social difficulties, despite recognizing their problems."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLoS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning in adolescents with eating disorders,Impact of Hospitalisation,"Both positive aspects (forming friendships quickly with fellow patients, increased trust with supportive friends) and negative aspects (friendship dissolution, restricted communication, impoverished social networks)."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLoS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning in adolescents with eating disorders,Suggestions for Service Provision,"Three key interventions: anxiety management, developing/maintaining social networks, and developing inter/intrapersonal skills."
"Wampaalu PB, Eriksson LE, Naamala A, Nabirye RC, Wettergren L (2016) Experiences of patients undergoing chemotherapy - a qualitative study of adults attending Uganda Cancer Institute. African Health Sciences 16(3): 744-749.",10.4314/ahs.v16i3.14,https://pmc.ncbi.nlm.nih.gov/articles/PMC5111977/,Cancer patients' experiences of chemotherapy in Uganda,Experiences Related to the Body,"Contains subthemes addressing physical side effects: changes in eating/bowel habits (difficulty eating, loss of appetite, diarrhea); dry and sensitive skin (itching, tingling); fever (exhaustion with freezing and warmth); and feelings of abnormal body sensation including numbness and discomfort during chemotherapy administration."
"Wampaalu PB, Eriksson LE, Naamala A, Nabirye RC, Wettergren L (2016) Experiences of patients undergoing chemotherapy - a qualitative study of adults attending Uganda Cancer Institute. African Health Sciences 16(3): 744-749.",10.4314/ahs.v16i3.14,https://pmc.ncbi.nlm.nih.gov/articles/PMC5111977/,Cancer patients' experiences of chemotherapy in Uganda,Thoughts and Feelings,"Encompasses subthemes reflecting psychological impacts: worry and fright regarding diagnosis; loss of previous lifestyle (abandoning alcohol, smoking, strenuous activities); patience and acceptance; and happiness receiving treatment despite difficulties."
"Wampaalu PB, Eriksson LE, Naamala A, Nabirye RC, Wettergren L (2016) Experiences of patients undergoing chemotherapy - a qualitative study of adults attending Uganda Cancer Institute. African Health Sciences 16(3): 744-749.",10.4314/ahs.v16i3.14,https://pmc.ncbi.nlm.nih.gov/articles/PMC5111977/,Cancer patients' experiences of chemotherapy in Uganda,Actively Dealing with Discomfort,"Includes subthemes describing coping mechanisms: balanced diet implementation, supplementary drug use, and physical exercise/rest for symptom management and mood improvement."
"Nies YH, Ali AM, Abdullah N, Islahudin F, Shah NM (2018) A qualitative study among breast cancer patients on chemotherapy: experiences and side-effects. Patient Preference and Adherence 12: 1955-1964.",10.2147/PPA.S168638,https://pmc.ncbi.nlm.nih.gov/articles/PMC6167974/,Breast cancer patients' chemotherapy experiences in Malaysia,Know Nothing of Chemotherapy,"Patients reported limited understanding of how chemotherapy works and lacked prior knowledge about the treatment process."
"Nies YH, Ali AM, Abdullah N, Islahudin F, Shah NM (2018) A qualitative study among breast cancer patients on chemotherapy: experiences and side-effects. Patient Preference and Adherence 12: 1955-1964.",10.2147/PPA.S168638,https://pmc.ncbi.nlm.nih.gov/articles/PMC6167974/,Breast cancer patients' chemotherapy experiences in Malaysia,Fear of Chemotherapy,"Participants expressed anxiety about side-effects and had heard accounts suggesting chemotherapy could be harmful or fatal."
"Nies YH, Ali AM, Abdullah N, Islahudin F, Shah NM (2018) A qualitative study among breast cancer patients on chemotherapy: experiences and side-effects. Patient Preference and Adherence 12: 1955-1964.",10.2147/PPA.S168638,https://pmc.ncbi.nlm.nih.gov/articles/PMC6167974/,Breast cancer patients' chemotherapy experiences in Malaysia,Patients' Beliefs in Alternative Treatments,"Many used complementary medicines alongside chemotherapy, believing these helped reduce side-effects and potentially shrink tumors."
"Nies YH, Ali AM, Abdullah N, Islahudin F, Shah NM (2018) A qualitative study among breast cancer patients on chemotherapy: experiences and side-effects. Patient Preference and Adherence 12: 1955-1964.",10.2147/PPA.S168638,https://pmc.ncbi.nlm.nih.gov/articles/PMC6167974/,Breast cancer patients' chemotherapy experiences in Malaysia,Symptom Management,"Patients employed coping strategies including passive tolerance, forced eating despite tastelessness, maintaining household activities, and positive thinking to manage distressing effects."
"Nies YH, Ali AM, Abdullah N, Islahudin F, Shah NM (2018) A qualitative study among breast cancer patients on chemotherapy: experiences and side-effects. Patient Preference and Adherence 12: 1955-1964.",10.2147/PPA.S168638,https://pmc.ncbi.nlm.nih.gov/articles/PMC6167974/,Breast cancer patients' chemotherapy experiences in Malaysia,Staying Healthy After Chemotherapy,"Respondents deliberately avoided crowds and social contact to prevent infections due to weakened immunity post-treatment."
"Nies YH, Ali AM, Abdullah N, Islahudin F, Shah NM (2018) A qualitative study among breast cancer patients on chemotherapy: experiences and side-effects. Patient Preference and Adherence 12: 1955-1964.",10.2147/PPA.S168638,https://pmc.ncbi.nlm.nih.gov/articles/PMC6167974/,Breast cancer patients' chemotherapy experiences in Malaysia,Concerns of Patients After Chemotherapy,"Participants expressed significant worry about cancer recurrence, recognizing this as a common risk despite completing treatment."
"Goldsmith LJ, Suryaprakash N, Randall E, et al. (2017) The importance of informational, clinical and personal support in patient experience with total knee replacement: a qualitative investigation. BMC Musculoskeletal Disorders 18: 127.",10.1186/s12891-017-1474-8,https://pmc.ncbi.nlm.nih.gov/articles/PMC5366158/,Patient experiences of support following knee replacement,Informational Support,"The provision of knowledge about TKA preparation and recovery through formal clinical sources (pre-surgical education sessions, surgeons, physiotherapists) and informal sources (friends, family, other patients). Key topics included pain expectations, pain management strategies, and recovery trajectories."
"Goldsmith LJ, Suryaprakash N, Randall E, et al. (2017) The importance of informational, clinical and personal support in patient experience with total knee replacement: a qualitative investigation. BMC Musculoskeletal Disorders 18: 127.",10.1186/s12891-017-1474-8,https://pmc.ncbi.nlm.nih.gov/articles/PMC5366158/,Patient experiences of support following knee replacement,Clinical Support,"The direct medical care and assistance provided by healthcare providers to facilitate recovery. Key sources included surgeons, physiotherapists, and family doctors. Good physiotherapists demonstrated effective communication and personalized care, while many surgeons provided limited post-operative support."
"Goldsmith LJ, Suryaprakash N, Randall E, et al. (2017) The importance of informational, clinical and personal support in patient experience with total knee replacement: a qualitative investigation. BMC Musculoskeletal Disorders 18: 127.",10.1186/s12891-017-1474-8,https://pmc.ncbi.nlm.nih.gov/articles/PMC5366158/,Patient experiences of support following knee replacement,Personal Support,"Emotional and physical assistance from family, friends, other TKA patients, employers, and self-directed preparation efforts. This encompassed help with daily living activities, transportation, emotional encouragement, workplace accommodations, and individual responsibility for home preparation and exercise compliance."
"van Dongen L, Hafsteinsdottir TB, Parker E, et al. (2021) Stroke survivors' experiences with rebuilding life in the community and exercising at home: A qualitative study. Nursing Open 8(5): 2567-2577.",10.1002/nop2.788,https://pmc.ncbi.nlm.nih.gov/articles/PMC8363348/,Stroke survivors' experiences rebuilding life and home exercise,Framing exercise within the context of everyday life,"Describes how stroke survivors incorporate exercise into daily routines with variable success and emphasizes the social significance of physical activity participation."
"van Dongen L, Hafsteinsdottir TB, Parker E, et al. (2021) Stroke survivors' experiences with rebuilding life in the community and exercising at home: A qualitative study. Nursing Open 8(5): 2567-2577.",10.1002/nop2.788,https://pmc.ncbi.nlm.nih.gov/articles/PMC8363348/,Stroke survivors' experiences rebuilding life and home exercise,Managing the challenges of physical impairment,"Addresses the demanding nature of daily living tasks, concentration difficulties, and profound shifts in personal identity following stroke."
"van Dongen L, Hafsteinsdottir TB, Parker E, et al. (2021) Stroke survivors' experiences with rebuilding life in the community and exercising at home: A qualitative study. Nursing Open 8(5): 2567-2577.",10.1002/nop2.788,https://pmc.ncbi.nlm.nih.gov/articles/PMC8363348/,Stroke survivors' experiences rebuilding life and home exercise,Long-term challenges of everyday life,"Captures how survivors navigate ongoing depression, maintain resilience amid bodily uncertainty, and recalibrate life priorities."
"Radez J, Reardon T, Creswell C, Orchard F, Waite P (2021) Adolescents' perceived barriers and facilitators to seeking and accessing professional help for anxiety and depressive disorders: a qualitative interview study. European Child and Adolescent Psychiatry 31(6): 891-907.",10.1007/s00787-020-01707-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC9209355/,Adolescent barriers to mental health help-seeking,Making Sense of Difficulties,"Recognising anxiety/depression symptoms and knowing where to get help; beliefs about mental health and help-seeking; taking opportunities to learn about mental health; differentiating between anxiety/depression symptoms and personality traits. Participants reflected that they just thought they were their kind of normal."
"Radez J, Reardon T, Creswell C, Orchard F, Waite P (2021) Adolescents' perceived barriers and facilitators to seeking and accessing professional help for anxiety and depressive disorders: a qualitative interview study. European Child and Adolescent Psychiatry 31(6): 891-907.",10.1007/s00787-020-01707-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC9209355/,Adolescent barriers to mental health help-seeking,Disclosing Problems,"Worrying what others will think; ability to verbalise feelings; asking for help; ability to trust other people; anxiety/depressive symptoms interfering with help-seeking; concerns about impact on others. Participants described being scared of telling people how they feel."
"Radez J, Reardon T, Creswell C, Orchard F, Waite P (2021) Adolescents' perceived barriers and facilitators to seeking and accessing professional help for anxiety and depressive disorders: a qualitative interview study. European Child and Adolescent Psychiatry 31(6): 891-907.",10.1007/s00787-020-01707-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC9209355/,Adolescent barriers to mental health help-seeking,Ambivalence to Seeking Professional Help,"Desire to be self-reliant; others' reactions; fears and expectations about professional help. Participants expressed that there is like a part of me that wants help and a part that does not."
"Radez J, Reardon T, Creswell C, Orchard F, Waite P (2021) Adolescents' perceived barriers and facilitators to seeking and accessing professional help for anxiety and depressive disorders: a qualitative interview study. European Child and Adolescent Psychiatry 31(6): 891-907.",10.1007/s00787-020-01707-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC9209355/,Adolescent barriers to mental health help-seeking,The Instrumental Role of Others,"Recognising need for professional help and initiating help-seeking; knowledge of services; family's resources and resilience; caregivers and schools working together; young person's engagement with help-seeking. Participants noted that if it would not be for X, I would still be suffering."
"Pozzar M, Volpato E, Valota C, et al. (2020) How people with chronic obstructive pulmonary disease perceive their illness: a qualitative study between mind and body. BMC Pulmonary Medicine 20: 120.",10.1186/s12890-020-1157-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC7199319/,COPD patients' illness perceptions and mind-body beliefs,Illness Experience,"Describes daily coexistence with limitation as both concrete obstacles in activities and mental fear of crises. Encompasses struggle with acceptance, adaptation processes with highs and lows, acute phases triggering panic, and varied coping strategies including locus of control variations."
"Pozzar M, Volpato E, Valota C, et al. (2020) How people with chronic obstructive pulmonary disease perceive their illness: a qualitative study between mind and body. BMC Pulmonary Medicine 20: 120.",10.1186/s12890-020-1157-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC7199319/,COPD patients' illness perceptions and mind-body beliefs,Body-Mind Relationship,"Participants describe three perspectives: physical status determines emotions (when that breathing problem arrives I become 100% anxious); mental condition influences body; or a circular interconnection where the more you lack on one side the more you are affected on the other."
"Pozzar M, Volpato E, Valota C, et al. (2020) How people with chronic obstructive pulmonary disease perceive their illness: a qualitative study between mind and body. BMC Pulmonary Medicine 20: 120.",10.1186/s12890-020-1157-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC7199319/,COPD patients' illness perceptions and mind-body beliefs,Expertise,"Gradual development of disease knowledge involving life/death existential themes and practical suggestions. Reflects recognition of patients as main expert of his/her disease."
"Pozzar M, Volpato E, Valota C, et al. (2020) How people with chronic obstructive pulmonary disease perceive their illness: a qualitative study between mind and body. BMC Pulmonary Medicine 20: 120.",10.1186/s12890-020-1157-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC7199319/,COPD patients' illness perceptions and mind-body beliefs,Future,"Encompasses negative expectations about bodily decline, worries about unknown changes, and hopes for positive aging and regaining a life worth living."
"Estecha Querol S, Clarke P, Sattler ELP, Halford JCG, Gabbay M (2020) Non-visible disease, the hidden disruptive experiences of chronic illness in adversity. International Journal of Qualitative Studies on Health and Well-being 15(1): 1857579.",10.1080/17482631.2020.1857579,https://pmc.ncbi.nlm.nih.gov/articles/PMC7733900/,Chronic illness experience in economically deprived populations,Chronic illness as a disruptive experience,"Findings describe biographically disruptive experiences of chronic illness. However, the nature and extent of disruption varied among participants."
"Estecha Querol S, Clarke P, Sattler ELP, Halford JCG, Gabbay M (2020) Non-visible disease, the hidden disruptive experiences of chronic illness in adversity. International Journal of Qualitative Studies on Health and Well-being 15(1): 1857579.",10.1080/17482631.2020.1857579,https://pmc.ncbi.nlm.nih.gov/articles/PMC7733900/,Chronic illness experience in economically deprived populations,Struggling for money,"Participants faced tough financial situations. No participants were working, all receiving disability, sickness, or welfare benefits."
"Estecha Querol S, Clarke P, Sattler ELP, Halford JCG, Gabbay M (2020) Non-visible disease, the hidden disruptive experiences of chronic illness in adversity. International Journal of Qualitative Studies on Health and Well-being 15(1): 1857579.",10.1080/17482631.2020.1857579,https://pmc.ncbi.nlm.nih.gov/articles/PMC7733900/,Chronic illness experience in economically deprived populations,Lifestyle and health risks,"Several participants talked of unhealthy habits and how these could harm their health; in particular, smoking, unhealthy eating and insufficient physical activity."
"Estecha Querol S, Clarke P, Sattler ELP, Halford JCG, Gabbay M (2020) Non-visible disease, the hidden disruptive experiences of chronic illness in adversity. International Journal of Qualitative Studies on Health and Well-being 15(1): 1857579.",10.1080/17482631.2020.1857579,https://pmc.ncbi.nlm.nih.gov/articles/PMC7733900/,Chronic illness experience in economically deprived populations,Reflections on current inequalities,"Participants expressed both dissatisfaction and contentment with the health and care systems. These reflections about wider socioeconomic contexts shaped and influenced their experiences."
"Murray R, Turner L (2021) Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). Chronic Illness 19(1): 56-64.",10.1177/17423953211064989,https://pmc.ncbi.nlm.nih.gov/articles/PMC9841457/,Identity disruption in CFS/ME through Communities of Practice theory,Loss of communities and identities,"All the practices and communities, which made participants who they were, prior to the onset of CFS/ME were now historical. Participants were no longer able to be as they were no longer able to do."
"Murray R, Turner L (2021) Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). Chronic Illness 19(1): 56-64.",10.1177/17423953211064989,https://pmc.ncbi.nlm.nih.gov/articles/PMC9841457/,Identity disruption in CFS/ME through Communities of Practice theory,Interrupted futures,"When trajectories are interrupted as in the case of CFS/ME, futures become uncertain. Not only are identities jeopardised in the present but they are also sabotaged within future expectations of self."
"Murray R, Turner L (2021) Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). Chronic Illness 19(1): 56-64.",10.1177/17423953211064989,https://pmc.ncbi.nlm.nih.gov/articles/PMC9841457/,Identity disruption in CFS/ME through Communities of Practice theory,Living with disbelief,"The illegitimate and psychosomatic nature of the illness appear to be reified in medical communities, meaning participants were not privileged with a sick identity which compromised their potential to be alongside CFS/ME."
"Murray R, Turner L (2021) Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). Chronic Illness 19(1): 56-64.",10.1177/17423953211064989,https://pmc.ncbi.nlm.nih.gov/articles/PMC9841457/,Identity disruption in CFS/ME through Communities of Practice theory,Finding community,"Engagement in online groups has moved participants from the periphery to full participation, accepting and adapting to their CFS/ME identity."
"Woodward A, Nimmons D, Davies N, Walters K, Stevenson FA, Protheroe J, Chew-Graham CA, Armstrong M (2024) A qualitative exploration of the barriers and facilitators to self-managing multiple long-term conditions amongst people experiencing socioeconomic deprivation. Health Expectations 27(2): e14046.",10.1111/hex.14046,https://pmc.ncbi.nlm.nih.gov/articles/PMC11019445/,Self-management barriers in multiple long-term conditions with deprivation,Challenges in accessing services,"Subthemes include healthcare services, navigating financial assistance, and lack of cultural awareness in health services."
"Woodward A, Nimmons D, Davies N, Walters K, Stevenson FA, Protheroe J, Chew-Graham CA, Armstrong M (2024) A qualitative exploration of the barriers and facilitators to self-managing multiple long-term conditions amongst people experiencing socioeconomic deprivation. Health Expectations 27(2): e14046.",10.1111/hex.14046,https://pmc.ncbi.nlm.nih.gov/articles/PMC11019445/,Self-management barriers in multiple long-term conditions with deprivation,Empowerment and disempowerment through technology,"Subthemes include digital exclusion and technology to self-manage and self-educate."
"Woodward A, Nimmons D, Davies N, Walters K, Stevenson FA, Protheroe J, Chew-Graham CA, Armstrong M (2024) A qualitative exploration of the barriers and facilitators to self-managing multiple long-term conditions amongst people experiencing socioeconomic deprivation. Health Expectations 27(2): e14046.",10.1111/hex.14046,https://pmc.ncbi.nlm.nih.gov/articles/PMC11019445/,Self-management barriers in multiple long-term conditions with deprivation,Impact and causes of exclusion to self-management,"Subthemes include social isolation and low social capital, area-based exclusion, economic exclusion, and health-related stigma."
"Woodward A, Nimmons D, Davies N, Walters K, Stevenson FA, Protheroe J, Chew-Graham CA, Armstrong M (2024) A qualitative exploration of the barriers and facilitators to self-managing multiple long-term conditions amongst people experiencing socioeconomic deprivation. Health Expectations 27(2): e14046.",10.1111/hex.14046,https://pmc.ncbi.nlm.nih.gov/articles/PMC11019445/,Self-management barriers in multiple long-term conditions with deprivation,Adapting self-management strategies,"Subthemes include cost-free and low-cost activities and culturally and lifestyle appropriate strategies."
"Moore-Bouchard C, Martel M-E, Develay E, Cote J, Durand M, Page MG (2024) Prioritizing chronic pain self-management amid coexisting chronic illnesses: An exploratory qualitative study. International Journal of Nursing Studies Advances 6: 100175.",10.1016/j.ijnsa.2024.100175,https://pmc.ncbi.nlm.nih.gov/articles/PMC11080447/,Chronic pain prioritization among coexisting illnesses,Focus on illness prioritization: from clarity to automatic process,"Different prioritization processes including prioritizing a dominant illness, prioritizing multiple illnesses to avoid undesirable consequences, and absence of or automatic processes of prioritization."
"Moore-Bouchard C, Martel M-E, Develay E, Cote J, Durand M, Page MG (2024) Prioritizing chronic pain self-management amid coexisting chronic illnesses: An exploratory qualitative study. International Journal of Nursing Studies Advances 6: 100175.",10.1016/j.ijnsa.2024.100175,https://pmc.ncbi.nlm.nih.gov/articles/PMC11080447/,Chronic pain prioritization among coexisting illnesses,Key elements of prioritization,"Characteristics of chronic pain that made it a self-management priority: uncontrollable and disabling nature, omnipresence, unpredictability, unpleasantness, and invisibility to others."
"Moore-Bouchard C, Martel M-E, Develay E, Cote J, Durand M, Page MG (2024) Prioritizing chronic pain self-management amid coexisting chronic illnesses: An exploratory qualitative study. International Journal of Nursing Studies Advances 6: 100175.",10.1016/j.ijnsa.2024.100175,https://pmc.ncbi.nlm.nih.gov/articles/PMC11080447/,Chronic pain prioritization among coexisting illnesses,Psychosocial influences on engagement in and prioritization of self-management,"Psychosocial factors influenced levels of engagement in self-management and prioritization processes, including social support and the patient-physician relationship."
"Ashtari S, Taylor AD (2022) The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups. Journal of Medical Internet Research 24(8): e39172.",10.2196/39172,https://pmc.ncbi.nlm.nih.gov/articles/PMC9459833/,Ehlers-Danlos patients and online support groups,Patients with EDS disorders are constantly in pain,"Patients with EDS are constantly in pain. They expressed their pain frequency as every day and all the time."
"Ashtari S, Taylor AD (2022) The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups. Journal of Medical Internet Research 24(8): e39172.",10.2196/39172,https://pmc.ncbi.nlm.nih.gov/articles/PMC9459833/,Ehlers-Danlos patients and online support groups,Challenges with health care providers regarding diagnosis and treatment,"Participants shared their difficulties in receiving timely and precise diagnosis from their health care providers."
"Ashtari S, Taylor AD (2022) The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups. Journal of Medical Internet Research 24(8): e39172.",10.2196/39172,https://pmc.ncbi.nlm.nih.gov/articles/PMC9459833/,Ehlers-Danlos patients and online support groups,Lack of health care provider support,"One of the main complaints from participants was the lack of support from their health care providers."
"Ashtari S, Taylor AD (2022) The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups. Journal of Medical Internet Research 24(8): e39172.",10.2196/39172,https://pmc.ncbi.nlm.nih.gov/articles/PMC9459833/,Ehlers-Danlos patients and online support groups,Searching for different sources of information,"Participants reported searching different sources for disease information and pain mitigation techniques. Approximately all participants (97%) were actively searching the internet."
"Ashtari S, Taylor AD (2022) The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups. Journal of Medical Internet Research 24(8): e39172.",10.2196/39172,https://pmc.ncbi.nlm.nih.gov/articles/PMC9459833/,Ehlers-Danlos patients and online support groups,Collection of different pain management techniques,"Participants discussed the nonmedical pain management techniques that they learned through online support groups, web searches, and reading other patients' experiences."
"Ashtari S, Taylor AD (2022) The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups. Journal of Medical Internet Research 24(8): e39172.",10.2196/39172,https://pmc.ncbi.nlm.nih.gov/articles/PMC9459833/,Ehlers-Danlos patients and online support groups,"Finding disease treatments, lifestyle solutions, and shared experiences in online peer support groups","Most interviewees (80%) were participating in online peer support groups to find pain management solutions, physician and product referrals, natural remedies, or tips and tricks."
"Ashtari S, Taylor AD (2022) The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups. Journal of Medical Internet Research 24(8): e39172.",10.2196/39172,https://pmc.ncbi.nlm.nih.gov/articles/PMC9459833/,Ehlers-Danlos patients and online support groups,Changes in health management as a result of participating in online support groups,"Approximately all participants (97%) reported that their health care management changed as a result of participating in online peer support groups."
"Smit D, Vrijsen JN, Groeneweg B, Vellinga-Dings A, Peelen J, Spijker J (2021) A newly developed online peer support community for depression (Depression Connect): Qualitative study. Journal of Medical Internet Research 23(7): e25917.",10.2196/25917,https://pmc.ncbi.nlm.nih.gov/articles/PMC8314160/,Online peer support community for depression,Sense of Belonging,"Recognition, emotional support, and more intrinsic understanding from peers corresponded to their reasons to subscribe, such as loneliness or a lack of support in coping with depression."
"Smit D, Vrijsen JN, Groeneweg B, Vellinga-Dings A, Peelen J, Spijker J (2021) A newly developed online peer support community for depression (Depression Connect): Qualitative study. Journal of Medical Internet Research 23(7): e25917.",10.2196/25917,https://pmc.ncbi.nlm.nih.gov/articles/PMC8314160/,Online peer support community for depression,Emotional Growth,"Depression Connect functioned as a tool for emotional growth: most participants saw Depression Connect use as an incentive to develop and reflect upon personal coping skills."
"Smit D, Vrijsen JN, Groeneweg B, Vellinga-Dings A, Peelen J, Spijker J (2021) A newly developed online peer support community for depression (Depression Connect): Qualitative study. Journal of Medical Internet Research 23(7): e25917.",10.2196/25917,https://pmc.ncbi.nlm.nih.gov/articles/PMC8314160/,Online peer support community for depression,Self-Efficacy,"Most participants derived a greater sense of self-efficacy in coping with depression from the online community. Being informed or reminded about other coping mechanisms seemed to contribute to their sense of autonomy."
"Smit D, Vrijsen JN, Groeneweg B, Vellinga-Dings A, Peelen J, Spijker J (2021) A newly developed online peer support community for depression (Depression Connect): Qualitative study. Journal of Medical Internet Research 23(7): e25917.",10.2196/25917,https://pmc.ncbi.nlm.nih.gov/articles/PMC8314160/,Online peer support community for depression,Empowerment,"Participating in the online community empowered most participants to come to terms with and manage their depression. Being of value to others living with depression and supporting peers through sharing their own experiences provided them with a great sense of fulfillment."
"Smit D, Vrijsen JN, Groeneweg B, Vellinga-Dings A, Peelen J, Spijker J (2021) A newly developed online peer support community for depression (Depression Connect): Qualitative study. Journal of Medical Internet Research 23(7): e25917.",10.2196/25917,https://pmc.ncbi.nlm.nih.gov/articles/PMC8314160/,Online peer support community for depression,Getting too caught up,"Users could become overwhelmed by the sheer volume of information appearing on the online community, the pressure of having to be continuously available and the stress caused by the concerns they had about the worries of their peers."
"Melton K, Telenko B, Miles P, Dave S, Reed S, Kelekian R, Walsh C, O'Donnell S, Walsh KE (2025) Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study. Health Care Transitions 3: 100114.",10.1016/j.hctj.2025.100114,https://pmc.ncbi.nlm.nih.gov/articles/PMC12329556/,Young adults with chronic conditions peer support needs,Peer support is not one size fits all,"Peer support is experienced differently by different people and needs to be tailored to an individual's needs to be most effective."
"Melton K, Telenko B, Miles P, Dave S, Reed S, Kelekian R, Walsh C, O'Donnell S, Walsh KE (2025) Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study. Health Care Transitions 3: 100114.",10.1016/j.hctj.2025.100114,https://pmc.ncbi.nlm.nih.gov/articles/PMC12329556/,Young adults with chronic conditions peer support needs,Grieving your life as you're living it,"Chronic illness in young adulthood can feel like the loss of the chance at a normal life resulting in feelings of grief, isolation, and physical and psychological burden."
"Melton K, Telenko B, Miles P, Dave S, Reed S, Kelekian R, Walsh C, O'Donnell S, Walsh KE (2025) Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study. Health Care Transitions 3: 100114.",10.1016/j.hctj.2025.100114,https://pmc.ncbi.nlm.nih.gov/articles/PMC12329556/,Young adults with chronic conditions peer support needs,The intersectional experience of being young and chronically ill,"The intersectional experience of being young and chronically ill is often poorly understood by those without that lived experience."
"Thomas JA, Lipps G (2025) A qualitative exploration of the experience of individual-level stigma among adolescents with a chronic illness. PLOS ONE 20(12): e0317633.",10.1371/journal.pone.0317633,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0317633,Stigma experiences among adolescents with chronic illness,Perceived stigma: Fear/Expectation of negative treatment,"Participants' accounts across conditions were centred on various negative reactions or treatments they feared receiving if others found out or knew about their conditions."
"Thomas JA, Lipps G (2025) A qualitative exploration of the experience of individual-level stigma among adolescents with a chronic illness. PLOS ONE 20(12): e0317633.",10.1371/journal.pone.0317633,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0317633,Stigma experiences among adolescents with chronic illness,Perceived stigma: Awareness of negative stereotypes,"Participants articulated only a few negative stereotypes regarding people with their specific condition. Awareness stemmed from personal experiences or observations of societal responses."
"Thomas JA, Lipps G (2025) A qualitative exploration of the experience of individual-level stigma among adolescents with a chronic illness. PLOS ONE 20(12): e0317633.",10.1371/journal.pone.0317633,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0317633,Stigma experiences among adolescents with chronic illness,Internalized stigma: Negative behaviours,"Adolescents kept conditions secret through non-disclosure, withholding information, lying about causes, and hiding medication."
"Thomas JA, Lipps G (2025) A qualitative exploration of the experience of individual-level stigma among adolescents with a chronic illness. PLOS ONE 20(12): e0317633.",10.1371/journal.pone.0317633,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0317633,Stigma experiences among adolescents with chronic illness,Internalized stigma: Negative feelings,"Common negative emotional responses included feeling different from their peers and others, and not as normal."
"Thomas JA, Lipps G (2025) A qualitative exploration of the experience of individual-level stigma among adolescents with a chronic illness. PLOS ONE 20(12): e0317633.",10.1371/journal.pone.0317633,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0317633,Stigma experiences among adolescents with chronic illness,Enacted stigma: Types and sources of negative treatment,"Enacted stigma manifested as overt and subtle negative interpersonal treatments influenced by adolescents' interpretations."
"Thomas JA, Lipps G (2025) A qualitative exploration of the experience of individual-level stigma among adolescents with a chronic illness. PLOS ONE 20(12): e0317633.",10.1371/journal.pone.0317633,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0317633,Stigma experiences among adolescents with chronic illness,Rejected stigma,"Adolescents actively resisted and rejected stigmatizing attitudes and behaviours from others."
"Prizeman K, McCabe C, Weinstein N (2024) Stigma and its impact on disclosure and mental health secrecy in young people with clinical depression symptoms: A qualitative analysis. PLOS ONE 19(1): e0296221.",10.1371/journal.pone.0296221,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0296221,Depression stigma and disclosure in young people,Depression secrecy: Positive and negative aspects,"Explores young people's decision to keep their depression a secret as a result of previous stigma experiences."
"Prizeman K, McCabe C, Weinstein N (2024) Stigma and its impact on disclosure and mental health secrecy in young people with clinical depression symptoms: A qualitative analysis. PLOS ONE 19(1): e0296221.",10.1371/journal.pone.0296221,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0296221,Depression stigma and disclosure in young people,Depression disclosure: Positive and negative aspects,"Explores young people's decisions, reasons, benefits, and consequences of disclosing one's depression as a result of previous stigma experiences."
"Prizeman K, McCabe C, Weinstein N (2024) Stigma and its impact on disclosure and mental health secrecy in young people with clinical depression symptoms: A qualitative analysis. PLOS ONE 19(1): e0296221.",10.1371/journal.pone.0296221,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0296221,Depression stigma and disclosure in young people,The solution is selective disclosure,"Provides understanding of young people's stigmatizing subjective views and their awareness of how much to disclose to others."
"Prizeman K, McCabe C, Weinstein N (2024) Stigma and its impact on disclosure and mental health secrecy in young people with clinical depression symptoms: A qualitative analysis. PLOS ONE 19(1): e0296221.",10.1371/journal.pone.0296221,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0296221,Depression stigma and disclosure in young people,Participants' recommendations do not align with personal preferences,"Mismatch between advice given to others about disclosure and participants' own personal preferences and behaviours."
"Lewis S, Willis K, Smallwood N (2025) The collective experience of moral distress: a qualitative analysis of perspectives of frontline health workers during COVID-19. Philosophy, Ethics, and Humanities in Medicine 20: 1.",10.1186/s13010-024-00162-y,https://pmc.ncbi.nlm.nih.gov/articles/PMC11715628/,Healthcare workers' moral distress during COVID-19,The challenges of caring well during rapid change,"Healthcare workers described the moral ambiguities as they tried to care well for patients while also adhering to a rapidly changing work environment, with new risks and risk minimisation protocols."
"Lewis S, Willis K, Smallwood N (2025) The collective experience of moral distress: a qualitative analysis of perspectives of frontline health workers during COVID-19. Philosophy, Ethics, and Humanities in Medicine 20: 1.",10.1186/s13010-024-00162-y,https://pmc.ncbi.nlm.nih.gov/articles/PMC11715628/,Healthcare workers' moral distress during COVID-19,Witnessing suffering,"Moral distress emanated from being a bystander to the pain and suffering of others -- patients, family members, hospital visitors, and colleagues. This distress was not experienced by healthcare workers in isolation from each other but collectively experienced across a network of professional and patient relationships."
"Lewis S, Willis K, Smallwood N (2025) The collective experience of moral distress: a qualitative analysis of perspectives of frontline health workers during COVID-19. Philosophy, Ethics, and Humanities in Medicine 20: 1.",10.1186/s13010-024-00162-y,https://pmc.ncbi.nlm.nih.gov/articles/PMC11715628/,Healthcare workers' moral distress during COVID-19,Invisible and thankless work,"Participants reported distress related to the unrelenting invisible work that was demanded of them in trying to meet the care needs of their patients, but that in their view was often taken for granted or unacknowledged by their organisation, the media, and the wider community."
"Lamiani G, Montecalvo M, Battistini CL, Borghi L, Meyer EC, Vegni E (2025) Coping with moral distress: a qualitative study exploring psychological strategies used by healthcare professionals. BMC Psychology 13: 589.",10.1186/s40359-025-02926-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12131574/,Healthcare professionals' coping strategies for moral distress,Reframing the situation,"Reframing the morally distressing situation by acknowledging limits that are inherent in oneself/others, recognizing others' perspectives, trusting others, and focusing on values that could be upheld despite the constraints."
"Lamiani G, Montecalvo M, Battistini CL, Borghi L, Meyer EC, Vegni E (2025) Coping with moral distress: a qualitative study exploring psychological strategies used by healthcare professionals. BMC Psychology 13: 589.",10.1186/s40359-025-02926-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12131574/,Healthcare professionals' coping strategies for moral distress,Trying to modify the situation,"Trying to modify the morally distressing situation by speaking up, raising arguments, taking charge, or seeking help."
"Lamiani G, Montecalvo M, Battistini CL, Borghi L, Meyer EC, Vegni E (2025) Coping with moral distress: a qualitative study exploring psychological strategies used by healthcare professionals. BMC Psychology 13: 589.",10.1186/s40359-025-02926-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12131574/,Healthcare professionals' coping strategies for moral distress,Limiting own involvement,"Detaching emotionally from the morally distressing situation to safeguard well-being."
"Lamiani G, Montecalvo M, Battistini CL, Borghi L, Meyer EC, Vegni E (2025) Coping with moral distress: a qualitative study exploring psychological strategies used by healthcare professionals. BMC Psychology 13: 589.",10.1186/s40359-025-02926-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12131574/,Healthcare professionals' coping strategies for moral distress,Tolerating the situation,"Passively accepting the morally distressing situation."
"Lamiani G, Montecalvo M, Battistini CL, Borghi L, Meyer EC, Vegni E (2025) Coping with moral distress: a qualitative study exploring psychological strategies used by healthcare professionals. BMC Psychology 13: 589.",10.1186/s40359-025-02926-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12131574/,Healthcare professionals' coping strategies for moral distress,Meeting and sharing with colleagues,"Meeting and sharing with colleagues for support, exchange of opinions, deliberation, and validation."
"Lamiani G, Montecalvo M, Battistini CL, Borghi L, Meyer EC, Vegni E (2025) Coping with moral distress: a qualitative study exploring psychological strategies used by healthcare professionals. BMC Psychology 13: 589.",10.1186/s40359-025-02926-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12131574/,Healthcare professionals' coping strategies for moral distress,Rejecting and withdrawing from the situation,"Rejecting and actively withdrawing from situations compromising moral values and well-being."
"Lamiani G, Montecalvo M, Battistini CL, Borghi L, Meyer EC, Vegni E (2025) Coping with moral distress: a qualitative study exploring psychological strategies used by healthcare professionals. BMC Psychology 13: 589.",10.1186/s40359-025-02926-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12131574/,Healthcare professionals' coping strategies for moral distress,Searching for alternative actions,"Searching for alternative actions, given the existing constraints, to uphold moral values."
"Lamiani G, Montecalvo M, Battistini CL, Borghi L, Meyer EC, Vegni E (2025) Coping with moral distress: a qualitative study exploring psychological strategies used by healthcare professionals. BMC Psychology 13: 589.",10.1186/s40359-025-02926-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12131574/,Healthcare professionals' coping strategies for moral distress,Venting,"Venting emotions through communication, recreational or physical activities."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,Resource visibility and outreach,"Services are considered approachable when populations they aim to serve can identify and know how to reach them. Systemic efforts to make a service more visible to its intended user are related to transparency, outreach, and provision of information."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,Digital literacy,"Barriers related to lack of devices, limited computer literacy, and inadequate or nonexistent internet connectivity."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,Accommodations for patient needs and preferences,"Alignment between the services offered and the patients' expectations and preferences."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,Local service (in)availability and gaps,"Long waitlists, sometimes extending for months. Some of the resources were restricted to larger cities or specific age groups."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,Administrative or procedural issues,"Poor appointment mechanisms and completing long and complicated forms."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,Transportation vis-a-vis ability to reach,"Individual ability to reach services substantially influenced by their access to transportation."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,"Direct, indirect and opportunity cost","Direct costs (out-of-pocket expenses), indirect costs (like transportation expenses), and opportunity costs (including lost wages)."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,Motivation and confidence to address needs,"Mixed responses, with some expressing strong motivation while others demonstrated lower confidence and struggled."
"Saluja K, Mahbub A, Gauthier AP, Lemonde M, Timony P, Durand F, Dahrouge S (2025) Understanding patient barriers and enablers to accessing community resources: a qualitative study to inform navigation service delivery. BMC Primary Care 26: 322.",10.1186/s12875-025-03029-z,https://pmc.ncbi.nlm.nih.gov/articles/PMC12551251/,Patient barriers to accessing community resources,Physical and mental health,"Physical limitations imposed by impaired health conditions significantly hindered their ability to access resources."
"Surme Y, Gunday EA, Topan H (2025) Organ transplantation was a second chance given to me: a qualitative study of the experiences of solid organ transplantation patients. Revista da Associacao Medica Brasileira 71(3): e20241640.",10.1590/1806-9282.20241640,https://pmc.ncbi.nlm.nih.gov/articles/PMC12051959/,Post-transplant patient experiences and psychological challenges,Return to daily life after organ transplantation,"Some of the patients stated that they regained their old health and life after transplantation. Some of the patients stated that they changed their environment after transplantation."
"Surme Y, Gunday EA, Topan H (2025) Organ transplantation was a second chance given to me: a qualitative study of the experiences of solid organ transplantation patients. Revista da Associacao Medica Brasileira 71(3): e20241640.",10.1590/1806-9282.20241640,https://pmc.ncbi.nlm.nih.gov/articles/PMC12051959/,Post-transplant patient experiences and psychological challenges,Difficulties experienced after organ transplantation,"Some of the patients stated that they had some physical problems after transplantation, most of them experienced fear of rejection, and some of them stated that they experienced rejection. Most of the patients stated that they were worried about the health of their donor."
"Hazzan AA, Dauenhauer J, Follansbee P, Hazzan JO, Allen K, Omobepade I (2022) Family caregiver quality of life and the care provided to older people living with dementia: qualitative analyses of caregiver interviews. BMC Geriatrics 22: 86.",10.1186/s12877-022-02787-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC8802743/,Family caregiver QoL and dementia care provision,Needs of the person with dementia,"Each caregiver described a range of complex needs for their relative with dementia which seems to correspond to the progressive nature of the disease."
"Hazzan AA, Dauenhauer J, Follansbee P, Hazzan JO, Allen K, Omobepade I (2022) Family caregiver quality of life and the care provided to older people living with dementia: qualitative analyses of caregiver interviews. BMC Geriatrics 22: 86.",10.1186/s12877-022-02787-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC8802743/,Family caregiver QoL and dementia care provision,Caregivers' ability to cope with progressing needs of the care recipient,"Caregivers who participated in this study were at different points along the caregiving journey, depicting a story of how their lives had changed."
"Hazzan AA, Dauenhauer J, Follansbee P, Hazzan JO, Allen K, Omobepade I (2022) Family caregiver quality of life and the care provided to older people living with dementia: qualitative analyses of caregiver interviews. BMC Geriatrics 22: 86.",10.1186/s12877-022-02787-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC8802743/,Family caregiver QoL and dementia care provision,Availability and accessibility of support for the caregiver,"Caregivers' ability to cope with their relative's progressing needs was often described in conjunction with support, affecting their quality of life and care."
"Hazzan AA, Dauenhauer J, Follansbee P, Hazzan JO, Allen K, Omobepade I (2022) Family caregiver quality of life and the care provided to older people living with dementia: qualitative analyses of caregiver interviews. BMC Geriatrics 22: 86.",10.1186/s12877-022-02787-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC8802743/,Family caregiver QoL and dementia care provision,Unmet needs of the caregiver,"Most caregivers reported sacrificing their own needs. All reported some level of unmet need when describing the effects of caregiving."
"Hazzan AA, Dauenhauer J, Follansbee P, Hazzan JO, Allen K, Omobepade I (2022) Family caregiver quality of life and the care provided to older people living with dementia: qualitative analyses of caregiver interviews. BMC Geriatrics 22: 86.",10.1186/s12877-022-02787-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC8802743/,Family caregiver QoL and dementia care provision,Ability of the caregiver to meet their own progressing needs,"Caregivers describe where care recipients' needs progress beyond the caregiver's control, leading to recognition of limitations."
"Berenbaum F, Chauvin P, Hudry C, Mathoret-Philibert F, Poussiere M, De Chalus T, et al. (2014) Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study. PLOS ONE 9(12): e114350.",10.1371/journal.pone.0114350,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0114350,Patient beliefs and fears about RA and spondyloarthritis,Disease aetiology,"Three themes related to disease aetiology were identified: beliefs about the origin of the disease, beliefs about exacerbations, and apprehensions about disease progression."
"Berenbaum F, Chauvin P, Hudry C, Mathoret-Philibert F, Poussiere M, De Chalus T, et al. (2014) Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study. PLOS ONE 9(12): e114350.",10.1371/journal.pone.0114350,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0114350,Patient beliefs and fears about RA and spondyloarthritis,Exacerbations,"The triggering factors tended to be the same as those believed to have caused the disease, namely psychological factors such as stress and overwork."
"Berenbaum F, Chauvin P, Hudry C, Mathoret-Philibert F, Poussiere M, De Chalus T, et al. (2014) Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study. PLOS ONE 9(12): e114350.",10.1371/journal.pone.0114350,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0114350,Patient beliefs and fears about RA and spondyloarthritis,Course of the disease,"Beliefs and expectations about the course of the disease varied according to the stage of the disease and familiarity with other people with the disease."
"Berenbaum F, Chauvin P, Hudry C, Mathoret-Philibert F, Poussiere M, De Chalus T, et al. (2014) Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study. PLOS ONE 9(12): e114350.",10.1371/journal.pone.0114350,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0114350,Patient beliefs and fears about RA and spondyloarthritis,Impact of disease,"Patients reported both current repercussions of their disease as well as fears about the impact that the disease would have on their future lives."
"Berenbaum F, Chauvin P, Hudry C, Mathoret-Philibert F, Poussiere M, De Chalus T, et al. (2014) Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study. PLOS ONE 9(12): e114350.",10.1371/journal.pone.0114350,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0114350,Patient beliefs and fears about RA and spondyloarthritis,Beliefs and attitudes about treatment,"Initially, patients thought that a treatment would stop them being in pain and even return them to the state of health that they had enjoyed before falling ill."
"Webster F, Connoy L, Longo R, Ahuja D, Amtmann D, Anderson A, et al. (2022) Patient responses to the term pain catastrophizing: Thematic analysis of cross-sectional international data. The Journal of Pain 24(2): 356-367.",10.1016/j.jpain.2022.10.001,https://pmc.ncbi.nlm.nih.gov/articles/PMC9898136/,Chronic pain patient responses to pain catastrophizing terminology,What does the term pain catastrophizing mean to patients?,"After the definition of pain catastrophizing was displayed, respondents were asked what first comes to mind when they hear the term pain catastrophizing."
"Webster F, Connoy L, Longo R, Ahuja D, Amtmann D, Anderson A, et al. (2022) Patient responses to the term pain catastrophizing: Thematic analysis of cross-sectional international data. The Journal of Pain 24(2): 356-367.",10.1016/j.jpain.2022.10.001,https://pmc.ncbi.nlm.nih.gov/articles/PMC9898136/,Chronic pain patient responses to pain catastrophizing terminology,Consequences of the term on patient experiences,"Patients who reported that they were labelled as pain catastrophizers often viewed the term through the lens of how it affected their care."
"Webster F, Connoy L, Longo R, Ahuja D, Amtmann D, Anderson A, et al. (2022) Patient responses to the term pain catastrophizing: Thematic analysis of cross-sectional international data. The Journal of Pain 24(2): 356-367.",10.1016/j.jpain.2022.10.001,https://pmc.ncbi.nlm.nih.gov/articles/PMC9898136/,Chronic pain patient responses to pain catastrophizing terminology,Association of the term with negative gender stereotypes,"Respondents made reference to gender, female, women 169 times in their coded responses, suggesting awareness of the association of negative stereotypes in relation to gender."
"Webster F, Connoy L, Longo R, Ahuja D, Amtmann D, Anderson A, et al. (2022) Patient responses to the term pain catastrophizing: Thematic analysis of cross-sectional international data. The Journal of Pain 24(2): 356-367.",10.1016/j.jpain.2022.10.001,https://pmc.ncbi.nlm.nih.gov/articles/PMC9898136/,Chronic pain patient responses to pain catastrophizing terminology,Opposition to the concept of pain catastrophizing,154 respondents questioned the reason for the current term in their responses articulating their belief that it is demeaning to those living with chronic pain.
"Holmlund L, Tinnerholm Ljungberg H, Bultmann U, Bjork Bramberg E (2024) Navigating work and life -- a qualitative exploration of managers' and employees' views of return-to-work after sick leave due to common mental disorders. BMC Public Health 24: 372.",10.1186/s12889-024-17765-x,https://pmc.ncbi.nlm.nih.gov/articles/PMC10840186/,Return-to-work after sick leave for mental disorders,Getting along: managing personal difficulties in everyday life,"On a personal level, employees and managers drew attention to the employees' persistent difficulties and symptoms of CMDs as barriers to RTW."
"Holmlund L, Tinnerholm Ljungberg H, Bultmann U, Bjork Bramberg E (2024) Navigating work and life -- a qualitative exploration of managers' and employees' views of return-to-work after sick leave due to common mental disorders. BMC Public Health 24: 372.",10.1186/s12889-024-17765-x,https://pmc.ncbi.nlm.nih.gov/articles/PMC10840186/,Return-to-work after sick leave for mental disorders,Belonging: experiencing social connectedness and support in work and private life,"On a social level, the employees' social support in private and work life are illustrated as facilitators of and barriers to RTW."
"Holmlund L, Tinnerholm Ljungberg H, Bultmann U, Bjork Bramberg E (2024) Navigating work and life -- a qualitative exploration of managers' and employees' views of return-to-work after sick leave due to common mental disorders. BMC Public Health 24: 372.",10.1186/s12889-024-17765-x,https://pmc.ncbi.nlm.nih.gov/articles/PMC10840186/,Return-to-work after sick leave for mental disorders,Organisational support: fostering a supportive work environment,"On an organisational level, leadership, culture, and infrastructure were framed as facilitators of and barriers to RTW."
"Bedard-Thomas J, Gausvik C, Wessels J, Regan S, Goodnow K, Goroncy A (2019) I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective. Journal of Patient-Centered Research and Reviews 6(4): 262-266.",10.17294/2330-0698.1715,https://pmc.ncbi.nlm.nih.gov/articles/PMC6827843/,Homebound patients' perspectives on social isolation and loneliness,Homebound Older Adults Experience Ongoing Social Isolation,"Respondents described being unable to leave their home and how isolated they felt."
"Bedard-Thomas J, Gausvik C, Wessels J, Regan S, Goodnow K, Goroncy A (2019) I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective. Journal of Patient-Centered Research and Reviews 6(4): 262-266.",10.17294/2330-0698.1715,https://pmc.ncbi.nlm.nih.gov/articles/PMC6827843/,Homebound patients' perspectives on social isolation and loneliness,Barriers to Social Engagement,"Respondents discussed multiple barriers to social engagement, including disabilities, chronic medical problems, and mobility limitations."
"Bedard-Thomas J, Gausvik C, Wessels J, Regan S, Goodnow K, Goroncy A (2019) I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective. Journal of Patient-Centered Research and Reviews 6(4): 262-266.",10.17294/2330-0698.1715,https://pmc.ncbi.nlm.nih.gov/articles/PMC6827843/,Homebound patients' perspectives on social isolation and loneliness,Socially Isolated Homebound Adults Do Not Necessarily Feel Lonely,"Respondents were asked to define loneliness and whether or not they feel lonely. About 71% of respondents said they did not feel lonely."
"Bedard-Thomas J, Gausvik C, Wessels J, Regan S, Goodnow K, Goroncy A (2019) I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective. Journal of Patient-Centered Research and Reviews 6(4): 262-266.",10.17294/2330-0698.1715,https://pmc.ncbi.nlm.nih.gov/articles/PMC6827843/,Homebound patients' perspectives on social isolation and loneliness,Phone Calls for Homebound Patients Are Important Part of Social Support,"Those who had family and friends described phone calls as the major social support in their daily lives rather than visits in person."
"Richards K, Mantri S, Brown CM, Johnsrud M, Arcona S, Sasane R (2024) A Qualitative Study on Perspectives of Parkinson's Disease Medications: Insights from Patient Focus Groups. Patient Preference and Adherence 18: 1919-1928.",10.2147/PPA.S473991,https://pmc.ncbi.nlm.nih.gov/articles/PMC11416774/,PD patients' medication experiences and perspectives,Medication Effectiveness: Uncertainty Inconsistent Effects and Adjusting Expectations,"Some participants indicated that their PD medications worked well. However, even among participants who reported good medication effectiveness, many expressed uncertainties about whether medications were as effective as they could be."
"Richards K, Mantri S, Brown CM, Johnsrud M, Arcona S, Sasane R (2024) A Qualitative Study on Perspectives of Parkinson's Disease Medications: Insights from Patient Focus Groups. Patient Preference and Adherence 18: 1919-1928.",10.2147/PPA.S473991,https://pmc.ncbi.nlm.nih.gov/articles/PMC11416774/,PD patients' medication experiences and perspectives,Medication Burden: Morning Doses Timing Challenges and Constant Reminder,"Medication burden was a topic of critical significance, logistically as well as psychologically. Participants commonly reflected upon their first dose of PD medication in the morning."
"Richards K, Mantri S, Brown CM, Johnsrud M, Arcona S, Sasane R (2024) A Qualitative Study on Perspectives of Parkinson's Disease Medications: Insights from Patient Focus Groups. Patient Preference and Adherence 18: 1919-1928.",10.2147/PPA.S473991,https://pmc.ncbi.nlm.nih.gov/articles/PMC11416774/,PD patients' medication experiences and perspectives,Side Effects: Toleration Treatment and Confusion with Disease Symptoms,"Some participants reported no bothersome side effects from PD medications, but most mentioned that they have experienced or are currently struggling with medication side effects."
"Richards K, Mantri S, Brown CM, Johnsrud M, Arcona S, Sasane R (2024) A Qualitative Study on Perspectives of Parkinson's Disease Medications: Insights from Patient Focus Groups. Patient Preference and Adherence 18: 1919-1928.",10.2147/PPA.S473991,https://pmc.ncbi.nlm.nih.gov/articles/PMC11416774/,PD patients' medication experiences and perspectives,Medication Preferences and Requests: Important Attributes and Therapy Advancement,"Participants welcomed the opportunity to discuss medication attributes of most importance. They desired curative therapies but understood the limitations of currently-available medications."
"Gibson K, Peacock S, Bayly M (2019) Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia. BMJ Open 9(9): e031423.",10.1136/bmjopen-2019-031423,https://pmc.ncbi.nlm.nih.gov/articles/PMC6773340/,Emotional and social journey of spousal dementia caregivers,Memorable grief overshadows persistent grief,"All participants expressed experiences of grief throughout caregiving and bereavement. Grief was reported prior to diagnosis, varying in intensity throughout the journey and never thoroughly dissipating."
"Gibson K, Peacock S, Bayly M (2019) Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia. BMJ Open 9(9): e031423.",10.1136/bmjopen-2019-031423,https://pmc.ncbi.nlm.nih.gov/articles/PMC6773340/,Emotional and social journey of spousal dementia caregivers,A progressive feeling of hopelessness and overwhelmed,"Described as accompanying experiences of watching a spouse live out the end of their life, though participants often avoided expressing feelings in order to continue unobstructed care."
"Gibson K, Peacock S, Bayly M (2019) Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia. BMJ Open 9(9): e031423.",10.1136/bmjopen-2019-031423,https://pmc.ncbi.nlm.nih.gov/articles/PMC6773340/,Emotional and social journey of spousal dementia caregivers,Relief is common but hidden,"All participants stressed that they felt relief once their spouse passed away, for themselves and/or for their spouse. With this sense of relief came an internal struggle to hide these emotions from others."
"Gibson K, Peacock S, Bayly M (2019) Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia. BMJ Open 9(9): e031423.",10.1136/bmjopen-2019-031423,https://pmc.ncbi.nlm.nih.gov/articles/PMC6773340/,Emotional and social journey of spousal dementia caregivers,Gratitude is a milestone in a constructive bereavement,"Some participants discussed how grief transformed into gratitude during bereavement. The development of gratitude allowed spousal caregivers to work through their grief and appreciate their past and present experiences."
"Gibson K, Peacock S, Bayly M (2019) Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia. BMJ Open 9(9): e031423.",10.1136/bmjopen-2019-031423,https://pmc.ncbi.nlm.nih.gov/articles/PMC6773340/,Emotional and social journey of spousal dementia caregivers,Importance of social inclusion throughout caregiving and bereavement journey,"Participants described social circles as supportive early in caregiving, with support from family and friends providing ties to their community."
"Gibson K, Peacock S, Bayly M (2019) Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia. BMJ Open 9(9): e031423.",10.1136/bmjopen-2019-031423,https://pmc.ncbi.nlm.nih.gov/articles/PMC6773340/,Emotional and social journey of spousal dementia caregivers,Repeated loss of companionship,"Participants' first loss of companionship occurred during one of two events: the time of diagnosis or the institutionalisation of their partner."
"Gibson K, Peacock S, Bayly M (2019) Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia. BMJ Open 9(9): e031423.",10.1136/bmjopen-2019-031423,https://pmc.ncbi.nlm.nih.gov/articles/PMC6773340/,Emotional and social journey of spousal dementia caregivers,Withdrawing from social interactions is contingent on needs,"As a result of stress and physical exertion required in caregiving, participants made the choice to retract from community activities. Reintegration is most appropriate when the spousal caregiver is ready."
"Couch E, Co M, Albertyn CP, Prina M, Lawrence V (2024) A qualitative study of informal caregiver perceptions of the benefits of an early dementia diagnosis. BMC Health Services Research 24: 508.",10.1186/s12913-024-10957-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC11040854/,Caregiver perspectives on early dementia diagnosis benefits,Protecting the person with dementia from financial or physical harm,"Early intervention could prevent financial exploitation, scams, or risk of road traffic accidents as symptoms gradually developed from mild memory changes to more substantial cognitive impairment."
"Couch E, Co M, Albertyn CP, Prina M, Lawrence V (2024) A qualitative study of informal caregiver perceptions of the benefits of an early dementia diagnosis. BMC Health Services Research 24: 508.",10.1186/s12913-024-10957-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC11040854/,Caregiver perspectives on early dementia diagnosis benefits,Timely decision making,"Participants described how receiving a diagnosis prompted them and the person with dementia to make plans for their future care."
"Couch E, Co M, Albertyn CP, Prina M, Lawrence V (2024) A qualitative study of informal caregiver perceptions of the benefits of an early dementia diagnosis. BMC Health Services Research 24: 508.",10.1186/s12913-024-10957-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC11040854/,Caregiver perspectives on early dementia diagnosis benefits,Access to services,"Participants described how accessing services early, as a result of an early diagnosis, could help them better prepare for their future caregiving role."
"Couch E, Co M, Albertyn CP, Prina M, Lawrence V (2024) A qualitative study of informal caregiver perceptions of the benefits of an early dementia diagnosis. BMC Health Services Research 24: 508.",10.1186/s12913-024-10957-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC11040854/,Caregiver perspectives on early dementia diagnosis benefits,Adequate prognostic information,"Participants noted that benefits could only be possible with personalised and timely prognostic information."
"Couch E, Co M, Albertyn CP, Prina M, Lawrence V (2024) A qualitative study of informal caregiver perceptions of the benefits of an early dementia diagnosis. BMC Health Services Research 24: 508.",10.1186/s12913-024-10957-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC11040854/,Caregiver perspectives on early dementia diagnosis benefits,Presence of an advocate,"The availability of someone to advocate on behalf of the person with dementia was perceived as vital for ensuring a good quality of life."
"Couch E, Co M, Albertyn CP, Prina M, Lawrence V (2024) A qualitative study of informal caregiver perceptions of the benefits of an early dementia diagnosis. BMC Health Services Research 24: 508.",10.1186/s12913-024-10957-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC11040854/,Caregiver perspectives on early dementia diagnosis benefits,Willingness to seek and accept the dementia diagnosis,"A person with dementia's refusal to seek or accept a diagnosis could be a barrier to an early diagnosis."
"Arias-Colmenero T, Perez-Morente MA, Ramos-Morcillo AJ, Capilla-Diaz C, Ruzafa-Martinez M, Hueso-Montoro C (2020) Experiences and attitudes of people with HIV/AIDS: A systematic review of qualitative studies. International Journal of Environmental Research and Public Health 17(2): 639.",10.3390/ijerph17020639,https://pmc.ncbi.nlm.nih.gov/articles/PMC7014086/,Systematic review of HIV/AIDS lived experiences and attitudes,Feelings about the Diagnosis of HIV/AIDS,"Feelings such as disappointment, sadness, fear, despair, lack of awareness, and pain."
"Arias-Colmenero T, Perez-Morente MA, Ramos-Morcillo AJ, Capilla-Diaz C, Ruzafa-Martinez M, Hueso-Montoro C (2020) Experiences and attitudes of people with HIV/AIDS: A systematic review of qualitative studies. International Journal of Environmental Research and Public Health 17(2): 639.",10.3390/ijerph17020639,https://pmc.ncbi.nlm.nih.gov/articles/PMC7014086/,Systematic review of HIV/AIDS lived experiences and attitudes,Stigma and HIV/AIDS,"Three types of stigma: social stigma, self-stigma and health professionals' stigma."
"Arias-Colmenero T, Perez-Morente MA, Ramos-Morcillo AJ, Capilla-Diaz C, Ruzafa-Martinez M, Hueso-Montoro C (2020) Experiences and attitudes of people with HIV/AIDS: A systematic review of qualitative studies. International Journal of Environmental Research and Public Health 17(2): 639.",10.3390/ijerph17020639,https://pmc.ncbi.nlm.nih.gov/articles/PMC7014086/,Systematic review of HIV/AIDS lived experiences and attitudes,Changes in Sexual Behavior after Becoming Infected,"Changes of behavior after the diagnosis prevail concerning the use of a condom."
"Arias-Colmenero T, Perez-Morente MA, Ramos-Morcillo AJ, Capilla-Diaz C, Ruzafa-Martinez M, Hueso-Montoro C (2020) Experiences and attitudes of people with HIV/AIDS: A systematic review of qualitative studies. International Journal of Environmental Research and Public Health 17(2): 639.",10.3390/ijerph17020639,https://pmc.ncbi.nlm.nih.gov/articles/PMC7014086/,Systematic review of HIV/AIDS lived experiences and attitudes,Living with the Virus,"Being seropositive means that they increase their self-care, fight for their lives."
"Arias-Colmenero T, Perez-Morente MA, Ramos-Morcillo AJ, Capilla-Diaz C, Ruzafa-Martinez M, Hueso-Montoro C (2020) Experiences and attitudes of people with HIV/AIDS: A systematic review of qualitative studies. International Journal of Environmental Research and Public Health 17(2): 639.",10.3390/ijerph17020639,https://pmc.ncbi.nlm.nih.gov/articles/PMC7014086/,Systematic review of HIV/AIDS lived experiences and attitudes,Pregnancy and Motherhood in Seropositive Women,"Covers the causes of becoming pregnant, breastfeeding, and the feelings they experience regarding pregnancy with their condition."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Kidney Transplantation as a Re-Birth,"Process of new life and revival where patients viewed transplantation as restarting life."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Thankfulness,"Recipients expressed deep gratitude toward donors, health professionals, and all forms of support."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Liberty From Dialysis,"Patients described freedom from pain, suffering, and financial burden caused by dialysis."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Self-Efficacy,"Participants reported confidence in their ability to accomplish tasks, which was not the case before transplantation."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Social Support and Social Bond,"Support they received from family, friends, and others played a significant role in recovery."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Fear of the Future,"Concerns about transplant failure and what would happen to them and their donors."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Dependency,"Feeling not able to contribute and relying financially on others for support."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Feeling of Peculiarity,"Sense of being different and always on alert, unable to live like others."
"Wube TB, Asgedom SG, Mengesha AG, Bekele YA, Gebrekirstos LG (2025) Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight. Health Science Reports 8(2): e70511.",10.1002/hsr2.70511,https://pmc.ncbi.nlm.nih.gov/articles/PMC11850432/,Psychological experiences of kidney transplant recipients,Regret,"Guilt over receiving kidneys from family members who would have lived like anyone else."
"Di Lorito C, Bosco A, Godfrey M, Dunlop M, Lock J, Pollock K, Harwood RH, van der Wardt V (2021) Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health. Journal of Alzheimer's Disease 80(2): 799-811.",10.3233/JAD-201257,https://pmc.ncbi.nlm.nih.gov/articles/PMC8075381/,Dementia caregiver strain and quality of life,Social needs of caregivers,"Positive or negative social aspects of caring, such as expanding social contacts, social isolation and support from others."
"Di Lorito C, Bosco A, Godfrey M, Dunlop M, Lock J, Pollock K, Harwood RH, van der Wardt V (2021) Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health. Journal of Alzheimer's Disease 80(2): 799-811.",10.3233/JAD-201257,https://pmc.ncbi.nlm.nih.gov/articles/PMC8075381/,Dementia caregiver strain and quality of life,Practical aspects of caring,"Positive or negative practical aspects of caring, such as improving caring skills, demands on time and space, and change of life plans."
"Di Lorito C, Bosco A, Godfrey M, Dunlop M, Lock J, Pollock K, Harwood RH, van der Wardt V (2021) Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health. Journal of Alzheimer's Disease 80(2): 799-811.",10.3233/JAD-201257,https://pmc.ncbi.nlm.nih.gov/articles/PMC8075381/,Dementia caregiver strain and quality of life,Physical health and caring,"Positive or negative impact of caring on physical health, such as physical illness, exhaustion, tiredness and fatigue."
"Di Lorito C, Bosco A, Godfrey M, Dunlop M, Lock J, Pollock K, Harwood RH, van der Wardt V (2021) Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health. Journal of Alzheimer's Disease 80(2): 799-811.",10.3233/JAD-201257,https://pmc.ncbi.nlm.nih.gov/articles/PMC8075381/,Dementia caregiver strain and quality of life,Emotional impact of the caring role,"Positive or negative feelings, including adjusting and accepting change, worry, stress, depression, anger, tension, desperation, fear, guilt, and sense of purpose."
"Salehi H, Mohammadi N, Ardebili ME, Manshadi SAD, Kalantari S (2023) Struggle against Bitter Life: Lived Experience of Iranian Nurses with HIV/AIDS. Maedica 18(2): 307-316.",10.26574/maedica.2023.18.2.307,https://pmc.ncbi.nlm.nih.gov/articles/PMC10427084/,Lived experience of Iranian nurses with HIV/AIDS,The past not passed,"Refers to the consequences of HIV/AIDS infection, which is always evident as an unfinished matter in the participants' lives."
"Salehi H, Mohammadi N, Ardebili ME, Manshadi SAD, Kalantari S (2023) Struggle against Bitter Life: Lived Experience of Iranian Nurses with HIV/AIDS. Maedica 18(2): 307-316.",10.26574/maedica.2023.18.2.307,https://pmc.ncbi.nlm.nih.gov/articles/PMC10427084/,Lived experience of Iranian nurses with HIV/AIDS,Immersed in the past,"Participants' memories of HIV infection were stored in their memory in a bothering way, which they retrieved and recalled with the slightest signs."
"Salehi H, Mohammadi N, Ardebili ME, Manshadi SAD, Kalantari S (2023) Struggle against Bitter Life: Lived Experience of Iranian Nurses with HIV/AIDS. Maedica 18(2): 307-316.",10.26574/maedica.2023.18.2.307,https://pmc.ncbi.nlm.nih.gov/articles/PMC10427084/,Lived experience of Iranian nurses with HIV/AIDS,Being out on feet,"Expresses the exhausting and toilsome conditions that the participants experienced in their lives due to AIDS infection."
"Salehi H, Mohammadi N, Ardebili ME, Manshadi SAD, Kalantari S (2023) Struggle against Bitter Life: Lived Experience of Iranian Nurses with HIV/AIDS. Maedica 18(2): 307-316.",10.26574/maedica.2023.18.2.307,https://pmc.ncbi.nlm.nih.gov/articles/PMC10427084/,Lived experience of Iranian nurses with HIV/AIDS,Depression and isolation,"Sensing despair in daily life pushed participants toward depression and isolation."
"Salehi H, Mohammadi N, Ardebili ME, Manshadi SAD, Kalantari S (2023) Struggle against Bitter Life: Lived Experience of Iranian Nurses with HIV/AIDS. Maedica 18(2): 307-316.",10.26574/maedica.2023.18.2.307,https://pmc.ncbi.nlm.nih.gov/articles/PMC10427084/,Lived experience of Iranian nurses with HIV/AIDS,Struggling against bitter life,"Refers to participants' struggle to change their lived atmosphere despite adversities."
"Salehi H, Mohammadi N, Ardebili ME, Manshadi SAD, Kalantari S (2023) Struggle against Bitter Life: Lived Experience of Iranian Nurses with HIV/AIDS. Maedica 18(2): 307-316.",10.26574/maedica.2023.18.2.307,https://pmc.ncbi.nlm.nih.gov/articles/PMC10427084/,Lived experience of Iranian nurses with HIV/AIDS,The emergence of passion for life,"Passions and daily personal reactions of participants to changing their lived atmosphere."
"Salehi H, Mohammadi N, Ardebili ME, Manshadi SAD, Kalantari S (2023) Struggle against Bitter Life: Lived Experience of Iranian Nurses with HIV/AIDS. Maedica 18(2): 307-316.",10.26574/maedica.2023.18.2.307,https://pmc.ncbi.nlm.nih.gov/articles/PMC10427084/,Lived experience of Iranian nurses with HIV/AIDS,Efforts to return,"Participants' activities and struggles to adapt with issues of AIDS through support-seeking."
"van Dongen L, Hafsteinsdottir TB, Parker E, Bjartmarz I, Hjaltadottir I, Jonsdottir H (2021) Stroke survivors' experiences with rebuilding life in the community and exercising at home: A qualitative study. Nursing Open 8(5): 2567-2577.",10.1002/nop2.788,https://pmc.ncbi.nlm.nih.gov/articles/PMC8363348/,Stroke survivors integrating exercise into daily life,Framing exercise within the context of everyday life,"Describes how stroke survivors integrate exercise in everyday activities with varying success and the social importance of exercising."
"van Dongen L, Hafsteinsdottir TB, Parker E, Bjartmarz I, Hjaltadottir I, Jonsdottir H (2021) Stroke survivors' experiences with rebuilding life in the community and exercising at home: A qualitative study. Nursing Open 8(5): 2567-2577.",10.1002/nop2.788,https://pmc.ncbi.nlm.nih.gov/articles/PMC8363348/,Stroke survivors integrating exercise into daily life,Managing the challenges of physical impairment,"Describes the taxing undertakings in daily living, loss of concentration and identity."
"van Dongen L, Hafsteinsdottir TB, Parker E, Bjartmarz I, Hjaltadottir I, Jonsdottir H (2021) Stroke survivors' experiences with rebuilding life in the community and exercising at home: A qualitative study. Nursing Open 8(5): 2567-2577.",10.1002/nop2.788,https://pmc.ncbi.nlm.nih.gov/articles/PMC8363348/,Stroke survivors integrating exercise into daily life,Long-term challenges of everyday life,"Describes how stroke survivors manage depression and live with a sense of uncertainty."
"Smissen D vd, Lugtenberg M, Enting M, Beerepoot L, Mols F, Brouwers E, Wasowicz D, Joosen M (2025) Getting back on track after treatment of cancer: A qualitative interview study of cancer survivors' experiences. PLOS ONE 20(1): e0313984.",10.1371/journal.pone.0313984,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0313984,Cancer survivors' experiences resuming life after treatment,Emotional fallout episode after treatment,"This episode was mostly temporary in nature, and its start varied from directly after the end of the primary treatment to when survivors resumed their daily life."
"Smissen D vd, Lugtenberg M, Enting M, Beerepoot L, Mols F, Brouwers E, Wasowicz D, Joosen M (2025) Getting back on track after treatment of cancer: A qualitative interview study of cancer survivors' experiences. PLOS ONE 20(1): e0313984.",10.1371/journal.pone.0313984,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0313984,Cancer survivors' experiences resuming life after treatment,Challenges with getting back on track,"Dealing with impaired physical, mental, and cognitive functions posed difficulties in getting back on track after treatment and resuming daily life."
"Smissen D vd, Lugtenberg M, Enting M, Beerepoot L, Mols F, Brouwers E, Wasowicz D, Joosen M (2025) Getting back on track after treatment of cancer: A qualitative interview study of cancer survivors' experiences. PLOS ONE 20(1): e0313984.",10.1371/journal.pone.0313984,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0313984,Cancer survivors' experiences resuming life after treatment,Coping with changes and regaining trust,"Survivors indicated having to deal with both self-imposed patient stigma as well as social patient stigma imposed by others."
"Smissen D vd, Lugtenberg M, Enting M, Beerepoot L, Mols F, Brouwers E, Wasowicz D, Joosen M (2025) Getting back on track after treatment of cancer: A qualitative interview study of cancer survivors' experiences. PLOS ONE 20(1): e0313984.",10.1371/journal.pone.0313984,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0313984,Cancer survivors' experiences resuming life after treatment,Re-evaluating values and goals in life health and work,"Survivors indicated to realize at some point after treatment that their life needed to be rearranged and would not be the same as before their disease."
"Popov J, Farbod Y, Chauhan U, Kalantar M, Hill L, Armstrong D, Halder S, Marshall JK, Moayyedi P, Kaasalainen S (2021) Patients' experiences and challenges in living with inflammatory bowel disease: A qualitative approach. Clinical and Experimental Gastroenterology 14: 123-131.",10.2147/CEG.S303688,https://pmc.ncbi.nlm.nih.gov/articles/PMC8088978/,IBD patients' psychological social and financial challenges,Awareness Factor,"The awareness factor was cited by participants as the biggest hurdle in living with IBD. This encompassed eliciting empathy and understanding from family members, teachers, and employers."
"Popov J, Farbod Y, Chauhan U, Kalantar M, Hill L, Armstrong D, Halder S, Marshall JK, Moayyedi P, Kaasalainen S (2021) Patients' experiences and challenges in living with inflammatory bowel disease: A qualitative approach. Clinical and Experimental Gastroenterology 14: 123-131.",10.2147/CEG.S303688,https://pmc.ncbi.nlm.nih.gov/articles/PMC8088978/,IBD patients' psychological social and financial challenges,Psychosocial Impacts,"Referred to feelings of being controlled by the disease, incontinence and shame, social isolation, need for emotional support, poor self-esteem, and the overall psychological burden of the disease."
"Popov J, Farbod Y, Chauhan U, Kalantar M, Hill L, Armstrong D, Halder S, Marshall JK, Moayyedi P, Kaasalainen S (2021) Patients' experiences and challenges in living with inflammatory bowel disease: A qualitative approach. Clinical and Experimental Gastroenterology 14: 123-131.",10.2147/CEG.S303688,https://pmc.ncbi.nlm.nih.gov/articles/PMC8088978/,IBD patients' psychological social and financial challenges,Financial Burden,"Included frustration with healthcare coverage, guilt associated with costly treatments, poor schedule flexibility with employment, and career sacrifices."
"Popov J, Farbod Y, Chauhan U, Kalantar M, Hill L, Armstrong D, Halder S, Marshall JK, Moayyedi P, Kaasalainen S (2021) Patients' experiences and challenges in living with inflammatory bowel disease: A qualitative approach. Clinical and Experimental Gastroenterology 14: 123-131.",10.2147/CEG.S303688,https://pmc.ncbi.nlm.nih.gov/articles/PMC8088978/,IBD patients' psychological social and financial challenges,Quality of Care,"Referred to misdiagnoses, accusations of attention-seeking behaviour, trust in healthcare providers, poor experiences with prior treatments, and the importance of self-advocacy."
"Adams K, Smith J, Brown M, Bird G, Waite P (2025) Experiences of interoception and anxiety in autistic adolescents: A reflexive thematic analysis. Autism 29(6): 1585-1596.",10.1177/13623613251314595,https://pmc.ncbi.nlm.nih.gov/articles/PMC12089679/,Interoception and anxiety in autistic adolescents,Interoceptive Awareness,"Reflects the degree to which participants reported being aware of interoceptive signals, which appeared to influence anxiety."
"Adams K, Smith J, Brown M, Bird G, Waite P (2025) Experiences of interoception and anxiety in autistic adolescents: A reflexive thematic analysis. Autism 29(6): 1585-1596.",10.1177/13623613251314595,https://pmc.ncbi.nlm.nih.gov/articles/PMC12089679/,Interoception and anxiety in autistic adolescents,Interoceptive Evaluation,"Refers to the interpretation of the interoceptive signals that participants were aware of, which appeared to exist along a spectrum."
"Adams K, Smith J, Brown M, Bird G, Waite P (2025) Experiences of interoception and anxiety in autistic adolescents: A reflexive thematic analysis. Autism 29(6): 1585-1596.",10.1177/13623613251314595,https://pmc.ncbi.nlm.nih.gov/articles/PMC12089679/,Interoception and anxiety in autistic adolescents,Situational Interoception,"Illustrates how both interoceptive awareness and evaluation were variable within as well as across participants."
"Howell DA, McCaughan D, Smith AG, Patmore R, Roman E (2022) Incurable but treatable: Understanding, uncertainty and impact in chronic blood cancers. PLOS ONE 17(2): e0263672.",10.1371/journal.pone.0263672,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0263672,Patient understanding and impact of chronic blood cancers,Knowledge and understanding of chronic blood cancers,"This theme contains five sub-themes that focus on patient knowledge, understanding and expectation regarding blood cancers."
"Howell DA, McCaughan D, Smith AG, Patmore R, Roman E (2022) Incurable but treatable: Understanding, uncertainty and impact in chronic blood cancers. PLOS ONE 17(2): e0263672.",10.1371/journal.pone.0263672,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0263672,Patient understanding and impact of chronic blood cancers,Incurable but treatable,"This theme focuses on the information provided by HCP to promote understanding among patients and families about the characteristics of chronic haematological malignancies."
"Howell DA, McCaughan D, Smith AG, Patmore R, Roman E (2022) Incurable but treatable: Understanding, uncertainty and impact in chronic blood cancers. PLOS ONE 17(2): e0263672.",10.1371/journal.pone.0263672,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0263672,Patient understanding and impact of chronic blood cancers,Uncertainty about the future,"Uncertainty generally pertained to the occurrence and timing of cancer progression, the need for treatment, and prognosis."
"Howell DA, McCaughan D, Smith AG, Patmore R, Roman E (2022) Incurable but treatable: Understanding, uncertainty and impact in chronic blood cancers. PLOS ONE 17(2): e0263672.",10.1371/journal.pone.0263672,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0263672,Patient understanding and impact of chronic blood cancers,Treatable (but still incurable): Impact on patients,"Having a treatable but incurable chronic haematological malignancy affected patients differently, with the diagnosis gaining or losing impact over time."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Nutrition,"An ambivalent relationship with food was described by interviewees; diets had become restricted with large meals replaced by small portions."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Hygiene,"Interviewees reported concerns over hygiene and carry deodorants, spare clothes and wipes, expressed feeling dirty with worry about smelling."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Continence,"CD meant that their life had to be planned around the location of toilets with constant worry about not making it to the toilet in time."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Freedom from infection,"Individuals reported feeling constantly ill and recovering slowly from minor illness, avoided people who appeared unwell."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Security,"Interviewees reported feeling vulnerable as a result of their illness and felt weaker than before."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Self-esteem,"Negative self-evaluations were expressed: doubted myself, I doubted my value, I doubted my worth, I doubted my capability."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Role,"Interviewees discussed how their role in life had altered, unable to provide for themselves, had to rely on children to help."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Attractiveness,"Participants experienced consciousness of their appearance, tried to cover up with loose-fitting clothes."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Relationships,"Interviewees reported being cautious about becoming emotionally close, strain on existing relationships, snap at people far too easily, cancelled arrangements."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Intimacy,"CD affected interviewees' intimacy with experiencing a loss of interest in sex, not having energy, feeling very tired, not wanting sex."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Clear-mindedness,"Interviewees described overwhelming preoccupation with condition, consumed by fact that whole life thinking about going to toilet, being in pain."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Pleasure,"CD took away their pleasure in life, tired all the time, unable to go on holidays, sense of humour has taken a wallop."
"Wilburn J, Twiss J, Kemp K, McKenna SP (2017) A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology 8(1): 68-73.",10.1136/flgastro-2015-100678,https://pmc.ncbi.nlm.nih.gov/articles/PMC5369426/,Crohn's disease impact on patient quality of life,Autonomy,"Autonomy was important, feeling in control, independence are important needs, feeling alone, embarrassment, may not have control over bowel."
"Solberg B, Glavin K, Berg RC, Olsvold N (2022) Opening up a well of emotions: A qualitative study of men's emotional experiences in the transition to fatherhood. Nursing Open 10(4): 2282-2294.",10.1002/nop2.1482,https://pmc.ncbi.nlm.nih.gov/articles/PMC10006604/,Men's emotional experiences transitioning to fatherhood,From self-focus to family perspective,"The themes describe fathers' emotional process during the child's first year of life, ranging from positive feelings like affection and mastery, to challenging feelings like exclusion, jealousy and exhaustion."
"Solberg B, Glavin K, Berg RC, Olsvold N (2022) Opening up a well of emotions: A qualitative study of men's emotional experiences in the transition to fatherhood. Nursing Open 10(4): 2282-2294.",10.1002/nop2.1482,https://pmc.ncbi.nlm.nih.gov/articles/PMC10006604/,Men's emotional experiences transitioning to fatherhood,Emotional vulnerability,"The fathers also experienced great emotional strain in connection with their transition to fatherhood. They felt more sensitive and vulnerable than they had been previously."
"Solberg B, Glavin K, Berg RC, Olsvold N (2022) Opening up a well of emotions: A qualitative study of men's emotional experiences in the transition to fatherhood. Nursing Open 10(4): 2282-2294.",10.1002/nop2.1482,https://pmc.ncbi.nlm.nih.gov/articles/PMC10006604/,Men's emotional experiences transitioning to fatherhood,From insecurity to self-assurance,"During the child's first year of life, the fathers developed an increasing sense of self-assurance in their role, an enhanced sense of self and a growing bond with the child."
"Bower-Brown S (2022) Beyond Mum and Dad: Gendered Assumptions about Parenting and the Experiences of Trans and/or Non-Binary Parents in the UK. LGBTQ Fam 18(3): 223-240.",10.1080/27703371.2022.2083040,https://pmc.ncbi.nlm.nih.gov/articles/PMC9359002/,Trans and non-binary parents' experiences with gendered parenting assumptions,Motherhood: essential and exclusionary,"The way in which motherhood was perceived as an essential role in a child's life. This role was also deemed to be exclusive to certain parents, primarily birth parents, who were assumed to be cis women."
"Bower-Brown S (2022) Beyond Mum and Dad: Gendered Assumptions about Parenting and the Experiences of Trans and/or Non-Binary Parents in the UK. LGBTQ Fam 18(3): 223-240.",10.1080/27703371.2022.2083040,https://pmc.ncbi.nlm.nih.gov/articles/PMC9359002/,Trans and non-binary parents' experiences with gendered parenting assumptions,Fathers as uninvolved parents: negotiating fatherhood,"The expectation that non-birth biological parents were fathers, and that fathers were less involved as parents."
"Bower-Brown S (2022) Beyond Mum and Dad: Gendered Assumptions about Parenting and the Experiences of Trans and/or Non-Binary Parents in the UK. LGBTQ Fam 18(3): 223-240.",10.1080/27703371.2022.2083040,https://pmc.ncbi.nlm.nih.gov/articles/PMC9359002/,Trans and non-binary parents' experiences with gendered parenting assumptions,"Mum, Dad and nothing in between: parenting beyond the binary","Describes how parenting norms of mum and dad as being the only two, discrete identities impacted upon participants."
"Nolan MM, Blythe IM, Vincent-Ruz P (2025) The challenges of transgender and nonbinary graduate students in chemistry: A qualitative study on trans identity, science culture, and institutional support using reflexive thematic analysis. PLOS ONE 20(4): e0320493.",10.1371/journal.pone.0320493,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0320493,Trans chemistry doctoral students' barriers and experiences,I Just Hedged My Bets,"All the factors students took into account when choosing a graduate program and the difficulty of weighing their decisions including LGBTQ+ policies, geographic location, trans community presence, and healthcare access."
"Nolan MM, Blythe IM, Vincent-Ruz P (2025) The challenges of transgender and nonbinary graduate students in chemistry: A qualitative study on trans identity, science culture, and institutional support using reflexive thematic analysis. PLOS ONE 20(4): e0320493.",10.1371/journal.pone.0320493,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0320493,Trans chemistry doctoral students' barriers and experiences,I Feel I Live Two Lives,"The experience of participants navigating complicated negotiations regarding the presentation of their trans identities while applying to graduate school and acclimating to graduate programs."
"Walther L, Rayes D, Amann J, Flick U, Ta TMT, Hahn E, Bajbouj M (2021) Mental health and integration: A qualitative study on the struggles of recently arrived refugees in Germany. Frontiers in Public Health 9: 576481.",10.3389/fpubh.2021.576481,https://pmc.ncbi.nlm.nih.gov/articles/PMC8599120/,Refugee mental health and integration challenges in Germany,Impaired by Past and Present Events in the Homeland,"How mental health problems linked to pre-migration adverse experiences and worries about the homeland and family members left behind can result in overall functional impairment and impede activities key to integration."
"Walther L, Rayes D, Amann J, Flick U, Ta TMT, Hahn E, Bajbouj M (2021) Mental health and integration: A qualitative study on the struggles of recently arrived refugees in Germany. Frontiers in Public Health 9: 576481.",10.3389/fpubh.2021.576481,https://pmc.ncbi.nlm.nih.gov/articles/PMC8599120/,Refugee mental health and integration challenges in Germany,Weighed Down by Legal Status Uncertainty,"The asylum process is central to refugees' post-migration experience since it determines access to various institutions, freedoms, and the right to stay. This central legal process of integration is bound up with distress due to uncertainty and fear."
"Walther L, Rayes D, Amann J, Flick U, Ta TMT, Hahn E, Bajbouj M (2021) Mental health and integration: A qualitative study on the struggles of recently arrived refugees in Germany. Frontiers in Public Health 9: 576481.",10.3389/fpubh.2021.576481,https://pmc.ncbi.nlm.nih.gov/articles/PMC8599120/,Refugee mental health and integration challenges in Germany,Feeling Stuck and Thwarted: Mental Health Ramifications of Struggles With Structural Integration,"A large cluster of stressors and associated psychological problems centers around a perceived struggle with structural integration. Many participants expressed feeling unable to accomplish various aspects of structural integration."
"Walther L, Rayes D, Amann J, Flick U, Ta TMT, Hahn E, Bajbouj M (2021) Mental health and integration: A qualitative study on the struggles of recently arrived refugees in Germany. Frontiers in Public Health 9: 576481.",10.3389/fpubh.2021.576481,https://pmc.ncbi.nlm.nih.gov/articles/PMC8599120/,Refugee mental health and integration challenges in Germany,Overwhelmed With Fundamental Tasks in the Integration Process,"Fundamental daily tasks of integration include learning the host country language and navigating the administrative processes involved. While many participants spoke about the stress of struggling with these tasks, they appear to have the potential to become so overwhelming that they impact mental health."
"Walther L, Rayes D, Amann J, Flick U, Ta TMT, Hahn E, Bajbouj M (2021) Mental health and integration: A qualitative study on the struggles of recently arrived refugees in Germany. Frontiers in Public Health 9: 576481.",10.3389/fpubh.2021.576481,https://pmc.ncbi.nlm.nih.gov/articles/PMC8599120/,Refugee mental health and integration challenges in Germany,Social Disconnections With the Host Society and Fellow Refugee Communities,"This theme captures various forms of social disconnection, showing links between the social aspects of integration and mental health."
"Harrison ED, Hulme JA, Fox CL (2022) A thematic analysis of students' perceptions and experiences of bullying in UK higher education. European Journal of Psychology 18(1): 53-69.",10.5964/ejop.3669,https://pmc.ncbi.nlm.nih.gov/articles/PMC8895698/,UK university students' experiences and perceptions of bullying,Power imbalance,"Students reported that bullying happens between groups or where groups attack an individual based on social group membership and status and reputation in the social hierarchy."
"Harrison ED, Hulme JA, Fox CL (2022) A thematic analysis of students' perceptions and experiences of bullying in UK higher education. European Journal of Psychology 18(1): 53-69.",10.5964/ejop.3669,https://pmc.ncbi.nlm.nih.gov/articles/PMC8895698/,UK university students' experiences and perceptions of bullying,Objective of bullying,"Perpetrators bully for intentional and goal-directed purposes for social gain and personal gain."
"Harrison ED, Hulme JA, Fox CL (2022) A thematic analysis of students' perceptions and experiences of bullying in UK higher education. European Journal of Psychology 18(1): 53-69.",10.5964/ejop.3669,https://pmc.ncbi.nlm.nih.gov/articles/PMC8895698/,UK university students' experiences and perceptions of bullying,Methods of bullying and tactics used,"Includes sexual harassment, active exclusion and isolating, online/cyber bullying, controlling and mind games, and verbal and jokes."
"Harrison ED, Hulme JA, Fox CL (2022) A thematic analysis of students' perceptions and experiences of bullying in UK higher education. European Journal of Psychology 18(1): 53-69.",10.5964/ejop.3669,https://pmc.ncbi.nlm.nih.gov/articles/PMC8895698/,UK university students' experiences and perceptions of bullying,Justification and minimisation for involvement in bullying,"Students minimise and justify bullying through relabeling and avoid intervention due to uncertainty or perceived lack of responsibility."
"Falvo I, Caiata Zufferey M, Albanese E, Fadda M (2021) Lived experiences of older adults during the first COVID-19 lockdown: A qualitative study. PLOS ONE 16(6): e0252101.",10.1371/journal.pone.0252101,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0252101,Older adults' experiences during COVID-19 lockdown in Switzerland,Impact on the individual level: Between fear of going out and a feeling of reclusion,"The measures imposed by authorities generated a tension between opposite feelings. While participants feared leaving their house, they felt a strong sense of reclusion and isolation."
"Falvo I, Caiata Zufferey M, Albanese E, Fadda M (2021) Lived experiences of older adults during the first COVID-19 lockdown: A qualitative study. PLOS ONE 16(6): e0252101.",10.1371/journal.pone.0252101,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0252101,Older adults' experiences during COVID-19 lockdown in Switzerland,Impact on the micro-social level: The dual role of the other,"Participants referred to a dual role of the other. Strangers not respecting COVID-19 prevention measures were perceived as doing the elders wrong, while younger people were also perceived as a source of protection."
"Falvo I, Caiata Zufferey M, Albanese E, Fadda M (2021) Lived experiences of older adults during the first COVID-19 lockdown: A qualitative study. PLOS ONE 16(6): e0252101.",10.1371/journal.pone.0252101,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0252101,Older adults' experiences during COVID-19 lockdown in Switzerland,Impact on the meso-social level: Between protection and stigmatization,"Two opposite representations of the elders: on the one side, the vulnerable, while on the other side, the lepers that may expose others."
"Falvo I, Caiata Zufferey M, Albanese E, Fadda M (2021) Lived experiences of older adults during the first COVID-19 lockdown: A qualitative study. PLOS ONE 16(6): e0252101.",10.1371/journal.pone.0252101,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0252101,Older adults' experiences during COVID-19 lockdown in Switzerland,Impact on the macro-social level: Gestation of a new world,"The majority replied that they were afraid that the post-COVID-19 world would be significantly different and that relationships will never be the same."
"Goll JC, Charlesworth G, Scior K, Stott J (2015) Barriers to social participation among lonely older adults: The influence of social fears and identity. PLOS ONE 10(2): e0116664.",10.1371/journal.pone.0116664,https://pmc.ncbi.nlm.nih.gov/articles/PMC4338142/,Psychological barriers to social participation in lonely older adults,Illness and disability,"Almost all participants said that their illnesses and disabilities led to a range of practical issues that made social participation challenging."
"Goll JC, Charlesworth G, Scior K, Stott J (2015) Barriers to social participation among lonely older adults: The influence of social fears and identity. PLOS ONE 10(2): e0116664.",10.1371/journal.pone.0116664,https://pmc.ncbi.nlm.nih.gov/articles/PMC4338142/,Psychological barriers to social participation in lonely older adults,Loss of friends and family,"Around two thirds of participants related their low interaction levels to the absence of old friends and neighbours who had died."
"Goll JC, Charlesworth G, Scior K, Stott J (2015) Barriers to social participation among lonely older adults: The influence of social fears and identity. PLOS ONE 10(2): e0116664.",10.1371/journal.pone.0116664,https://pmc.ncbi.nlm.nih.gov/articles/PMC4338142/,Psychological barriers to social participation in lonely older adults,Fear of rejection,"Around half of the participants, and particularly women, feared various forms of rejection by social groups."
"Goll JC, Charlesworth G, Scior K, Stott J (2015) Barriers to social participation among lonely older adults: The influence of social fears and identity. PLOS ONE 10(2): e0116664.",10.1371/journal.pone.0116664,https://pmc.ncbi.nlm.nih.gov/articles/PMC4338142/,Psychological barriers to social participation in lonely older adults,Fear of losing independent identity,"Almost all participants emphasised independence as a valued and honourable aspect of their identities."
"Goll JC, Charlesworth G, Scior K, Stott J (2015) Barriers to social participation among lonely older adults: The influence of social fears and identity. PLOS ONE 10(2): e0116664.",10.1371/journal.pone.0116664,https://pmc.ncbi.nlm.nih.gov/articles/PMC4338142/,Psychological barriers to social participation in lonely older adults,Fear of losing youthful identity,"Around two thirds of participants characterised old people in very negative terms."
"Martinelli TF, Roeg DPK, Bellaert L, Van de Mheen D, Nagelhout GE (2023) Understanding the Process of Drug Addiction Recovery Through First-Hand Experiences: A Qualitative Study in the Netherlands Using Lifeline Interviews. Qualitative Health Research 33(10): 857-870.",10.1177/10497323231174161,https://pmc.ncbi.nlm.nih.gov/articles/PMC10426251/,Drug addiction recovery processes across different stages,Recovery Is a Broad Process of Change Because Addiction Is Interwoven With Everything,"Participants described processes in which they discovered that their addiction was connected to all other aspects of their life, not just their drug use."
"Martinelli TF, Roeg DPK, Bellaert L, Van de Mheen D, Nagelhout GE (2023) Understanding the Process of Drug Addiction Recovery Through First-Hand Experiences: A Qualitative Study in the Netherlands Using Lifeline Interviews. Qualitative Health Research 33(10): 857-870.",10.1177/10497323231174161,https://pmc.ncbi.nlm.nih.gov/articles/PMC10426251/,Drug addiction recovery processes across different stages,"Recovery Is Reconsidering Identity, Seeing Things in a New Light","Many participants would describe how they saw themselves and their current and past behavior in a new light after initiating recovery."
"Martinelli TF, Roeg DPK, Bellaert L, Van de Mheen D, Nagelhout GE (2023) Understanding the Process of Drug Addiction Recovery Through First-Hand Experiences: A Qualitative Study in the Netherlands Using Lifeline Interviews. Qualitative Health Research 33(10): 857-870.",10.1177/10497323231174161,https://pmc.ncbi.nlm.nih.gov/articles/PMC10426251/,Drug addiction recovery processes across different stages,Recovery Is a Staged Long-Term Process,"Multiple experiences from participants that indicate that certain addiction recovery processes can span over several years."
"Martinelli TF, Roeg DPK, Bellaert L, Van de Mheen D, Nagelhout GE (2023) Understanding the Process of Drug Addiction Recovery Through First-Hand Experiences: A Qualitative Study in the Netherlands Using Lifeline Interviews. Qualitative Health Research 33(10): 857-870.",10.1177/10497323231174161,https://pmc.ncbi.nlm.nih.gov/articles/PMC10426251/,Drug addiction recovery processes across different stages,Universal Life Processes Are Part of Recovery,"Participants dealt with a variety of life events; participants described recovery processes that can be interpreted as universal or normal developmental processes."
"Cowley ES, Schneider J (2025) I sometimes feel like I can't win: An exploratory mixed-methods study of women's body image and experiences of exercising in gym settings. PLOS ONE 20(1): e0316756.",10.1371/journal.pone.0316756,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316756,Women's body image and gym exercise experiences,Never enough,"Many women reported feeling judged both for their appearance and performance in the gym resulting in feelings of never being enough."
"Cowley ES, Schneider J (2025) I sometimes feel like I can't win: An exploratory mixed-methods study of women's body image and experiences of exercising in gym settings. PLOS ONE 20(1): e0316756.",10.1371/journal.pone.0316756,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316756,Women's body image and gym exercise experiences,Often too much,"Women used words such as excessive, extra, and too to convey self-criticism, partially linked to limited gym attire options."
"Cowley ES, Schneider J (2025) I sometimes feel like I can't win: An exploratory mixed-methods study of women's body image and experiences of exercising in gym settings. PLOS ONE 20(1): e0316756.",10.1371/journal.pone.0316756,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316756,Women's body image and gym exercise experiences,Always on display,"Women's bodies being on display, often for male consumption, reflecting experiences of harassment and safety concerns."
"Cowley ES, Schneider J (2025) I sometimes feel like I can't win: An exploratory mixed-methods study of women's body image and experiences of exercising in gym settings. PLOS ONE 20(1): e0316756.",10.1371/journal.pone.0316756,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316756,Women's body image and gym exercise experiences,Sometimes empowered,"Women experienced positive experiences of feeling empowered in the gym, particularly when they defy gender norms through skill acquisition and supportive environments."
"Morrison N, Zaman T, Webster G, Sorinola O, Blackburn C (2023) Where are you really from: a qualitative study of racial microaggressions and the impact on medical students in the UK. BMJ Open 13(5): e069009.",10.1136/bmjopen-2022-069009,https://pmc.ncbi.nlm.nih.gov/articles/PMC10163503/,Racial microaggressions experienced by UK medical students,Assumption of being foreign,"Most participants described instances of where they were assumed to have been born in a country abroad, even though the UK was their birthplace."
"Morrison N, Zaman T, Webster G, Sorinola O, Blackburn C (2023) Where are you really from: a qualitative study of racial microaggressions and the impact on medical students in the UK. BMJ Open 13(5): e069009.",10.1136/bmjopen-2022-069009,https://pmc.ncbi.nlm.nih.gov/articles/PMC10163503/,Racial microaggressions experienced by UK medical students,Feeling guarded,"Students expressed how previous experiences of microaggressions lead to feeling worried, anxious and apprehensive in new and different environments."
"Morrison N, Zaman T, Webster G, Sorinola O, Blackburn C (2023) Where are you really from: a qualitative study of racial microaggressions and the impact on medical students in the UK. BMJ Open 13(5): e069009.",10.1136/bmjopen-2022-069009,https://pmc.ncbi.nlm.nih.gov/articles/PMC10163503/,Racial microaggressions experienced by UK medical students,Additional burden,"Additional burden refers to the extra worry, stress, apprehension and pressure that participants reported experiencing."
"McCall A, Wolfberg A, Ivarsson A, Dupont G, Larocque A, Bilsborough J (2023) A qualitative study of 11 world-class team-sport athletes' experiences answering subjective questionnaires. Sports Medicine 53(5): 1085-1100.",10.1007/s40279-023-01814-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC10115681/,Elite athletes' experiences with performance monitoring questionnaires,Pursuit of Ideal Self,"Ideal self is a driver for intentional change and was a key theme of discussion by athletes, the athletes' preferred future regarding their professional sporting goals."
"McCall A, Wolfberg A, Ivarsson A, Dupont G, Larocque A, Bilsborough J (2023) A qualitative study of 11 world-class team-sport athletes' experiences answering subjective questionnaires. Sports Medicine 53(5): 1085-1100.",10.1007/s40279-023-01814-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC10115681/,Elite athletes' experiences with performance monitoring questionnaires,Individual Barriers to Athlete Engagement,"Individual barriers to athlete engagement can refer to intrapersonal aspects related to negative emotions, such as the negative effect of fear, and perceptions of doubt and scepticism."
"McCall A, Wolfberg A, Ivarsson A, Dupont G, Larocque A, Bilsborough J (2023) A qualitative study of 11 world-class team-sport athletes' experiences answering subjective questionnaires. Sports Medicine 53(5): 1085-1100.",10.1007/s40279-023-01814-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC10115681/,Elite athletes' experiences with performance monitoring questionnaires,Social Facilitators to Athlete Engagement,"Social facilitators refer to perceptions by the athletes based on their experiences and beliefs about what staff within the performance team do."
"McCall A, Wolfberg A, Ivarsson A, Dupont G, Larocque A, Bilsborough J (2023) A qualitative study of 11 world-class team-sport athletes' experiences answering subjective questionnaires. Sports Medicine 53(5): 1085-1100.",10.1007/s40279-023-01814-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC10115681/,Elite athletes' experiences with performance monitoring questionnaires,Experiencing Compassion from the Performance Staff,"Athletes expressed feelings about needing and experiencing compassion from the performance staff to be key to getting honest responses to subjective monitoring."
"Barsigian LL, Hammack PL, Morrow QJ, Wilson BDM, Russell ST (2020) Narratives of gender, sexuality, and community in three generations of genderqueer sexual minorities. Psychology of Sexual Orientation and Gender Diversity 7(3): 276-292.",10.1037/sgd0000384,https://pmc.ncbi.nlm.nih.gov/articles/PMC7511091/,Genderqueer identity experiences across three generational cohorts,Unintelligibility,"Genderqueer people face challenges in identifying, naming, and expressing their gender due to the constraints of everyday language and material culture."
"Barsigian LL, Hammack PL, Morrow QJ, Wilson BDM, Russell ST (2020) Narratives of gender, sexuality, and community in three generations of genderqueer sexual minorities. Psychology of Sexual Orientation and Gender Diversity 7(3): 276-292.",10.1037/sgd0000384,https://pmc.ncbi.nlm.nih.gov/articles/PMC7511091/,Genderqueer identity experiences across three generational cohorts,Managing Stigma Through Challenging Oppression,"Genderqueer people manage stigma by naming and challenging the gender binary, often in relation to other forms of oppression."
"Barsigian LL, Hammack PL, Morrow QJ, Wilson BDM, Russell ST (2020) Narratives of gender, sexuality, and community in three generations of genderqueer sexual minorities. Psychology of Sexual Orientation and Gender Diversity 7(3): 276-292.",10.1037/sgd0000384,https://pmc.ncbi.nlm.nih.gov/articles/PMC7511091/,Genderqueer identity experiences across three generational cohorts,Connection Beyond Mainstream LGBTQ Communities,"Genderqueer people often find connection outside of mainstream LGBTQ spaces, such as through ethnicity-based or sexual subcommunities."
"Town R, Hayes D, Fonagy P, Stapley E (2021) A qualitative investigation of LGBTQ+ young people's experiences and perceptions of self-managing their mental health. European Child & Adolescent Psychiatry 31(9): 1441-1454.",10.1007/s00787-021-01783-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC8075021/,LGBTQ+ youth mental health self-management strategies and barriers,Self-management can be hard work,"Nearly all participants described times when they felt too low, tired or not in the right mindset to self-manage their mental health."
"Town R, Hayes D, Fonagy P, Stapley E (2021) A qualitative investigation of LGBTQ+ young people's experiences and perceptions of self-managing their mental health. European Child & Adolescent Psychiatry 31(9): 1441-1454.",10.1007/s00787-021-01783-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC8075021/,LGBTQ+ youth mental health self-management strategies and barriers,Wanting to wallow,"Participants described feeling like they were sometimes their own worst enemy or wanting to wallow in the negative emotions they were feeling."
"Town R, Hayes D, Fonagy P, Stapley E (2021) A qualitative investigation of LGBTQ+ young people's experiences and perceptions of self-managing their mental health. European Child & Adolescent Psychiatry 31(9): 1441-1454.",10.1007/s00787-021-01783-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC8075021/,LGBTQ+ youth mental health self-management strategies and barriers,Outness affects self-management,"Participants described how an LGBTQ+ person who was not completely out might find it more challenging to self-manage, as they might have to self-manage on their own."
"Town R, Hayes D, Fonagy P, Stapley E (2021) A qualitative investigation of LGBTQ+ young people's experiences and perceptions of self-managing their mental health. European Child & Adolescent Psychiatry 31(9): 1441-1454.",10.1007/s00787-021-01783-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC8075021/,LGBTQ+ youth mental health self-management strategies and barriers,LGBTQ+ community helps with self-management,"Participants described a perception that identifying as LGBTQ+ and having access to the wider LGBTQ+ community could help them to self-manage their mental health."
"Williamson T, Wagstaff DL, Goodwin J, Smith N (2023) Mothering Ideology: A Qualitative Exploration of Mothers' Perceptions of Navigating Motherhood Pressures and Partner Relationships. Sex Roles 88(1-2): 101-117.",10.1007/s11199-022-01345-7,https://pmc.ncbi.nlm.nih.gov/articles/PMC9765384/,How good mother ideology shapes mothers' experiences,Discourses on motherhood: criticisms of mothers and internalised guilt,"Mothers were exposed to and often internalised dominant mothering discourses such as the good mother ideology and upheld these expectations through fear of judgement and altering their beliefs or behaviours when in public."
"Williamson T, Wagstaff DL, Goodwin J, Smith N (2023) Mothering Ideology: A Qualitative Exploration of Mothers' Perceptions of Navigating Motherhood Pressures and Partner Relationships. Sex Roles 88(1-2): 101-117.",10.1007/s11199-022-01345-7,https://pmc.ncbi.nlm.nih.gov/articles/PMC9765384/,How good mother ideology shapes mothers' experiences,Transformation of identity,"Change in identity in areas of sexuality, occupation, and individuality. This transition was sometimes characterised by loss and confusion as mothers attempted to integrate contradictory identities."
"Williamson T, Wagstaff DL, Goodwin J, Smith N (2023) Mothering Ideology: A Qualitative Exploration of Mothers' Perceptions of Navigating Motherhood Pressures and Partner Relationships. Sex Roles 88(1-2): 101-117.",10.1007/s11199-022-01345-7,https://pmc.ncbi.nlm.nih.gov/articles/PMC9765384/,How good mother ideology shapes mothers' experiences,Entrenchment of Gender Roles through Childrearing,"Childrearing often reinforces traditional gender roles in finances, household labour and child-rearing. This reinforces the intensive mothering ideology of mother as expert."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLOS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning difficulties in adolescents with eating disorders,Group Belonging,"Comprised of three subordinate constructs: friendships dissolving, interpersonal adversity and impoverished social networks."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLOS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning difficulties in adolescents with eating disorders,Self-Monitoring,"Had two subordinate themes: fear of negative evaluation discussed in connection to initiating conversations and interactions and inter and intrapersonal perceptions related to impression management."
"Patel K, Tchanturia K, Harrison A (2016) An Exploration of Social Functioning in Young People with Eating Disorders: A Qualitative Study. PLOS ONE 11(7): e0159910.",10.1371/journal.pone.0159910,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0159910,Social functioning difficulties in adolescents with eating disorders,Social Sensitivity,"Related to an increased likelihood of perceiving criticism and of experiencing negative affect to perceived criticism. Two subordinate themes were identified: rejection sensitivity and distrust in others."
"Khawaja NG, Schweitzer RD (2024) A Qualitative Study of Adolescents from Refugee Backgrounds Living in Australia: Identity and Resettlement. International Journal of Environmental Research and Public Health 21(3): 281.",10.3390/ijerph21030281,https://pmc.ncbi.nlm.nih.gov/articles/PMC10970327/,Refugee adolescents' identity formation and resettlement in Australia,Experiencing changes in family roles,"Due to the death or disappearance of the parents, half of the participants reported having an aunt or an uncle or an older sibling as a carer and guardian."
"Khawaja NG, Schweitzer RD (2024) A Qualitative Study of Adolescents from Refugee Backgrounds Living in Australia: Identity and Resettlement. International Journal of Environmental Research and Public Health 21(3): 281.",10.3390/ijerph21030281,https://pmc.ncbi.nlm.nih.gov/articles/PMC10970327/,Refugee adolescents' identity formation and resettlement in Australia,Experience of belonging,"A lived sense of belonging and being part of a group were common threads woven throughout participants' narratives."
"Khawaja NG, Schweitzer RD (2024) A Qualitative Study of Adolescents from Refugee Backgrounds Living in Australia: Identity and Resettlement. International Journal of Environmental Research and Public Health 21(3): 281.",10.3390/ijerph21030281,https://pmc.ncbi.nlm.nih.gov/articles/PMC10970327/,Refugee adolescents' identity formation and resettlement in Australia,Experience of bonds with lost loved ones,"All participants reported having lost a significant relative or community member to war, disease, or physical separation."
"Khawaja NG, Schweitzer RD (2024) A Qualitative Study of Adolescents from Refugee Backgrounds Living in Australia: Identity and Resettlement. International Journal of Environmental Research and Public Health 21(3): 281.",10.3390/ijerph21030281,https://pmc.ncbi.nlm.nih.gov/articles/PMC10970327/,Refugee adolescents' identity formation and resettlement in Australia,Dealing with emotions in a new context,"Participants downplayed distressing experiences, demonstrating disavowal of emotions associated with resettlement."
"Hiswals AS, Marttila A, Malstam E, Macassa G (2017) Experiences of unemployment and well-being after job loss during economic recession: Results of a qualitative study in east central Sweden. Journal of Public Health Research 6(3): 995.",10.4081/jphr.2017.995,https://pmc.ncbi.nlm.nih.gov/articles/PMC5736997/,Unemployment experiences and well-being during economic recession,Work as the basis for belonging,"The respondents described work as very important part of human identity in the sense that work was deeply ingrained in society and it was necessary to have a job in order to fulfil the role of a good person."
"Hiswals AS, Marttila A, Malstam E, Macassa G (2017) Experiences of unemployment and well-being after job loss during economic recession: Results of a qualitative study in east central Sweden. Journal of Public Health Research 6(3): 995.",10.4081/jphr.2017.995,https://pmc.ncbi.nlm.nih.gov/articles/PMC5736997/,Unemployment experiences and well-being during economic recession,A changed financial situation impacting social life and consumption patterns,"The respondents described a poorer financial situation as tough to deal with and as creating worry, stress, and insecurity."
"Hiswals AS, Marttila A, Malstam E, Macassa G (2017) Experiences of unemployment and well-being after job loss during economic recession: Results of a qualitative study in east central Sweden. Journal of Public Health Research 6(3): 995.",10.4081/jphr.2017.995,https://pmc.ncbi.nlm.nih.gov/articles/PMC5736997/,Unemployment experiences and well-being during economic recession,Unemployment leading to isolation and loss of self-esteem,"As consequences of all the above emotions, the respondents expressed isolation and alienation."
"Hiswals AS, Marttila A, Malstam E, Macassa G (2017) Experiences of unemployment and well-being after job loss during economic recession: Results of a qualitative study in east central Sweden. Journal of Public Health Research 6(3): 995.",10.4081/jphr.2017.995,https://pmc.ncbi.nlm.nih.gov/articles/PMC5736997/,Unemployment experiences and well-being during economic recession,The search to feel well,"Activities, structure, and affiliation in other contexts had become very important for the respondents' mental well-being."
"Perich T, Ussher J, Parton C (2017) Is it menopause or bipolar: a qualitative study of the experience of menopause for women with bipolar disorder. BMC Women's Health 17: 110.",10.1186/s12905-017-0467-y,https://pmc.ncbi.nlm.nih.gov/articles/PMC5689207/,Menopause experiences in women with bipolar disorder,Constructions of mood change: menopause or bipolar disorder?,"The majority of women described experiencing mood changes around the time of menopause within the context of their bipolar disorder."
"Perich T, Ussher J, Parton C (2017) Is it menopause or bipolar: a qualitative study of the experience of menopause for women with bipolar disorder. BMC Women's Health 17: 110.",10.1186/s12905-017-0467-y,https://pmc.ncbi.nlm.nih.gov/articles/PMC5689207/,Menopause experiences in women with bipolar disorder,"Life events, bipolar disorder and menopause coming together","Many women described significant life events and menopause coming together, in combination shaping their construction and experience of their usual bipolar disorder symptoms."
"Perich T, Ussher J, Parton C (2017) Is it menopause or bipolar: a qualitative study of the experience of menopause for women with bipolar disorder. BMC Women's Health 17: 110.",10.1186/s12905-017-0467-y,https://pmc.ncbi.nlm.nih.gov/articles/PMC5689207/,Menopause experiences in women with bipolar disorder,Treatment choices for mood change during menopause,"The treatments that women sought during menopause depended on the way in which the women constructed their mood changes, bipolar disorder and medication effects."
"Hwang YI, Hagos A, Withall A, Hampton S, Snoyman P, Butler T (2024) Population ageing, incarceration and the growing digital divide: Understanding the effects of digital literacy inequity experienced by older people leaving prison. PLOS ONE 19(4): e0297482.",10.1371/journal.pone.0297482,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0297482,Digital literacy challenges for older people after prison release,Survival in a digital world,"Participants described post-release life as if entering a digital world; learning to use technology was not a choice, but a necessity."
"Hwang YI, Hagos A, Withall A, Hampton S, Snoyman P, Butler T (2024) Population ageing, incarceration and the growing digital divide: Understanding the effects of digital literacy inequity experienced by older people leaving prison. PLOS ONE 19(4): e0297482.",10.1371/journal.pone.0297482,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0297482,Digital literacy challenges for older people after prison release,Stranger in a foreign world,"This theme captured feelings of estrangement and falling behind in this digital world."
"Hwang YI, Hagos A, Withall A, Hampton S, Snoyman P, Butler T (2024) Population ageing, incarceration and the growing digital divide: Understanding the effects of digital literacy inequity experienced by older people leaving prison. PLOS ONE 19(4): e0297482.",10.1371/journal.pone.0297482,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0297482,Digital literacy challenges for older people after prison release,Overcoming your old self,"Participants struggled with the challenges of learning as an older person, as well as letting go of previous ways of life."
"Christensen MK, Nielsen KJS, O'Neill LD (2022) Embodied teacher identity: a qualitative study on practical sense as a basic pedagogical condition in times of Covid-19. Advances in Health Sciences Education 27(3): 577-603.",10.1007/s10459-022-10102-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC8889049/,Teacher identity disruption through loss of classroom presence during COVID-19,The teacher's sense of the classroom,"Using gut feeling about teaching dynamics as pedagogical guidance."
"Christensen MK, Nielsen KJS, O'Neill LD (2022) Embodied teacher identity: a qualitative study on practical sense as a basic pedagogical condition in times of Covid-19. Advances in Health Sciences Education 27(3): 577-603.",10.1007/s10459-022-10102-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC8889049/,Teacher identity disruption through loss of classroom presence during COVID-19,Non-verbal feedback from students,"Interpreting observable reactions for real-time instructional adjustments."
"Christensen MK, Nielsen KJS, O'Neill LD (2022) Embodied teacher identity: a qualitative study on practical sense as a basic pedagogical condition in times of Covid-19. Advances in Health Sciences Education 27(3): 577-603.",10.1007/s10459-022-10102-0,https://pmc.ncbi.nlm.nih.gov/articles/PMC8889049/,Teacher identity disruption through loss of classroom presence during COVID-19,Reciprocal visual contact between students and teachers,"Importance of eye contact for authentic teaching."
"Dingle GA, Cruwys T, Frings D (2015) Social identities as pathways into and out of addiction. Frontiers in Psychology 6: 1795.",10.3389/fpsyg.2015.01795,https://pmc.ncbi.nlm.nih.gov/articles/PMC4663247/,How social identities influence addiction onset and recovery,Loss of Positive Identities,"Participants held positive social identities prior to addiction and felt that these were lost as a result of, or alongside of, their increasing engagement in substance use."
"Dingle GA, Cruwys T, Frings D (2015) Social identities as pathways into and out of addiction. Frontiers in Psychology 6: 1795.",10.3389/fpsyg.2015.01795,https://pmc.ncbi.nlm.nih.gov/articles/PMC4663247/,How social identities influence addiction onset and recovery,Social Isolation and Gain of Identity with Addiction,"Participants described negative early life experiences and profound social isolation due to a lack of positive social connections and identities; substance using networks offered a sense of belonging and acceptance."
"Dingle GA, Cruwys T, Frings D (2015) Social identities as pathways into and out of addiction. Frontiers in Psychology 6: 1795.",10.3389/fpsyg.2015.01795,https://pmc.ncbi.nlm.nih.gov/articles/PMC4663247/,How social identities influence addiction onset and recovery,Development of a Recovery Identity,"Most participants described positive ties with other residents, a sense of belonging and acceptance within the community."
"Skilbred A, Strandbu A, Loland S (2024) Performing performance: young aspiring athletes' presentation of athletic identity. Frontiers in Sports and Active Living 6: 1383559.",10.3389/fspor.2024.1383559,https://pmc.ncbi.nlm.nih.gov/articles/PMC11374622/,Young athletes' presentations of athletic identity,I am a dutiful athlete,"The athletes describe a dutiful youth athlete as someone who embodies commitment, discipline, and respect both on and off the field."
"Skilbred A, Strandbu A, Loland S (2024) Performing performance: young aspiring athletes' presentation of athletic identity. Frontiers in Sports and Active Living 6: 1383559.",10.3389/fspor.2024.1383559,https://pmc.ncbi.nlm.nih.gov/articles/PMC11374622/,Young athletes' presentations of athletic identity,I must be unique,"Athletes' accounts demonstrate a quest for uniqueness, emphasising willingness and the importance of standing out in the group."
"Skilbred A, Strandbu A, Loland S (2024) Performing performance: young aspiring athletes' presentation of athletic identity. Frontiers in Sports and Active Living 6: 1383559.",10.3389/fspor.2024.1383559,https://pmc.ncbi.nlm.nih.gov/articles/PMC11374622/,Young athletes' presentations of athletic identity,We must be unique,"In addition to the presentations of individual exceptionality, there are several examples where the athletes express a collective uniqueness."
"Skilbred A, Strandbu A, Loland S (2024) Performing performance: young aspiring athletes' presentation of athletic identity. Frontiers in Sports and Active Living 6: 1383559.",10.3389/fspor.2024.1383559,https://pmc.ncbi.nlm.nih.gov/articles/PMC11374622/,Young athletes' presentations of athletic identity,I must have fun,"I must have fun is described as an important quality by many of the athletes; all athletes accentuate that there must be a certain level of fun, motivation, or joy in their involvement."
"Vandersman P, Chakraborty A, Rowley G, Tieman J (2025) I thought he had longer than that: family caregivers' experiences of grief, loss, and bereavement in residential aged care. BMC Palliative Care 24: 296.",10.1186/s12904-025-01929-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC12659058/,Family caregivers' grief experiences in residential aged care,Grief manifests early and is associated with the loss of caregiver role,"Grief was both deeply personal and shaped by cultural and familial contexts. Anticipatory grief began well before the resident's death, with transitions into care bringing a profound sense of loss."
"Vandersman P, Chakraborty A, Rowley G, Tieman J (2025) I thought he had longer than that: family caregivers' experiences of grief, loss, and bereavement in residential aged care. BMC Palliative Care 24: 296.",10.1186/s12904-025-01929-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC12659058/,Family caregivers' grief experiences in residential aged care,Grief and emotional strain arise in transition creating support needs,"The move into a residential aged care facility as a catalyst for an array of difficult emotions for families, including a sense of separation, loss, abandonment and guilt."
"Vandersman P, Chakraborty A, Rowley G, Tieman J (2025) I thought he had longer than that: family caregivers' experiences of grief, loss, and bereavement in residential aged care. BMC Palliative Care 24: 296.",10.1186/s12904-025-01929-6,https://pmc.ncbi.nlm.nih.gov/articles/PMC12659058/,Family caregivers' grief experiences in residential aged care,Inclusive after-death rituals support meaningful closure,"Shared activities and rituals in providing closure, facilitating healing, and offering both families and staff a meaningful way to say farewell to the resident after death."
"Speed D, Fowler K, Ingram L (2022) A random group of misfits or being part of something bigger? Exploring experiences of attending a non-religious congregation. Psychology of Religion and Spirituality 14(3): 384-393.",10.1037/rel0000425,https://pmc.ncbi.nlm.nih.gov/articles/PMC8925926/,Non-religious congregation (Sunday Assembly) members' experiences,Searching for Meaning and Community,"Participants sought social support, a sense of purpose, and belonging that might have been previously provided through religious involvement. They identified unmet psychological needs that they hoped might be fulfilled via Sunday Assembly."
"Speed D, Fowler K, Ingram L (2022) A random group of misfits or being part of something bigger? Exploring experiences of attending a non-religious congregation. Psychology of Religion and Spirituality 14(3): 384-393.",10.1037/rel0000425,https://pmc.ncbi.nlm.nih.gov/articles/PMC8925926/,Non-religious congregation (Sunday Assembly) members' experiences,Sunday Assembly as Protective of Mental Health,"Participants found attending Sunday Assembly to be protective of their mental health in different ways, functioning as a coping mechanism during difficult times and as a 'reset switch' to avoid negative thinking patterns."
"Speed D, Fowler K, Ingram L (2022) A random group of misfits or being part of something bigger? Exploring experiences of attending a non-religious congregation. Psychology of Religion and Spirituality 14(3): 384-393.",10.1037/rel0000425,https://pmc.ncbi.nlm.nih.gov/articles/PMC8925926/,Non-religious congregation (Sunday Assembly) members' experiences,Loneliness in a Crowd,"Captures participants' struggles with some of the social aspects of Sunday Assembly. While some enjoyed socializing, others found the unstructured social elements challenging, particularly those identifying as introverted or having communication difficulties."
"Best M, Butow P, Olver I (2016) Why do We Find It so Hard to Discuss Spirituality? A Qualitative Exploration of Attitudinal Barriers. Journal of Clinical Medicine 5(9): 77.",10.3390/jcm5090077,https://pmc.ncbi.nlm.nih.gov/articles/PMC5039480/,Doctors' barriers to discussing spirituality with cancer patients,Confusing spirituality with religion,"Participants described how both patients and doctors conflate these concepts, with rejection of religion sometimes blocking openness to spirituality discussions."
"Best M, Butow P, Olver I (2016) Why do We Find It so Hard to Discuss Spirituality? A Qualitative Exploration of Attitudinal Barriers. Journal of Clinical Medicine 5(9): 77.",10.3390/jcm5090077,https://pmc.ncbi.nlm.nih.gov/articles/PMC5039480/,Doctors' barriers to discussing spirituality with cancer patients,Peer pressure,"Doctors with faith reported experiencing disapproval from colleagues when discussing personal faith with patients, creating an uncomfortable professional environment."
"Best M, Butow P, Olver I (2016) Why do We Find It so Hard to Discuss Spirituality? A Qualitative Exploration of Attitudinal Barriers. Journal of Clinical Medicine 5(9): 77.",10.3390/jcm5090077,https://pmc.ncbi.nlm.nih.gov/articles/PMC5039480/,Doctors' barriers to discussing spirituality with cancer patients,Personal spirituality,"Physicians with strong personal faith recognized their worldview influences their approach, while remaining conscious of avoiding proselytizing."
"Best M, Butow P, Olver I (2016) Why do We Find It so Hard to Discuss Spirituality? A Qualitative Exploration of Attitudinal Barriers. Journal of Clinical Medicine 5(9): 77.",10.3390/jcm5090077,https://pmc.ncbi.nlm.nih.gov/articles/PMC5039480/,Doctors' barriers to discussing spirituality with cancer patients,Institutional factors,"The acceptability of spiritual discussions varied based on whether institutions were faith-based or secular, and whether chaplaincy services were available."
"Best M, Butow P, Olver I (2016) Why do We Find It so Hard to Discuss Spirituality? A Qualitative Exploration of Attitudinal Barriers. Journal of Clinical Medicine 5(9): 77.",10.3390/jcm5090077,https://pmc.ncbi.nlm.nih.gov/articles/PMC5039480/,Doctors' barriers to discussing spirituality with cancer patients,Historical factors,"The historical separation of science and spirituality since the Enlightenment created a medical environment where the spiritual side of patients was largely ignored."
"Van Niekerk L, Jacobs C, Rhoda A (2024) A qualitative exploration of community mobility experiences of wheelchair users. BMC Public Health 24: 711.",10.1186/s12889-024-18184-8,https://pmc.ncbi.nlm.nih.gov/articles/PMC10912954/,Wheelchair users' community mobility experiences in South Africa,"Knowledge, attitudes and actions","Knowledge gaps among taxi drivers, attitudinal barriers, and behavioral responses to wheelchair users in the community setting."
"Van Niekerk L, Jacobs C, Rhoda A (2024) A qualitative exploration of community mobility experiences of wheelchair users. BMC Public Health 24: 711.",10.1186/s12889-024-18184-8,https://pmc.ncbi.nlm.nih.gov/articles/PMC10912954/,Wheelchair users' community mobility experiences in South Africa,"Natural, manmade and mechanical environmental barriers","Encompasses natural obstacles like terrain, human-constructed infrastructure challenges, and vehicle design limitations affecting accessibility."
"Van Niekerk L, Jacobs C, Rhoda A (2024) A qualitative exploration of community mobility experiences of wheelchair users. BMC Public Health 24: 711.",10.1186/s12889-024-18184-8,https://pmc.ncbi.nlm.nih.gov/articles/PMC10912954/,Wheelchair users' community mobility experiences in South Africa,Health and safety concerns,"Covers weather-related risks, crime exposure, animal threats, dangerous driving practices, and lack of safety equipment in vehicles."
"Van Niekerk L, Jacobs C, Rhoda A (2024) A qualitative exploration of community mobility experiences of wheelchair users. BMC Public Health 24: 711.",10.1186/s12889-024-18184-8,https://pmc.ncbi.nlm.nih.gov/articles/PMC10912954/,Wheelchair users' community mobility experiences in South Africa,Poor community participation and quality of life,"Describes how mobility challenges prevented meaningful participation in valued community activities and affected overall wellbeing for users and caregivers."
"Padma Prasanna L, Etter K, White J, Wang N (2024) Healthcare Workers' Perceptions of Work-Related Stress and Burnout: Strategies and Barriers for Self-Care. Workplace Health & Safety 72(10): 428-439.",10.1177/21650799241269915,https://pmc.ncbi.nlm.nih.gov/articles/PMC11562276/,Healthcare workers' stress and burnout perceptions,Staff Shortages,"Describes difficulties from unfilled vacancies and staff turnover causing additional workload for remaining employees."
"Padma Prasanna L, Etter K, White J, Wang N (2024) Healthcare Workers' Perceptions of Work-Related Stress and Burnout: Strategies and Barriers for Self-Care. Workplace Health & Safety 72(10): 428-439.",10.1177/21650799241269915,https://pmc.ncbi.nlm.nih.gov/articles/PMC11562276/,Healthcare workers' stress and burnout perceptions,Coworker Conflict and Interactions,"Encompasses lateral violence, disrespectful behavior, gossiping, and lack of teamwork among colleagues."
"Padma Prasanna L, Etter K, White J, Wang N (2024) Healthcare Workers' Perceptions of Work-Related Stress and Burnout: Strategies and Barriers for Self-Care. Workplace Health & Safety 72(10): 428-439.",10.1177/21650799241269915,https://pmc.ncbi.nlm.nih.gov/articles/PMC11562276/,Healthcare workers' stress and burnout perceptions,Impacts of Work-Related Stress,"Addresses negative effects on personal life, mental health, and quality of patient care delivery."
"Padma Prasanna L, Etter K, White J, Wang N (2024) Healthcare Workers' Perceptions of Work-Related Stress and Burnout: Strategies and Barriers for Self-Care. Workplace Health & Safety 72(10): 428-439.",10.1177/21650799241269915,https://pmc.ncbi.nlm.nih.gov/articles/PMC11562276/,Healthcare workers' stress and burnout perceptions,Strategies to Mitigate Stress,"Includes self-care practices like exercise, therapy, mindfulness, hobbies, and social support networks."
"Padma Prasanna L, Etter K, White J, Wang N (2024) Healthcare Workers' Perceptions of Work-Related Stress and Burnout: Strategies and Barriers for Self-Care. Workplace Health & Safety 72(10): 428-439.",10.1177/21650799241269915,https://pmc.ncbi.nlm.nih.gov/articles/PMC11562276/,Healthcare workers' stress and burnout perceptions,Managing Stress and Burnout in the Workplace,"Covers organizational support mechanisms, both facilitators and barriers to accessing workplace wellness resources."
"Rollins AL, Kukla M, Morse GA, Davis L, Leiter M, Monroe-DeVita M, Flanagan ME, Salyers MP (2021) Organizational conditions that influence work engagement and burnout: a qualitative study of mental health workers. Psychiatric Rehabilitation Journal 44(4): 335-342.",10.1037/prj0000472,https://pmc.ncbi.nlm.nih.gov/articles/PMC8440452/,Mental health workers' burnout organizational conditions,Organizational culture focused on person-centered care over productivity and other performance metrics,"Clinicians maintain engagement when organizational culture prioritizes direct client care rather than administrative metrics, productivity benchmarks, and documentation demands."
"Rollins AL, Kukla M, Morse GA, Davis L, Leiter M, Monroe-DeVita M, Flanagan ME, Salyers MP (2021) Organizational conditions that influence work engagement and burnout: a qualitative study of mental health workers. Psychiatric Rehabilitation Journal 44(4): 335-342.",10.1037/prj0000472,https://pmc.ncbi.nlm.nih.gov/articles/PMC8440452/,Mental health workers' burnout organizational conditions,Robust management skills and practices to overcome bureaucracy,"Communication and leader accessibility, streamlining processes to address system inefficiencies, and empowering managers with good leadership skills that support autonomy, accountability, feedback implementation, and trusting relationships."
"Rollins AL, Kukla M, Morse GA, Davis L, Leiter M, Monroe-DeVita M, Flanagan ME, Salyers MP (2021) Organizational conditions that influence work engagement and burnout: a qualitative study of mental health workers. Psychiatric Rehabilitation Journal 44(4): 335-342.",10.1037/prj0000472,https://pmc.ncbi.nlm.nih.gov/articles/PMC8440452/,Mental health workers' burnout organizational conditions,Opportunities for professional development and self-care,"Addresses allowing time for training, mentoring, continuing education, and organizational support for self-care activities that help staff feel energized and manage work stress effectively."
"Bergin A, Eyre H, Donelan B, Hayes D, Johansson R, Mannion M, O'Mara M, Ragnaidh B (2022) Examining COVID-19 related occupational stress in teachers in Ireland through a qualitative study using a thematic analysis approach. International Journal of Qualitative Studies on Health and Well-being 17(1): 2080953.",10.1080/17482631.2022.2080953,https://pmc.ncbi.nlm.nih.gov/articles/PMC9230802/,Teachers' COVID-19 related occupational stress in Ireland,Overburdened,"Encompasses sources including a lack of boundaries around working hours, excessive workload and paperwork, unrealistic expectations, lack of resources and funding, and large class sizes."
"Bergin A, Eyre H, Donelan B, Hayes D, Johansson R, Mannion M, O'Mara M, Ragnaidh B (2022) Examining COVID-19 related occupational stress in teachers in Ireland through a qualitative study using a thematic analysis approach. International Journal of Qualitative Studies on Health and Well-being 17(1): 2080953.",10.1080/17482631.2022.2080953,https://pmc.ncbi.nlm.nih.gov/articles/PMC9230802/,Teachers' COVID-19 related occupational stress in Ireland,Abandoned,"Characterized by participants' perception that there was a strong sense of feeling they were abandoned during the pandemic, particularly by the Department of Education."
"Bergin A, Eyre H, Donelan B, Hayes D, Johansson R, Mannion M, O'Mara M, Ragnaidh B (2022) Examining COVID-19 related occupational stress in teachers in Ireland through a qualitative study using a thematic analysis approach. International Journal of Qualitative Studies on Health and Well-being 17(1): 2080953.",10.1080/17482631.2022.2080953,https://pmc.ncbi.nlm.nih.gov/articles/PMC9230802/,Teachers' COVID-19 related occupational stress in Ireland,Consequences,"Captures the outcomes and impacts on teachers, including the negative impact the pandemic had on them emotionally and mentally, expressions of desire to leave the profession, and desire for more wellbeing initiatives."
"Hayes B, Prihodova L, Walsh G, Doyle F, Doherty S (2019) Doctor, how can we help you? Qualitative interview study to identify key interventions to target burnout in hospital doctors. BMJ Open 9(9): e028275.",10.1136/bmjopen-2018-028275,https://pmc.ncbi.nlm.nih.gov/articles/PMC6731950/,Hospital doctors' burnout interventions in Ireland,"Well resourced, well rested and adequately replaced","Focuses on reviewing staffing levels and cover arrangements to facilitate statutory leave allocation and ensure full coverage during absences."
"Hayes B, Prihodova L, Walsh G, Doyle F, Doherty S (2019) Doctor, how can we help you? Qualitative interview study to identify key interventions to target burnout in hospital doctors. BMJ Open 9(9): e028275.",10.1136/bmjopen-2018-028275,https://pmc.ncbi.nlm.nih.gov/articles/PMC6731950/,Hospital doctors' burnout interventions in Ireland,Everyday psychological support,"Addresses integration of psychological support into doctors' working environment through debriefing, regular check-ins, and onsite psychological services."
"Hayes B, Prihodova L, Walsh G, Doyle F, Doherty S (2019) Doctor, how can we help you? Qualitative interview study to identify key interventions to target burnout in hospital doctors. BMJ Open 9(9): e028275.",10.1136/bmjopen-2018-028275,https://pmc.ncbi.nlm.nih.gov/articles/PMC6731950/,Hospital doctors' burnout interventions in Ireland,Education and the power of the recovered doctor,"Health promotion interventions which educate doctors at all career stages on the likelihood and risks of work stress and burnout, normalise their occurrence."
"Hayes B, Prihodova L, Walsh G, Doyle F, Doherty S (2019) Doctor, how can we help you? Qualitative interview study to identify key interventions to target burnout in hospital doctors. BMJ Open 9(9): e028275.",10.1136/bmjopen-2018-028275,https://pmc.ncbi.nlm.nih.gov/articles/PMC6731950/,Hospital doctors' burnout interventions in Ireland,"Self-care, boundaries and model behaviour","Training intervention emphasizing personal health responsibility, work-life boundaries, and modeling healthy habits for colleagues."
"Hayes B, Prihodova L, Walsh G, Doyle F, Doherty S (2019) Doctor, how can we help you? Qualitative interview study to identify key interventions to target burnout in hospital doctors. BMJ Open 9(9): e028275.",10.1136/bmjopen-2018-028275,https://pmc.ncbi.nlm.nih.gov/articles/PMC6731950/,Hospital doctors' burnout interventions in Ireland,Tuning in and reaching out,"Intervention designed to train doctors, particularly those in supervisory roles, on how to identify and support struggling colleagues."
"Hayes B, Prihodova L, Walsh G, Doyle F, Doherty S (2019) Doctor, how can we help you? Qualitative interview study to identify key interventions to target burnout in hospital doctors. BMJ Open 9(9): e028275.",10.1136/bmjopen-2018-028275,https://pmc.ncbi.nlm.nih.gov/articles/PMC6731950/,Hospital doctors' burnout interventions in Ireland,Effective line management for the sick doctor,"Training for clinical supervisors on supporting doctors through help-seeking, recovery, and return-to-work processes."
"Ladak LA, Walker D, Haw J, Aiken J, Carr T, Howell D, Sidani S, Bai YQ, Wickham ME, Grunau B, Rowe BH, Ho K (2024) The lived experience of long COVID: A qualitative study of mental health, quality of life, and coping. PLoS ONE 19(1): e0292630.",10.1371/journal.pone.0292630,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0292630,Long COVID patients' mental health and coping experiences,The Emotional Landscape of Long COVID,"Participants experienced declining emotional health tied to lingering, unpredictable physical and mental health symptoms."
"Ladak LA, Walker D, Haw J, Aiken J, Carr T, Howell D, Sidani S, Bai YQ, Wickham ME, Grunau B, Rowe BH, Ho K (2024) The lived experience of long COVID: A qualitative study of mental health, quality of life, and coping. PLoS ONE 19(1): e0292630.",10.1371/journal.pone.0292630,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0292630,Long COVID patients' mental health and coping experiences,New Limits to Daily Functioning,"Physical and cognitive symptoms made it difficult to complete daily activities and routines practiced prior to infection."
"Ladak LA, Walker D, Haw J, Aiken J, Carr T, Howell D, Sidani S, Bai YQ, Wickham ME, Grunau B, Rowe BH, Ho K (2024) The lived experience of long COVID: A qualitative study of mental health, quality of life, and coping. PLoS ONE 19(1): e0292630.",10.1371/journal.pone.0292630,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0292630,Long COVID patients' mental health and coping experiences,Grief and Loss of Former Identity,"Participants grieved their former self and experienced loss of work, relationships, hobbies, and other identity elements."
"Ladak LA, Walker D, Haw J, Aiken J, Carr T, Howell D, Sidani S, Bai YQ, Wickham ME, Grunau B, Rowe BH, Ho K (2024) The lived experience of long COVID: A qualitative study of mental health, quality of life, and coping. PLoS ONE 19(1): e0292630.",10.1371/journal.pone.0292630,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0292630,Long COVID patients' mental health and coping experiences,Long COVID-related Stigmatization,"Diverse experiences with stigma from others and self-stigma, manifested as negative beliefs about long COVID's existence and recovery pace."
"Ladak LA, Walker D, Haw J, Aiken J, Carr T, Howell D, Sidani S, Bai YQ, Wickham ME, Grunau B, Rowe BH, Ho K (2024) The lived experience of long COVID: A qualitative study of mental health, quality of life, and coping. PLoS ONE 19(1): e0292630.",10.1371/journal.pone.0292630,https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0292630,Long COVID patients' mental health and coping experiences,Learning to Cope with Persisting Symptoms,"Individuals employed informal coping mechanisms including mindset changes, physical exercise, meditation, and peer support networks."
"Ofoegbu NE, Boreham K, Preda A, Bailey C, Trusz SG, Cary M, Gorfine G, Cabot-Barnes E, Williams J, Henderson C (2025) Kids have really no way to access support, especially without their parents knowing: a qualitative study of access to mental health support among adolescents. BMC Public Health 25: 1857.",10.1186/s12889-025-22085-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12443008/,Adolescents' access to mental health support barriers,Perceived inability to understand and/or help,"Reluctance to seek help for mental health concerns because of doubt that potential helpers--including school adults, parents/guardians, and health professionals--would be able to understand their experiences and help them."
"Ofoegbu NE, Boreham K, Preda A, Bailey C, Trusz SG, Cary M, Gorfine G, Cabot-Barnes E, Williams J, Henderson C (2025) Kids have really no way to access support, especially without their parents knowing: a qualitative study of access to mental health support among adolescents. BMC Public Health 25: 1857.",10.1186/s12889-025-22085-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12443008/,Adolescents' access to mental health support barriers,Discomfort disclosing concerns,"Feelings of discomfort, uncertainty, and embarrassment about initially disclosing mental health concerns with a potential helper."
"Ofoegbu NE, Boreham K, Preda A, Bailey C, Trusz SG, Cary M, Gorfine G, Cabot-Barnes E, Williams J, Henderson C (2025) Kids have really no way to access support, especially without their parents knowing: a qualitative study of access to mental health support among adolescents. BMC Public Health 25: 1857.",10.1186/s12889-025-22085-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12443008/,Adolescents' access to mental health support barriers,Privacy and confidentiality concerns,"Hesitance or inability to seek help for mental health concerns because of not wanting parents or peers to find out, particularly in relation to help seeking from adults at school."
"Ofoegbu NE, Boreham K, Preda A, Bailey C, Trusz SG, Cary M, Gorfine G, Cabot-Barnes E, Williams J, Henderson C (2025) Kids have really no way to access support, especially without their parents knowing: a qualitative study of access to mental health support among adolescents. BMC Public Health 25: 1857.",10.1186/s12889-025-22085-3,https://pmc.ncbi.nlm.nih.gov/articles/PMC12443008/,Adolescents' access to mental health support barriers,Capacity to access formal support,"Capacity to access formal help from mental health professionals and services in terms of tangible administrative and logistical factors (wait lists, transportation, costs, scheduling) and knowledge of services and resources."
"Hall NE, Aguilar-Lozano JJ, White LA, Hebert MR (2025) Contributors to positive mental health among youth: a qualitative study in British Columbia, Canada. BMC Public Health 25: 1612.",10.1186/s12889-025-22821-4,https://pmc.ncbi.nlm.nih.gov/articles/PMC12304415/,Youth contributors to positive mental health in Canada,Youth perspectives on mental health as shaped by broader social discourses,"Captures how participants articulated varying perspectives about factors shaping mental health, ranging from ideas foregrounding personal responsibility to those underscoring the influence of social and political contexts."
"Hall NE, Aguilar-Lozano JJ, White LA, Hebert MR (2025) Contributors to positive mental health among youth: a qualitative study in British Columbia, Canada. BMC Public Health 25: 1612.",10.1186/s12889-025-22821-4,https://pmc.ncbi.nlm.nih.gov/articles/PMC12304415/,Youth contributors to positive mental health in Canada,Cultivating belonging,"Emphasizes the crucial role of community and belonging in enhancing capacity and promoting mental, emotional, physical, and spiritual wellbeing, including the value of friendships, familial relationships, and access to communal spaces."
"Hall NE, Aguilar-Lozano JJ, White LA, Hebert MR (2025) Contributors to positive mental health among youth: a qualitative study in British Columbia, Canada. BMC Public Health 25: 1612.",10.1186/s12889-025-22821-4,https://pmc.ncbi.nlm.nih.gov/articles/PMC12304415/,Youth contributors to positive mental health in Canada,Creating meaning--speaking up and giving back,"Reflects how participants demonstrated awareness of inequities and sought to fill gaps through advocacy and volunteering, finding that actions directed towards the welfare of others could simultaneously promote personal wellbeing."
"Solberg A, Dahl BM, Gilbride V, Hynes P, Haaland-Overby M (2023) Opening up a well of emotions: A qualitative study of men's emotional experiences in the transition to fatherhood. Nursing Open 10(3): 1482-1492.",10.1002/nop2.1482,https://pmc.ncbi.nlm.nih.gov/articles/PMC10006604/,Fathers' emotional experiences during transition to fatherhood,From self-focus to family perspective,"Fathers described how having a child made them view life differently and changed what they considered to be important in life, alongside a sense of grief and loss of identity and the development of family love."
"Solberg A, Dahl BM, Gilbride V, Hynes P, Haaland-Overby M (2023) Opening up a well of emotions: A qualitative study of men's emotional experiences in the transition to fatherhood. Nursing Open 10(3): 1482-1492.",10.1002/nop2.1482,https://pmc.ncbi.nlm.nih.gov/articles/PMC10006604/,Fathers' emotional experiences during transition to fatherhood,Emotional vulnerability,"Fathers experienced great emotional strain, feeling more sensitive and vulnerable, with increased anxiety and fear. Many felt excluded and constrained by the strong bond between the mother and child."
"Solberg A, Dahl BM, Gilbride V, Hynes P, Haaland-Overby M (2023) Opening up a well of emotions: A qualitative study of men's emotional experiences in the transition to fatherhood. Nursing Open 10(3): 1482-1492.",10.1002/nop2.1482,https://pmc.ncbi.nlm.nih.gov/articles/PMC10006604/,Fathers' emotional experiences during transition to fatherhood,From insecurity to self-assurance,"The father-child bond intensified as the child got older and developed the ability to engage more directly. Paternity leave was positive and a turning point in fathers' relationship with their child and self-confidence as a caregiver."
"Hadfield H, Wittkowski A (2021) Women's Experiences of Seeking and Receiving Psychological Support Following First-Time Childbirth. Journal of Advanced Nursing 77(8): 3453-3465.",10.1111/jan.14918,https://pmc.ncbi.nlm.nih.gov/articles/PMC8396053/,First-time mothers' postnatal social support experiences,Praise and Validation,"Mothers valued being affirmed by health professionals that they were doing things correctly and that having questions was normal."
"Hadfield H, Wittkowski A (2021) Women's Experiences of Seeking and Receiving Psychological Support Following First-Time Childbirth. Journal of Advanced Nursing 77(8): 3453-3465.",10.1111/jan.14918,https://pmc.ncbi.nlm.nih.gov/articles/PMC8396053/,First-time mothers' postnatal social support experiences,Criticism and Undermining,"Mothers reported negative feedback that made them feel judged, describing experiences where professionals' comments or body language left them feeling like a little kid that had been told off."
"Hadfield H, Wittkowski A (2021) Women's Experiences of Seeking and Receiving Psychological Support Following First-Time Childbirth. Journal of Advanced Nursing 77(8): 3453-3465.",10.1111/jan.14918,https://pmc.ncbi.nlm.nih.gov/articles/PMC8396053/,First-time mothers' postnatal social support experiences,Made to Feel Powerless,"Some mothers experienced professionals acting as though they had power over the mother's and baby's bodies that the mother had no right to challenge, including procedures without informed consent."
"Hadfield H, Wittkowski A (2021) Women's Experiences of Seeking and Receiving Psychological Support Following First-Time Childbirth. Journal of Advanced Nursing 77(8): 3453-3465.",10.1111/jan.14918,https://pmc.ncbi.nlm.nih.gov/articles/PMC8396053/,First-time mothers' postnatal social support experiences,Is this normal?,"Mothers frequently asked professionals whether aspects of their health or baby's condition were normal and valued ready access to professionals who could answer their questions."
"Hadfield H, Wittkowski A (2021) Women's Experiences of Seeking and Receiving Psychological Support Following First-Time Childbirth. Journal of Advanced Nursing 77(8): 3453-3465.",10.1111/jan.14918,https://pmc.ncbi.nlm.nih.gov/articles/PMC8396053/,First-time mothers' postnatal social support experiences,Need for Proactive Information,"Mothers wanted health professionals to provide information in advance about key postnatal problems and typical scenarios for mother and baby, including crying, sleep and feeding."
"Hadfield H, Wittkowski A (2021) Women's Experiences of Seeking and Receiving Psychological Support Following First-Time Childbirth. Journal of Advanced Nursing 77(8): 3453-3465.",10.1111/jan.14918,https://pmc.ncbi.nlm.nih.gov/articles/PMC8396053/,First-time mothers' postnatal social support experiences,Confusion about Postnatal Care,"Mothers lacked clear orientation to hospital wards and community services, not understanding what to do in this unfamiliar situation or how to access support."
"Hadfield H, Wittkowski A (2021) Women's Experiences of Seeking and Receiving Psychological Support Following First-Time Childbirth. Journal of Advanced Nursing 77(8): 3453-3465.",10.1111/jan.14918,https://pmc.ncbi.nlm.nih.gov/articles/PMC8396053/,First-time mothers' postnatal social support experiences,Treated as an Individual and Heard,"Some mothers received personalised and responsive postnatal care which made them feel liked, valued and cared about through attentive listening."
"Hadfield H, Wittkowski A (2021) Women's Experiences of Seeking and Receiving Psychological Support Following First-Time Childbirth. Journal of Advanced Nursing 77(8): 3453-3465.",10.1111/jan.14918,https://pmc.ncbi.nlm.nih.gov/articles/PMC8396053/,First-time mothers' postnatal social support experiences,Impersonal Care and Being Ignored,"Many mothers experienced inattentive, functional care, particularly on busy postnatal wards where concerns were dismissed."
"Aslam T, Saeed H, Shaukat S, Khan S, Hassan M, Mehdi SM (2023) Chronic Illness Patients' Perceptions of Quality of Care During Hospitalization: A Qualitative Study. Cureus 15(1): e33432.",10.7759/cureus.33432,https://pmc.ncbi.nlm.nih.gov/articles/PMC9834415/,Chronic illness patients' perceptions of quality of care,Defining Quality of Care,"Participants interpreted this term differently based on experiences, associating it mostly with healthcare providers."
"Aslam T, Saeed H, Shaukat S, Khan S, Hassan M, Mehdi SM (2023) Chronic Illness Patients' Perceptions of Quality of Care During Hospitalization: A Qualitative Study. Cureus 15(1): e33432.",10.7759/cureus.33432,https://pmc.ncbi.nlm.nih.gov/articles/PMC9834415/,Chronic illness patients' perceptions of quality of care,Aspects Related to Healthcare Providers,"Participants prioritized attitudes, skills, and competencies, with subthemes covering attitudes/skills, communication concerns, and insufficient advice."
"Aslam T, Saeed H, Shaukat S, Khan S, Hassan M, Mehdi SM (2023) Chronic Illness Patients' Perceptions of Quality of Care During Hospitalization: A Qualitative Study. Cureus 15(1): e33432.",10.7759/cureus.33432,https://pmc.ncbi.nlm.nih.gov/articles/PMC9834415/,Chronic illness patients' perceptions of quality of care,Unmet Care Needs,"Conceptualized as the difference between the necessary services to be provided and the actual services received, focusing on continuity and coordination gaps."
"Aslam T, Saeed H, Shaukat S, Khan S, Hassan M, Mehdi SM (2023) Chronic Illness Patients' Perceptions of Quality of Care During Hospitalization: A Qualitative Study. Cureus 15(1): e33432.",10.7759/cureus.33432,https://pmc.ncbi.nlm.nih.gov/articles/PMC9834415/,Chronic illness patients' perceptions of quality of care,Patients' Involvement in Healthcare Decisions,"Explored patient participation as an equal partner in treatment planning and healthcare choices."
"Aslam T, Saeed H, Shaukat S, Khan S, Hassan M, Mehdi SM (2023) Chronic Illness Patients' Perceptions of Quality of Care During Hospitalization: A Qualitative Study. Cureus 15(1): e33432.",10.7759/cureus.33432,https://pmc.ncbi.nlm.nih.gov/articles/PMC9834415/,Chronic illness patients' perceptions of quality of care,Care Expectations and Outcomes,"Addressed participant expectations about healthcare quality and their satisfaction levels when needs were met."
"Cullen B, Pownall J, Cummings J, Baylan S, Broomfield N, Haig C, Kersel D, Murray H, Evans JJ (2020) Building Wellbeing in People With Chronic Conditions: A Qualitative Evaluation of an 8-Week Positive Psychotherapy Intervention for People Living With an Acquired Brain Injury. Frontiers in Psychology 11: 66.",10.3389/fpsyg.2020.00066,https://pmc.ncbi.nlm.nih.gov/articles/PMC7006056/,Positive psychotherapy for acquired brain injury,Empowerment,"Captures an overall sense of empowerment experienced by both mentors and participants through enhanced confidence, achievement, and transformation."
"Cullen B, Pownall J, Cummings J, Baylan S, Broomfield N, Haig C, Kersel D, Murray H, Evans JJ (2020) Building Wellbeing in People With Chronic Conditions: A Qualitative Evaluation of an 8-Week Positive Psychotherapy Intervention for People Living With an Acquired Brain Injury. Frontiers in Psychology 11: 66.",10.3389/fpsyg.2020.00066,https://pmc.ncbi.nlm.nih.gov/articles/PMC7006056/,Positive psychotherapy for acquired brain injury,Social Opportunity,"Involved participants' sense of better understanding of the self, relatedness with others within the group context."
"Cullen B, Pownall J, Cummings J, Baylan S, Broomfield N, Haig C, Kersel D, Murray H, Evans JJ (2020) Building Wellbeing in People With Chronic Conditions: A Qualitative Evaluation of an 8-Week Positive Psychotherapy Intervention for People Living With an Acquired Brain Injury. Frontiers in Psychology 11: 66.",10.3389/fpsyg.2020.00066,https://pmc.ncbi.nlm.nih.gov/articles/PMC7006056/,Positive psychotherapy for acquired brain injury,Coping,"Encompassed positive reframing and mobilization of character strengths as adaptive strategies."
"Cullen B, Pownall J, Cummings J, Baylan S, Broomfield N, Haig C, Kersel D, Murray H, Evans JJ (2020) Building Wellbeing in People With Chronic Conditions: A Qualitative Evaluation of an 8-Week Positive Psychotherapy Intervention for People Living With an Acquired Brain Injury. Frontiers in Psychology 11: 66.",10.3389/fpsyg.2020.00066,https://pmc.ncbi.nlm.nih.gov/articles/PMC7006056/,Positive psychotherapy for acquired brain injury,Cultivating Positive Emotion,"Described how positive emotions were cultivated when experiencing empowerment, social opportunity, coping and consolidation of skills."
"Cullen B, Pownall J, Cummings J, Baylan S, Broomfield N, Haig C, Kersel D, Murray H, Evans JJ (2020) Building Wellbeing in People With Chronic Conditions: A Qualitative Evaluation of an 8-Week Positive Psychotherapy Intervention for People Living With an Acquired Brain Injury. Frontiers in Psychology 11: 66.",10.3389/fpsyg.2020.00066,https://pmc.ncbi.nlm.nih.gov/articles/PMC7006056/,Positive psychotherapy for acquired brain injury,Barriers,"Captured challenges including stage in recovery and accessibility and location difficulties."
"Bahrami M, Dehdashti A, Karami M, Zamani-Alavijeh F (2020) Exploring the challenges of professional identity formation in clinical education environment: A qualitative study. Journal of Education and Health Promotion 9: 54.",10.4103/jehp.jehp_557_19,https://pmc.ncbi.nlm.nih.gov/articles/PMC6946943/,Professional identity formation challenges in clinical education,Instability of Professional Commitment,"Challenges where weakness in awareness and compliance with the professionalism principles were determined as a basic reason of destabilization of professional identity, including ignorance towards excellence, lack of accountability, lack of integrity, and disrespectful relationships."
"Bahrami M, Dehdashti A, Karami M, Zamani-Alavijeh F (2020) Exploring the challenges of professional identity formation in clinical education environment: A qualitative study. Journal of Education and Health Promotion 9: 54.",10.4103/jehp.jehp_557_19,https://pmc.ncbi.nlm.nih.gov/articles/PMC6946943/,Professional identity formation challenges in clinical education,Patient-Centeredness as Missing Loop Care,"Characterized by inappropriate approaches to patient interactions and rights, including inappropriate relationship with the patient and ignorance of patient's rights regarding financial status, mental state, education needs, and life conditions."
"Bahrami M, Dehdashti A, Karami M, Zamani-Alavijeh F (2020) Exploring the challenges of professional identity formation in clinical education environment: A qualitative study. Journal of Education and Health Promotion 9: 54.",10.4103/jehp.jehp_557_19,https://pmc.ncbi.nlm.nih.gov/articles/PMC6946943/,Professional identity formation challenges in clinical education,Inappropriate Conductive Context,"Described systemic barriers within educational environments, including weakness in the system's infrastructure and lack of different role models on principles of professional behavior."
"Sherlock A, Sherlock K, Turner J, Sherlock-Brown H, Sherlock Z (2023) Exploring the Impact of Social Media on Anxiety Among University Students in the United Kingdom: Qualitative Study. JMIR Formative Research 7: e43253.",10.2196/43253,https://pmc.ncbi.nlm.nih.gov/articles/PMC10337317/,Social media's impact on anxiety in UK university students,Social Connections,"Connect with friends and family and Communities--social media enables students to maintain relationships and find supportive communities, decreasing anxiety."
"Sherlock A, Sherlock K, Turner J, Sherlock-Brown H, Sherlock Z (2023) Exploring the Impact of Social Media on Anxiety Among University Students in the United Kingdom: Qualitative Study. JMIR Formative Research 7: e43253.",10.2196/43253,https://pmc.ncbi.nlm.nih.gov/articles/PMC10337317/,Social media's impact on anxiety in UK university students,Positive Experiences Associated With Social Media Usage,"Positive validation and Positive content--receiving affirming interactions and consuming uplifting material decreases anxiety."
"Sherlock A, Sherlock K, Turner J, Sherlock-Brown H, Sherlock Z (2023) Exploring the Impact of Social Media on Anxiety Among University Students in the United Kingdom: Qualitative Study. JMIR Formative Research 7: e43253.",10.2196/43253,https://pmc.ncbi.nlm.nih.gov/articles/PMC10337317/,Social media's impact on anxiety in UK university students,Escapism,"Distraction and Relief--social media provides a means to temporarily escape from stressful circumstances, decreasing anxiety."
"Sherlock A, Sherlock K, Turner J, Sherlock-Brown H, Sherlock Z (2023) Exploring the Impact of Social Media on Anxiety Among University Students in the United Kingdom: Qualitative Study. JMIR Formative Research 7: e43253.",10.2196/43253,https://pmc.ncbi.nlm.nih.gov/articles/PMC10337317/,Social media's impact on anxiety in UK university students,Comparison,"Comparison of life and Comparison of body type--evaluating oneself against others' curated content increases anxiety."
"Sherlock A, Sherlock K, Turner J, Sherlock-Brown H, Sherlock Z (2023) Exploring the Impact of Social Media on Anxiety Among University Students in the United Kingdom: Qualitative Study. JMIR Formative Research 7: e43253.",10.2196/43253,https://pmc.ncbi.nlm.nih.gov/articles/PMC10337317/,Social media's impact on anxiety in UK university students,FOMO,"The fear of missing out--perception of missing experiences others are having, leading to increased anxiety."
"Sherlock A, Sherlock K, Turner J, Sherlock-Brown H, Sherlock Z (2023) Exploring the Impact of Social Media on Anxiety Among University Students in the United Kingdom: Qualitative Study. JMIR Formative Research 7: e43253.",10.2196/43253,https://pmc.ncbi.nlm.nih.gov/articles/PMC10337317/,Social media's impact on anxiety in UK university students,Procrastination,"Students engaging in social media while postponing academic or daily tasks, increasing anxiety about unfinished work."
"Sherlock A, Sherlock K, Turner J, Sherlock-Brown H, Sherlock Z (2023) Exploring the Impact of Social Media on Anxiety Among University Students in the United Kingdom: Qualitative Study. JMIR Formative Research 7: e43253.",10.2196/43253,https://pmc.ncbi.nlm.nih.gov/articles/PMC10337317/,Social media's impact on anxiety in UK university students,Stress,"Feeling overwhelmed and Overthinking interactions--social media creates additional sources of stress that increase anxiety."
"Sherlock A, Sherlock K, Turner J, Sherlock-Brown H, Sherlock Z (2023) Exploring the Impact of Social Media on Anxiety Among University Students in the United Kingdom: Qualitative Study. JMIR Formative Research 7: e43253.",10.2196/43253,https://pmc.ncbi.nlm.nih.gov/articles/PMC10337317/,Social media's impact on anxiety in UK university students,Negative Experiences,"Disturbing and harmful content, Cyberbullying, and Judgment by others--negative interactions on social media increase anxiety."
"Igarashi H, Kurth M, Lee H, Choun S (2022) Process of inner change in advanced age: a qualitative study of older adults in their early 90s. BMC Geriatrics 22: 967.",10.1186/s12877-022-03649-x,https://pmc.ncbi.nlm.nih.gov/articles/PMC9733006/,Inner change process in adults in their early 90s,Reality of aging,"Participants faced irreversible aging effects, including physical/cognitive decline, regret over unachieved goals, loneliness from loss of social networks, and feeling tired of life."
"Igarashi H, Kurth M, Lee H, Choun S (2022) Process of inner change in advanced age: a qualitative study of older adults in their early 90s. BMC Geriatrics 22: 967.",10.1186/s12877-022-03649-x,https://pmc.ncbi.nlm.nih.gov/articles/PMC9733006/,Inner change process in adults in their early 90s,Seeking emptiness of the mind,"Older adults attempted to separate themselves from negative thoughts by eliminating distractions and following daily routines, seeking inner peace through mental detachment."
"Igarashi H, Kurth M, Lee H, Choun S (2022) Process of inner change in advanced age: a qualitative study of older adults in their early 90s. BMC Geriatrics 22: 967.",10.1186/s12877-022-03649-x,https://pmc.ncbi.nlm.nih.gov/articles/PMC9733006/,Inner change process in adults in their early 90s,Still moving on,"Participants accepted death as natural, adopted a new mindset focused on gratitude, concentrated on remaining abilities, and desired to remain socially useful to others."
"Bing-Jonsson PC, Slind GK, Olsen RM (2023) Transition of care from hospital to home for older people with chronic diseases: a qualitative study of older patients' and health care providers' perspectives. BMC Health Services Research 23: 509.",10.1186/s12913-023-09500-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC10174044/,Hospital-to-home care transition for older adults with chronic diseases,Attitude and attributes,"Personal characteristics and mindsets that serve as both facilitators and barriers to care transitions for older adults."
"Bing-Jonsson PC, Slind GK, Olsen RM (2023) Transition of care from hospital to home for older people with chronic diseases: a qualitative study of older patients' and health care providers' perspectives. BMC Health Services Research 23: 509.",10.1186/s12913-023-09500-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC10174044/,Hospital-to-home care transition for older adults with chronic diseases,Better interpersonal relationships and communication between HCPs and patients,"The importance of maintaining trusting relationships and clear communication to support successful transitions."
"Bing-Jonsson PC, Slind GK, Olsen RM (2023) Transition of care from hospital to home for older people with chronic diseases: a qualitative study of older patients' and health care providers' perspectives. BMC Health Services Research 23: 509.",10.1186/s12913-023-09500-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC10174044/,Hospital-to-home care transition for older adults with chronic diseases,Improved Coordination of Healthcare Services Is Needed,"The necessity for better coordination among care providers across different healthcare facilities and settings."
"Bing-Jonsson PC, Slind GK, Olsen RM (2023) Transition of care from hospital to home for older people with chronic diseases: a qualitative study of older patients' and health care providers' perspectives. BMC Health Services Research 23: 509.",10.1186/s12913-023-09500-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC10174044/,Hospital-to-home care transition for older adults with chronic diseases,Availability of resources and accessibility of services,"The presence of adequate medical resources and accessible follow-up care services after hospital discharge."
"Bing-Jonsson PC, Slind GK, Olsen RM (2023) Transition of care from hospital to home for older people with chronic diseases: a qualitative study of older patients' and health care providers' perspectives. BMC Health Services Research 23: 509.",10.1186/s12913-023-09500-w,https://pmc.ncbi.nlm.nih.gov/articles/PMC10174044/,Hospital-to-home care transition for older adults with chronic diseases,Policy and environment fit,"The alignment between healthcare policies and the cultural and operational environment where transitional care is implemented."
"Titlestad KB, Lindeman SK, Lund H, Dyregrov K (2020) How Do Drug-Death-Bereaved Parents Adjust to Life Without the Deceased? A Qualitative Study. Omega--Journal of Death and Dying 84(1): 283-303.",10.1177/0030222820923168,https://pmc.ncbi.nlm.nih.gov/articles/PMC7418270/,Drug-death-bereaved parents' adjustment to life,Processing Grief Emotions,"Connected to ruminating about guilt, reflections on blaming others, and adaptation to external triggers as parents work through their emotional response to loss."
"Titlestad KB, Lindeman SK, Lund H, Dyregrov K (2020) How Do Drug-Death-Bereaved Parents Adjust to Life Without the Deceased? A Qualitative Study. Omega--Journal of Death and Dying 84(1): 283-303.",10.1177/0030222820923168,https://pmc.ncbi.nlm.nih.gov/articles/PMC7418270/,Drug-death-bereaved parents' adjustment to life,Proactive Coping,"Four active sets of strategies: cognitive strategies, communication strategies, craving knowledge, and returning to day-to-day activities."
"Titlestad KB, Lindeman SK, Lund H, Dyregrov K (2020) How Do Drug-Death-Bereaved Parents Adjust to Life Without the Deceased? A Qualitative Study. Omega--Journal of Death and Dying 84(1): 283-303.",10.1177/0030222820923168,https://pmc.ncbi.nlm.nih.gov/articles/PMC7418270/,Drug-death-bereaved parents' adjustment to life,Giving and Receiving Support and Assistance,"Reflects external circumstances that parents experienced which strengthened their ability to adjust to life, as well as reactions to lack of help. Close networks were most helpful, though networks narrowed over time."
"Spillane A, Larkin C, Corcoran P, Matvienko-Sikar K, Riordan F, Arensman E (2019) How suicide-bereaved family members experience the inquest process: a qualitative study using thematic analysis. International Journal of Qualitative Studies on Health and Well-being 14(1): 1563430.",10.1080/17482631.2018.1563430,https://pmc.ncbi.nlm.nih.gov/articles/PMC6352946/,Suicide-bereaved family members' inquest experiences,Inquest as fearfully unknown,"A sense of foreboding or apprehension of the inquest largely driven by a lack of information about the inquest and its processes."
"Spillane A, Larkin C, Corcoran P, Matvienko-Sikar K, Riordan F, Arensman E (2019) How suicide-bereaved family members experience the inquest process: a qualitative study using thematic analysis. International Journal of Qualitative Studies on Health and Well-being 14(1): 1563430.",10.1080/17482631.2018.1563430,https://pmc.ncbi.nlm.nih.gov/articles/PMC6352946/,Suicide-bereaved family members' inquest experiences,Structural processes of the inquest,"Participants found some structural aspects of the inquest distressing, such as the timing and having to hear graphic evidence about the circumstances of the death."
"Spillane A, Larkin C, Corcoran P, Matvienko-Sikar K, Riordan F, Arensman E (2019) How suicide-bereaved family members experience the inquest process: a qualitative study using thematic analysis. International Journal of Qualitative Studies on Health and Well-being 14(1): 1563430.",10.1080/17482631.2018.1563430,https://pmc.ncbi.nlm.nih.gov/articles/PMC6352946/,Suicide-bereaved family members' inquest experiences,Enduring public and private pain to obtain answers,"Participants found the public nature of the inquest distressing. Many felt inquests should be private, especially given the very personal nature of information shared about the deceased."
"Spillane A, Larkin C, Corcoran P, Matvienko-Sikar K, Riordan F, Arensman E (2019) How suicide-bereaved family members experience the inquest process: a qualitative study using thematic analysis. International Journal of Qualitative Studies on Health and Well-being 14(1): 1563430.",10.1080/17482631.2018.1563430,https://pmc.ncbi.nlm.nih.gov/articles/PMC6352946/,Suicide-bereaved family members' inquest experiences,Gaining answers and making sense,"Participants sometimes obtained clarity about their family member's death, providing closure through learning new information and understanding the nature of the death."
"Thedinga HK, Zehl R, Thiel A (2024) Exploring Changes in Barriers and Facilitators for Physical Activity during the Retirement Transition: A Qualitative Interview Study Based on the Behavior Change Wheel. International Journal of Environmental Research and Public Health 21(9): 1221.",10.3390/ijerph21091221,https://pmc.ncbi.nlm.nih.gov/articles/PMC11419837/,Physical activity barriers and facilitators during retirement transition,Changes in time availability and time structure,"Increased free time led to procrastination for some, while others appreciated more time for sports and flexibility to plan activities based on weather conditions."
"Thedinga HK, Zehl R, Thiel A (2024) Exploring Changes in Barriers and Facilitators for Physical Activity during the Retirement Transition: A Qualitative Interview Study Based on the Behavior Change Wheel. International Journal of Environmental Research and Public Health 21(9): 1221.",10.3390/ijerph21091221,https://pmc.ncbi.nlm.nih.gov/articles/PMC11419837/,Physical activity barriers and facilitators during retirement transition,Emotional/mental changes,"Barriers included belief that reduced PA is allowed after retirement. Facilitators included how decreased feeling of being useful (identity as a working person is lost) leads to uptake of new activities."
"Thedinga HK, Zehl R, Thiel A (2024) Exploring Changes in Barriers and Facilitators for Physical Activity during the Retirement Transition: A Qualitative Interview Study Based on the Behavior Change Wheel. International Journal of Environmental Research and Public Health 21(9): 1221.",10.3390/ijerph21091221,https://pmc.ncbi.nlm.nih.gov/articles/PMC11419837/,Physical activity barriers and facilitators during retirement transition,Social changes,"More time spent with grandchildren competes for time for physical activity, while increased desire to expand social network and more active time with family serve as facilitators."
"Reinke LF, Slatore CG, Uman J, Udris EM, Moss BR, Engelberg RA, Au DH (2015) Patient-Clinician Communication About End-of-Life Care Topics: Is Anyone Talking to Patients With Chronic Obstructive Pulmonary Disease? Journal of Palliative Medicine 18(2): 130-136.",10.1089/jpm.2014.0181,https://pmc.ncbi.nlm.nih.gov/articles/PMC4298987/,Unmet healthcare needs in hospitalized COPD patients,Understanding of Disease (Diagnosis Severity and Prognosis),"Most participants could correctly identify their diagnosis as COPD and perceived that it was worsening over time."
"Reinke LF, Slatore CG, Uman J, Udris EM, Moss BR, Engelberg RA, Au DH (2015) Patient-Clinician Communication About End-of-Life Care Topics: Is Anyone Talking to Patients With Chronic Obstructive Pulmonary Disease? Journal of Palliative Medicine 18(2): 130-136.",10.1089/jpm.2014.0181,https://pmc.ncbi.nlm.nih.gov/articles/PMC4298987/,Unmet healthcare needs in hospitalized COPD patients,Uncontrolled Symptoms,"Breathlessness was universal. Cough, pain, and fatigue were present in greater than half of participants."
"Reinke LF, Slatore CG, Uman J, Udris EM, Moss BR, Engelberg RA, Au DH (2015) Patient-Clinician Communication About End-of-Life Care Topics: Is Anyone Talking to Patients With Chronic Obstructive Pulmonary Disease? Journal of Palliative Medicine 18(2): 130-136.",10.1089/jpm.2014.0181,https://pmc.ncbi.nlm.nih.gov/articles/PMC4298987/,Unmet healthcare needs in hospitalized COPD patients,Physical Limitations,"Physical activities were identified as challenging by all participants. Every action must be planned, and everyday activities were difficult."
"Reinke LF, Slatore CG, Uman J, Udris EM, Moss BR, Engelberg RA, Au DH (2015) Patient-Clinician Communication About End-of-Life Care Topics: Is Anyone Talking to Patients With Chronic Obstructive Pulmonary Disease? Journal of Palliative Medicine 18(2): 130-136.",10.1089/jpm.2014.0181,https://pmc.ncbi.nlm.nih.gov/articles/PMC4298987/,Unmet healthcare needs in hospitalized COPD patients,Emotional Distress,"Feelings of depression and anxiety were described by participants. These manifested as annoyance, irritability, disappointment, worry, fear, and frustration."
"Reinke LF, Slatore CG, Uman J, Udris EM, Moss BR, Engelberg RA, Au DH (2015) Patient-Clinician Communication About End-of-Life Care Topics: Is Anyone Talking to Patients With Chronic Obstructive Pulmonary Disease? Journal of Palliative Medicine 18(2): 130-136.",10.1089/jpm.2014.0181,https://pmc.ncbi.nlm.nih.gov/articles/PMC4298987/,Unmet healthcare needs in hospitalized COPD patients,Social Isolation,"Most participants identified social limitation due to their lung disease, often being confined to their homes and lonely."
"Reinke LF, Slatore CG, Uman J, Udris EM, Moss BR, Engelberg RA, Au DH (2015) Patient-Clinician Communication About End-of-Life Care Topics: Is Anyone Talking to Patients With Chronic Obstructive Pulmonary Disease? Journal of Palliative Medicine 18(2): 130-136.",10.1089/jpm.2014.0181,https://pmc.ncbi.nlm.nih.gov/articles/PMC4298987/,Unmet healthcare needs in hospitalized COPD patients,Concerns about the Future,"Half of the participants were fearful about their future, suffering, loss of independence, missing family milestones, and death."
"Hyland ME, Whalley B, Jones RC, Sherwin N (2016) Asthma can take over your life but having the right support makes that easier to deal with: Informing research priorities by exploring the barriers and facilitators to asthma control. Chronic Illness 12(3): 225-237.",10.1177/1742395315625940,https://pmc.ncbi.nlm.nih.gov/articles/PMC5142329/,Barriers and facilitators to asthma control,Attitudes and knowledge,"Healthcare professionals' and others' perceived and experienced attitudes towards patients with asthma and their knowledge about the condition."
"Hyland ME, Whalley B, Jones RC, Sherwin N (2016) Asthma can take over your life but having the right support makes that easier to deal with: Informing research priorities by exploring the barriers and facilitators to asthma control. Chronic Illness 12(3): 225-237.",10.1177/1742395315625940,https://pmc.ncbi.nlm.nih.gov/articles/PMC5142329/,Barriers and facilitators to asthma control,Costs,"Financial barriers including prescription charges affecting medication access and adherence."
"Hyland ME, Whalley B, Jones RC, Sherwin N (2016) Asthma can take over your life but having the right support makes that easier to deal with: Informing research priorities by exploring the barriers and facilitators to asthma control. Chronic Illness 12(3): 225-237.",10.1177/1742395315625940,https://pmc.ncbi.nlm.nih.gov/articles/PMC5142329/,Barriers and facilitators to asthma control,Environmental factors and triggers,"Weather, allergens, and other environmental triggers affecting asthma symptoms and control."
"Hyland ME, Whalley B, Jones RC, Sherwin N (2016) Asthma can take over your life but having the right support makes that easier to deal with: Informing research priorities by exploring the barriers and facilitators to asthma control. Chronic Illness 12(3): 225-237.",10.1177/1742395315625940,https://pmc.ncbi.nlm.nih.gov/articles/PMC5142329/,Barriers and facilitators to asthma control,Healthcare systems,"Timely access to care, follow up and continuity, communication, and obtaining medication within healthcare systems."
"Hyland ME, Whalley B, Jones RC, Sherwin N (2016) Asthma can take over your life but having the right support makes that easier to deal with: Informing research priorities by exploring the barriers and facilitators to asthma control. Chronic Illness 12(3): 225-237.",10.1177/1742395315625940,https://pmc.ncbi.nlm.nih.gov/articles/PMC5142329/,Barriers and facilitators to asthma control,Lifestyle factors,"Inconvenience and time constraints, exercise participation, and dietary factors affecting asthma management."
"Hyland ME, Whalley B, Jones RC, Sherwin N (2016) Asthma can take over your life but having the right support makes that easier to deal with: Informing research priorities by exploring the barriers and facilitators to asthma control. Chronic Illness 12(3): 225-237.",10.1177/1742395315625940,https://pmc.ncbi.nlm.nih.gov/articles/PMC5142329/,Barriers and facilitators to asthma control,Medication,"Efficacy of medications, education about medications, and side effects affecting adherence and control."
"Hyland ME, Whalley B, Jones RC, Sherwin N (2016) Asthma can take over your life but having the right support makes that easier to deal with: Informing research priorities by exploring the barriers and facilitators to asthma control. Chronic Illness 12(3): 225-237.",10.1177/1742395315625940,https://pmc.ncbi.nlm.nih.gov/articles/PMC5142329/,Barriers and facilitators to asthma control,Self-care,"Monitoring symptoms, personalised action plans, common sense measures, and staying calm with breathing exercises."
"Hyland ME, Whalley B, Jones RC, Sherwin N (2016) Asthma can take over your life but having the right support makes that easier to deal with: Informing research priorities by exploring the barriers and facilitators to asthma control. Chronic Illness 12(3): 225-237.",10.1177/1742395315625940,https://pmc.ncbi.nlm.nih.gov/articles/PMC5142329/,Barriers and facilitators to asthma control,Support,"Support from healthcare professionals and others facilitating asthma control."
"Nguyen HV, Dao S, Bui HM, Nguyen TTH, Nguyen HN, Do MD, Nguyen TT, Nguyen DT, Nguyen HT, Horby P, Nguyen NH, Wertheim H, Fox A, Nguyen LT, Trinh QM (2021) Factors affecting healthcare pathways for chronic lung disease management in Vietnam: a qualitative study on patients' perspectives. BMC Public Health 21: 1150.",10.1186/s12889-021-11195-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC8207672/,Healthcare pathways for chronic lung disease management in Vietnam,Ability to perceive,"Knowledge about health conditions which enables patients to identify their health needs. Limited knowledge perpetuated reliance on self-medication."
"Nguyen HV, Dao S, Bui HM, Nguyen TTH, Nguyen HN, Do MD, Nguyen TT, Nguyen DT, Nguyen HT, Horby P, Nguyen NH, Wertheim H, Fox A, Nguyen LT, Trinh QM (2021) Factors affecting healthcare pathways for chronic lung disease management in Vietnam: a qualitative study on patients' perspectives. BMC Public Health 21: 1150.",10.1186/s12889-021-11195-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC8207672/,Healthcare pathways for chronic lung disease management in Vietnam,Ability to seek,"Patients' awareness of available services, as well as their autonomy and capacity to seek care, including trust in providers and family burden considerations."
"Nguyen HV, Dao S, Bui HM, Nguyen TTH, Nguyen HN, Do MD, Nguyen TT, Nguyen DT, Nguyen HT, Horby P, Nguyen NH, Wertheim H, Fox A, Nguyen LT, Trinh QM (2021) Factors affecting healthcare pathways for chronic lung disease management in Vietnam: a qualitative study on patients' perspectives. BMC Public Health 21: 1150.",10.1186/s12889-021-11195-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC8207672/,Healthcare pathways for chronic lung disease management in Vietnam,Ability to reach,"Patients' ability to access healthcare physically, including factors like transportation and geographical barriers."
"Nguyen HV, Dao S, Bui HM, Nguyen TTH, Nguyen HN, Do MD, Nguyen TT, Nguyen DT, Nguyen HT, Horby P, Nguyen NH, Wertheim H, Fox A, Nguyen LT, Trinh QM (2021) Factors affecting healthcare pathways for chronic lung disease management in Vietnam: a qualitative study on patients' perspectives. BMC Public Health 21: 1150.",10.1186/s12889-021-11195-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC8207672/,Healthcare pathways for chronic lung disease management in Vietnam,Ability to pay,"The ability to generate financial resources to pay for healthcare services and associated costs."
"Nguyen HV, Dao S, Bui HM, Nguyen TTH, Nguyen HN, Do MD, Nguyen TT, Nguyen DT, Nguyen HT, Horby P, Nguyen NH, Wertheim H, Fox A, Nguyen LT, Trinh QM (2021) Factors affecting healthcare pathways for chronic lung disease management in Vietnam: a qualitative study on patients' perspectives. BMC Public Health 21: 1150.",10.1186/s12889-021-11195-9,https://pmc.ncbi.nlm.nih.gov/articles/PMC8207672/,Healthcare pathways for chronic lung disease management in Vietnam,Ability to engage,"The participation and involvement of patients in their treatment process and ongoing care management."
"Sanders C, Donovan J, Dieppe P (2010) Perceptions of joint pain and feeling well in older people who reported being healthy: a qualitative study. British Journal of General Practice 60(577): 572-577.",10.3399/bjgp10X515106,https://pmc.ncbi.nlm.nih.gov/articles/PMC2913739/,Older adults' perceptions of joint pain and wellness,Ageing and perceptions of wellness,"How participants assessed health relative to age expectations, emphasising the importance of mental alertness and independence over absence of physical symptoms."
"Sanders C, Donovan J, Dieppe P (2010) Perceptions of joint pain and feeling well in older people who reported being healthy: a qualitative study. British Journal of General Practice 60(577): 572-577.",10.3399/bjgp10X515106,https://pmc.ncbi.nlm.nih.gov/articles/PMC2913739/,Older adults' perceptions of joint pain and wellness,Normalising joint pain in later life,"How participants viewed joint pain as a normal part of ageing and used the explanatory model of wear and tear to understand their symptoms."
"Sanders C, Donovan J, Dieppe P (2010) Perceptions of joint pain and feeling well in older people who reported being healthy: a qualitative study. British Journal of General Practice 60(577): 572-577.",10.3399/bjgp10X515106,https://pmc.ncbi.nlm.nih.gov/articles/PMC2913739/,Older adults' perceptions of joint pain and wellness,Consulting and type of joint pain,"How participants distinguished between age-related pain requiring self-management and abnormal pain warranting medical consultation."
"Sanders C, Donovan J, Dieppe P (2010) Perceptions of joint pain and feeling well in older people who reported being healthy: a qualitative study. British Journal of General Practice 60(577): 572-577.",10.3399/bjgp10X515106,https://pmc.ncbi.nlm.nih.gov/articles/PMC2913739/,Older adults' perceptions of joint pain and wellness,The importance of physical activity for managing wear and tear arthritis,"How participants maintained activity levels and adopted a use it or lose it approach rather than restricting movement."
"Aisling C, O'Connor C, Forde C, Shiely F, Madden D, Guthrie B, Jennings AA (2020) Experiences and Attitudes of International Travelers with Cardiovascular Disease: A Qualitative Analysis. International Journal of Environmental Research and Public Health 17(3): 968.",10.3390/ijerph17030968,https://pmc.ncbi.nlm.nih.gov/articles/PMC7056438/,International travelers with cardiovascular disease experiences,Pretravel Health Preparation,"Participants' routine pretravel preparation practices including medication management, travel insurance acquisition, and consultation practices."
"Aisling C, O'Connor C, Forde C, Shiely F, Madden D, Guthrie B, Jennings AA (2020) Experiences and Attitudes of International Travelers with Cardiovascular Disease: A Qualitative Analysis. International Journal of Environmental Research and Public Health 17(3): 968.",10.3390/ijerph17030968,https://pmc.ncbi.nlm.nih.gov/articles/PMC7056438/,International travelers with cardiovascular disease experiences,Transportation and Transit,"Experiences with airport navigation, airline seating preferences, medical device concerns at security, and overall air travel experiences."
"Aisling C, O'Connor C, Forde C, Shiely F, Madden D, Guthrie B, Jennings AA (2020) Experiences and Attitudes of International Travelers with Cardiovascular Disease: A Qualitative Analysis. International Journal of Environmental Research and Public Health 17(3): 968.",10.3390/ijerph17030968,https://pmc.ncbi.nlm.nih.gov/articles/PMC7056438/,International travelers with cardiovascular disease experiences,Travel Experiences and Activities,"The diversity in recreational activities pursued abroad, ranging from sea swimming to mountain trekking and water sports."
"Aisling C, O'Connor C, Forde C, Shiely F, Madden D, Guthrie B, Jennings AA (2020) Experiences and Attitudes of International Travelers with Cardiovascular Disease: A Qualitative Analysis. International Journal of Environmental Research and Public Health 17(3): 968.",10.3390/ijerph17030968,https://pmc.ncbi.nlm.nih.gov/articles/PMC7056438/,International travelers with cardiovascular disease experiences,Accessing Healthcare Services Abroad,"Experiences obtaining medications and receiving medical care overseas, including challenges without prescriptions and communication barriers."
"Aisling C, O'Connor C, Forde C, Shiely F, Madden D, Guthrie B, Jennings AA (2020) Experiences and Attitudes of International Travelers with Cardiovascular Disease: A Qualitative Analysis. International Journal of Environmental Research and Public Health 17(3): 968.",10.3390/ijerph17030968,https://pmc.ncbi.nlm.nih.gov/articles/PMC7056438/,International travelers with cardiovascular disease experiences,Travel Health Benefits,"Most participants appreciated the potential benefits of international travel to their health, including mental health improvements and increased physical activity."
"Aisling C, O'Connor C, Forde C, Shiely F, Madden D, Guthrie B, Jennings AA (2020) Experiences and Attitudes of International Travelers with Cardiovascular Disease: A Qualitative Analysis. International Journal of Environmental Research and Public Health 17(3): 968.",10.3390/ijerph17030968,https://pmc.ncbi.nlm.nih.gov/articles/PMC7056438/,International travelers with cardiovascular disease experiences,Perceived Barriers to Travel,"Issues and worries associated with international travel including anxiety, physical limitations, and concerns about specific conditions like atrial fibrillation and stroke."
